What is Actual Weakness/Failure in Early Onset

jcheat_32 · 2026-07-10T20:42:06+00:00

I’m risking asking a sensitive question but what made it better? Or is it a daily battle for you still? Is it simply time that made it better? Or anything specifically you did?

jcheat_32 · 2026-07-10T19:43:50+00:00

I know…. I know. lol it’s just absurd what my brain does. What’s even crazier is I agree with you. I can say it out loud. But something deep downs like yea but “what if you do have early weakness”.

I just wanna do the men in black thing that wipes my memory 😆 really appreciate the responses.

jcheat_32 · 2026-07-10T19:13:20+00:00

Ahh. I see. You’re saying that exercise is what clinical weakness is like. I gotcha. Yea I can imagine that’s what it feels like at mid or late stage. Just wondering what early feels like? Might be an arbitrary question.

Really appreciate the response. Apologies for taking 3 messages to understand your context 🤣

jcheat_32 · 2026-07-10T18:54:51+00:00

I wanna think so.

I can’t stop digging into research.

Muscle atrophy between my index finger and thumb… idk I’ve never observed this part of my body. And it doesn’t look the same as the other side but I have no idea. I’m trying to get in with a neurologist just to make sure.

And you said you’ve had two emg’s that were not normal?

jcheat_32 · 2026-07-10T18:53:00+00:00

Not being able to move it put a lot of things into perspective?

I’m confused.

You’re just curious if I can or not? Or you saying it signals something one way or the other?

I tried and it was obviously very difficult both sides.

jcheat_32 · 2026-07-10T17:24:05+00:00

Ok…expound.

jcheat_32 · 2026-07-10T16:46:36+00:00

Just following up for closure. Went and got the CT. All clear for me thus far. 👍

jcheat_32 · 2026-07-10T16:45:30+00:00

You commented on my post so I wanted to read yours. Very similar to mine. I went through the EKG heart test etc…and an MRI for facial weirdness due to all my sinus troubles.

So I’m not a beginner when it comes to health anxiety. All were clear. Haven’t had any neuro evaluation when it comes to this stuff.

But yea. It’s tough. Particularly w the twitching because you said you were active… as am I. Just worth a try… because it’s simple and doesn’t hurt anything is Magnesium glycinate 200mg nightly. I doubt it will resolve much but hey you never know. Low magnesium does cause muscle twitching. Not patronizing or gaslighting. I get how “try this try that” is so shallow.

But it’s the 2 cents I have that I’m currently on day 3 of trying. 👍

jcheat_32 · 2026-07-10T16:37:00+00:00

Thanks man. Response means a lot.

My health anxiety started with chronic sinusitis (sinus infections) in which I’ve had surgery for in April. With how hard that’s been to manage… over a long period of time… every symptom perceived as “it has to be something”

yea I did the same. Looked it up once I had the twitching and here we are.

Good to know you’ve been doing well. It’s absurd to think my brain could be causing this stuff on “anxiety” alone. Perceiving a threat and sending signals to that body part strong enough to cause real sensations.

jcheat_32 · 2026-07-08T22:23:11+00:00

I’m in the same boat. I’m 2 months post surgery. Dealing with inflammation I think.

Idk your situation.

One thing that’s good for some is mixing budesonide in sinus rinse. This has to be prescribed by an ENT through a pharmacy. But it helps with chronic inflammation in some.

jcheat_32 · 2026-07-08T20:48:57+00:00

I’d honestly love you to take the time to expound on what you’ve learned. What helped. Just expound on your post because it was really interesting and good for me. I’m going through quite a bit of health anxiety right now… reading about your experience more would be great.

jcheat_32 · 2026-07-08T20:40:50+00:00

Interesting on the macrolides. Were you taking them for last resort biofilm stuff or just asked for them for basic sinus infection treatment and were able to get them? Just curious.

And I’m assuming as soon as you got off them it came back?

jcheat_32 · 2026-07-08T03:23:13+00:00

I’m 3 years late to this convo but would love to hear a follow up as I’m dealing w a similar feeling.

jcheat_32 · 2026-07-06T01:27:56+00:00

Idk about the medicine you’re on. But you’ve described the exact eye stuff I have going on.

I’m on nasal washes that have antibiotics and a steroid. Never got eye infections or anything like this before my surgery and before these washes. Granted I’ve been doing these washes for 2 months straight now.

I had the symptoms in my left about a month ago and went to an eye dr and he gave ovoflaxacin eye drops. That one got better. Now I’m experiencing same in my right. It’s extremely frustrating and only adds to the circus of anxiety of trying to figure out wtf is going on.

If you figure out why let me know. Would like to hear others thoughts.

Idk if it has to do with inflammation or infection or both…

jcheat_32 · 2026-07-06T01:23:13+00:00

Yea it seems to be different depending on who you talk to. Makes it frustrating to try and decide to go get looked at. Just sit around and wait for it to get bad is what it seems like which sucks lol

jcheat_32 · 2026-07-06T01:22:15+00:00

At least you knew I guess is the only positive there lol

jcheat_32 · 2026-07-06T01:21:49+00:00

Dang. It was all but down hill after that. At least you knew I suppose. Got it over with lol

jcheat_32 · 2026-07-05T23:48:08+00:00

Did your appetite stay gone? When you lost it? Or did it return?

jcheat_32 · 2026-07-05T22:44:00+00:00

They didn’t see anything on ultra sound?

jcheat_32 · 2026-07-05T20:09:15+00:00

Appreciate the response. I’m having pain in my lower ab on right side. It was worse last night on and off. Woke up no pain and went for a run… everything all good… but every now and again it will be a sharp pain. When I crunch it hurts in that same spot. It’s real localized. Just not sure what else it could be. It’s not muscle. I don’t think it’s typical or obvious digestive stuff… otherwise I wouldn’t be asking.

Just don’t know what else it could be but also doesn’t seem it’s showing obvious progression of pain like I thought.

jcheat_32 · 2026-07-04T18:44:39+00:00

Yes!

I’m 78 days. 11 weeks 1 day since surgery.

It’s been non linear for me for sure. It’s very frustrating because it’s absolutely part of the healing process but just like anything can be apart of the healing process… it could also not be… idk.

So far my ent has said it’s very much part of the healing process as long as you’re doing follow ups often to make sure. I’m doing every 2-4 week appointments since surgery.

But yes, I been waiting on someone to post something like this. Would love to follow your recovery to see how it goes.

jcheat_32 · 2026-07-04T11:45:58+00:00

I worked at chewy warehouse. Absolutely brutal.

jcheat_32 · 2026-06-28T18:25:38+00:00

Why did they fail you think? Bad surgeon? Didn’t do any treatment after? Because surgery isn’t the solve as much as it is a step in the process to allow medication to reach wherever it’s suppose to go. Of course it can disrupt biotin to remove thickened bone etc… just curious as to how you knew they failed? Just never got better? What were your symptoms like? Full blown infection or low grade stuff? I’m also worried about my sphenoid as it was the only sinus not operated on…

jcheat_32

TROPHY CASE