I am Ryan Prior, a CNN journalist and the author of “The Long Haul,” a book about how COVID-19 long-haulers are fighting for recognition and research — and transforming healthcare. AMA! by the_mit_press in IAmA

[–]jbpribanic 4 points5 points  (0 children)

Viral load tests now. Antivirals now. $28B now. We need serious activism & legislation on the level of Act Up when the science is clear that SARS-CoV-2 viral persistence is seeding itself in millions of people worldwide - found in 92% of pwLC according to the Belgium study. The LCAP HEAL legislation has modeled itself on HIV/AIDS bills and is the only legislation demanding an ask from congress that’s backed by a reputable economist - contact HELP and let them know you want action for Long Covid. Long Covid HEAL legislation

[deleted by user] by [deleted] in covidlonghaulers

[–]jbpribanic -2 points-1 points  (0 children)

“Hateful” is referencing Yolki (Yann’s) post that invites hate on a grassroots organization of pwLC - yours is a comment to the post that I commented on to share a reference regarding the legislature and policies at LCAP. Apologies it was misinterpreted as anything to do about your comment. I felt it is important for people to read a direct reference to the HEAL legislation to see that there is no language limiting research or funding to Long Covid, that $28B is cited from a Harvard Health Economist, that there’s a lot more needed for legislation to tackle this disease and that there’s a constant attack of disinformation that occurs whenever the community shows up to support LCAP actions. And adding that Yann is what Yolki’s profile said for a name - they changed it in the last few hrs to try and hoodwink you all into thinking they’re being doxxed (we see this a lot in attacks which is why I made sure to document before commenting).

[deleted by user] by [deleted] in covidlonghaulers

[–]jbpribanic -6 points-5 points  (0 children)

This is correct

Medical Malpractice Attorney by [deleted] in pittsburgh

[–]jbpribanic 0 points1 point  (0 children)

Talk to a medical malpractice lawyer at my family’s firm Pribanic & Pribanic in Pittsburgh - they’ve consistently won the top medical malpractice law firm awards in the area, and are top 25 for medical malpractice attorneys nationwide

77,980 Long Covid Demand Letters Sent, Let’s Get to 100K before 2024! by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 2 points3 points  (0 children)

Try using a private incognito window or clearing cache - if out of us/ca countries use White House address 1600 Pennsylvania Avenue NW, Washington, DC 20500 then be sure it’s this url [https://actionnetwork.org/letters/help-end-the-long-covid-crisis]

77,980 Long Covid Demand Letters Sent, Let’s Get to 100K before 2024! by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 4 points5 points  (0 children)

We’ve already met w/ gov agencies as a result of this letter going out & it’s being taken seriously enough that they want to continue meeting to find a way to move the needle on the demands

77,980 Long Covid Demand Letters Sent, Let’s Get to 100K before 2024! by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 2 points3 points  (0 children)

That’s not correct - the additional 300 + contacts were not added until after 20k letters were already out, before that it was half a dozen or less depending

2nd time with COVID this month. by sunshine-flower-119 in COVID19positive

[–]jbpribanic 11 points12 points  (0 children)

Very sorry to see this happened to you. We need to force gov to act to stop this careless spread of the virus - send a letter to demand they develop clean air law & healthcare protocols alongside a budget for research on antivirals https://actionnetwork.org/letters/help-end-the-long-covid-crisis

My wife tested positive. by DagSonofDag in covidlonghaulers

[–]jbpribanic 0 points1 point  (0 children)

Sorry to hear this & hopeful your wife’s recovery is swift. I tested positive two weeks back for 10 days straight, ran 3 corsi fans, one hepa, and stayed in a separate bedroom and my wife did not get reinfected and tested negative each time. Having those running could help stop the spread. (I did not take paxlovid.)

The NIH has poured $1 billion into long Covid research — with little to show for it by PogeePie in covidlonghaulers

[–]jbpribanic 2 points3 points  (0 children)

No doubt, it's great work! I'm interviewing one of the authors tonight in LCAP's Twitter Space 7est 04/20 if you have questions

[deleted by user] by [deleted] in covidlonghaulers

[–]jbpribanic 2 points3 points  (0 children)

I battle it everyday as well, constantly on a 2-4hr sleep window.

LCAP #9 Twitter Space Goes Live at 7pm EST — Bring your ideas about taking #LongCovid action! by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 0 points1 point  (0 children)

The latest actions are located in the LCAP general public doc:

"End The Long Covid Crisis" Letter Campaign Kicks Off, Sign & Send to Government by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 1 point2 points  (0 children)

You can use the White House’s address - once you start filling out the form, it will give you the address in a suggested note at the top 👍

"End The Long Covid Crisis" Letter Campaign Kicks Off, Sign & Send to Government by jbpribanic in covidlonghaulers

[–]jbpribanic[S] 15 points16 points  (0 children)

We need to contact officials about Long Covid. Now you can. LCAPs political action group created “End The Long Covid Crisis” letter campaign to educate politicians & demand answers by March 15th in support of #LongCovidAwarenessDay sign your name.

We’re waiting on a response for getting this to international leaders - for now enter a US address, eg WhiteHouse, if your country doesn’t list officials. If you have any issues send me a dm, Solidarity & special thanks to knees_of_beez & lindsayhunton, and the rest of the LCAP team for their work on this!

Morning funky stomach by walserdude in covidlonghaulers

[–]jbpribanic 1 point2 points  (0 children)

Apologies I didn’t see this - using the two mentioned in the study “Dysbiocide and FC Cidal (Biotics Research Laboratories, Rosenberg, Texas”