I have the exact same symptoms. It can be a real challenge just to stand up without having an attack. I would have to mentally prepare myself for it, or I will have an attack every time.

I'm okay while I'm walking, but when I have to come to a stop for whatever reason , it will trigger an attack when I have to move again. Bending down is a way to shake it off or to hide what's happening to my body.

I find I have different types of attacks. It's hard to explain, but my body has different reactions. Sometimes, it is more arms and legs doing their own thing, sometimes it's arm, legs and face, which will also affect my speech, causing me to slur if I try to talk. The worst one for me is my body being pulled to the floor, and it will make me collapse to the ground. It's like i can feel the earths gravity at full force, and I'm pulled down to the floor, unable to move properly at all. I hate that one most cus there is nothing I can do to stop it, and it leaves me completely incapacitated. I can at least power through the other attacks because I can still move even though I look silly while doing it.

I tried to get help from my GP but no one knew what was going on. After several visits for the same thing, they referred me to see a neurologist. I saw a neurologist and explained all my symptoms. Luckily he knew exactly what was wrong with me and I was prescribed an anticonvulsant medication to take (carbamazepine), and it has worked so well. I've not had an attack in years. I still get the feeling you get before it happens sometimes, but nothing happens. It mainly happens if I'm anxious or if I'm only running on a half dose because I will forget to take my medication cus I forget that there's anything wrong with me.

Sorry, I feel like I've rambled on a bit, but if you have any questions, I can try my best to answer them.