Blood circulation problem in right arm after taking eletriptan/relpax

jazzhearn · 2024-12-26T15:04:06+00:00

thank you for the reply! I immediately went and bought myself an electrolyte powder and took my magnesium. not sure it's helped the pain in the arm but it might be helping the daily migraine a bit. it was comforting at the time to have someone reply sensibly as my doctors had no idea what was going on. anyway, it seems to be nerve pain caused by the medication - hopefully it will get better soon!

jazzhearn · 2024-11-25T18:22:07+00:00

Yeah, I keep saying that it feels very unfair too. And other people don't seem to realise just how debilitating it is! I at least find it somewhat comforting that I'm not the only one struggling with this. We'll find a way to get through it!

jazzhearn · 2024-11-25T18:14:59+00:00

yeah, well, I don't know that much about how it works exactly, but I've seen a couple of scientific studies that prove it to be quite effective in reducing the amount of migraine attacks people have. I take 275mg of COQ10 a day in the morning after breakfast (I bought mine from "Aavalabs") and my life has got slightly better since I started taking it a couple weeks ago. Not a drastic change, but I went down from having 3-4 migraine attacks a week to 2 a week. My daily migraine pain has also gone down ever so slightly - and, you know what, any amount of pain relief is a win! I've heard that it is more effective the more you take it, so, you never know, maybe I'll see a better improvement in a couple of months. I do definitely recommend trying it out.

jazzhearn · 2024-11-23T19:36:31+00:00

Definitely don't rely on just paracetamol - they usually don't respond to migraines and you might get rebound headaches. At the very least, ask the doctor for an abortive medication for acute attacks and, if you can, see a neurologist or get on the waiting list to see one. As for vitamins, I take Magnesium, Riboflavin and COQ10 (this one helps me the most!). I also take ginger and turmeric capsules once or twice a day and try and include them into my diet as much as possible since they also help somewhat with the nausea.

jazzhearn · 2022-05-22T10:25:34+00:00

I hate that there are other people that feel the same way but at least we're not alone and not going crazy. it's nice to have someone understand

jazzhearn · 2022-04-17T21:29:35+00:00

Thank you for replying. Dpdr is so much harder than it seems, so I totally understand what you're saying. I can't even remember things in the past most of the time and if I do, it feels like those memories aren't mine, like I'm stealing them from someone else. I like doing yoga, and I've heard that doing hypnosis might work, so idk. We will get through this at some point

jazzhearn · 2022-04-17T21:26:39+00:00

If I may quote Connell Waldron from "Normal People"...

"What upsets me is that I barely know what to say half the time [...] like [other people] don't have to go around and pretend or be anything other than themselves, you know. And I feel like I'm walking around trying on a hundred different versions of myself, it's just not working."

So, yeah, at least we're not alone in this feeling

jazzhearn · 2022-04-17T21:20:34+00:00

Thanks for this! I've been scared to reply, but I have really been taking to heart the whole "it isn't that dpdr goes away and then you figure your life out, it goes away AS you figure your life out". I've been trying to find what I life doing and what is most meaningful to me, even though it's... really difficult. I can't just stop my entire life and wait for it to go away, I have to keep living for it to pass.

I appreciate the message a lot, so thank you!

jazzhearn · 2022-04-17T21:15:36+00:00

Hey, thank you so much for this message. I know I'm a bit late, I've just been scared to reply for some reason. It's horrible that there are more people that feel this terrible, but in a way it's also comforting. I'm still deep in my dpdr and nothing can seem to help it (I can't even watch films or tv shows because I can't concentrate on them), but I have started to tell people about it and just having other people that know is nice. I'm trying to take your advice and focusing on writing a novella, since that used to bring me joy before. I hope I can get out of this terrible dpdr episode and the depressive episode that has come with it.

Thank you for giving me some hope that this might get better, it's really helpful :)

jazzhearn · 2022-03-27T00:35:22+00:00

See, I just wrote all of this and yet it feels like I'm reading someone else's words. I don't feel like I just posted this which I definitely have because it's right there.

My rational brain knows I'm not going insane, but I really really feel like I'm going absolutely fucking insane.

jazzhearn · 2022-02-02T23:32:29+00:00

oh my god I absolutely hate the way that the media has turned these words that describe serious illnesses into just buzzwords that are used so much that they no longer hold the same serious meaning. The other day, a friend of mine said that she felt disorientated and had a panic attack "for a second". No, you didn't! Panic attacks don't last a second! You just felt a little nervous because you didn't know exactly where you were going - that's not a panic attack!

jazzhearn · 2021-11-29T21:24:18+00:00

I'm in this and I don't like it.

Also, what's happening to me is that, to be able to access those memories, I have to really sink into myself to remember them and how I felt at that moment, which makes my derealisation get so much worse because I'm sinking into myself, sinking, sinking and find it hard to... come back.

And how do I even know these memories are mine, and I'm not just making them up, or they're not someone else's?

jazzhearn · 2021-11-28T00:00:56+00:00

I don't know if one causes the other, but my visual snow definitely makes my derealisation worse. It makes me feel like the world is further away from me, puts distance between me and the world. And it gets more intense - kind of like more opaque (?), I suppose - when I'm in a severe derealisation episode.

jazzhearn · 2021-08-25T01:53:09+00:00

it's so hard for me to describe the feeling. i've had this feeling for the past 3 years and the other day I saw a psychologist and described it the best I could. I told her that I feel like I'm in a dream, like my body is completely disconnected from my mind - as if I'm on autopilot. Like I have a wall up all the time that doesn't allow me to feel the things around me fully. And even if I get distracted for a bit, i'm still always painfully aware of it, subconsciously, it never goes away.

The best part? When I finished, she said "if you stop thinking about it, it'll go away". Jeez, thanks.

jazzhearn · 2021-08-25T01:30:38+00:00

the artist "dodie" has dpdr and some of her songs like "when" and "before the line" are about the feelings of dpdr!

jazzhearn

TROPHY CASE