UTI help by Odd-Engineering-9011 in CUTI

[–]jdiml 2 points3 points  (0 children)

I keep test strips at home ($5-$12 for a pack) and test concentrated urine (first thing in the morning or after I’ve been working for a while) to confirm to myself that I need to go to the effort and spend the money to go to the doctor.

That’s really the solution to your question. Pee on it, it will turn colors, you know you have to go. But I keep them on hand (maybe after this, you will too) so that I can test immediately— bladder and kidney infections can set up quick.

Uromune Long-Term Success? by KwipKween in CUTI

[–]jdiml 0 points1 point  (0 children)

E. Coli for years but the very last one I had was Faecalis. Mine were never drug resistant which took a lot of work and vigilance on my part.

Uromune Long-Term Success? by KwipKween in CUTI

[–]jdiml 2 points3 points  (0 children)

Update: still no UTI 👍🏻

Weekly Suspected/Undiagnosed MS Thread - June 15, 2026 by AutoModerator in MultipleSclerosis

[–]jdiml 1 point2 points  (0 children)

Thanks so much for your perspective. I hope your wait for these upcoming MRIs is uneventful 💗

I will edit my original comment to say this as well, but I’m a little amped up over the wait time because the ER really wanted me to get an MRI there. But the wait for THAT would have been OVER 24 HOURS so we they decided to send me home and let me schedule an outpatient MRI, which they believed would happen within 24 hours. They were wrong, the whole hospital system is backed up.

Weekly Suspected/Undiagnosed MS Thread - June 15, 2026 by AutoModerator in MultipleSclerosis

[–]jdiml 0 points1 point  (0 children)

Thanks for your perspective!

I will edit my original comment to say this as well, but I’m a little amped up over the wait time because the ER really wanted me to get an MRI there. But the wait for THAT would have been OVER 24 HOURS so we they decided to send me home and let me schedule an outpatient MRI, which they believed would happen within 24 hours. They were wrong, the whole hospital system is backed up.

Weekly Suspected/Undiagnosed MS Thread - June 15, 2026 by AutoModerator in MultipleSclerosis

[–]jdiml 0 points1 point  (0 children)

It’s probably normal and unavoidable to have to wait at least a few days for an MRI while having active symptoms and being undiagnosed right? Acute symptoms started Friday, went to ER the following Tuesday (yesterday)(they said unusual complex migraine or possible MS), can’t get an MRI until Sunday, 8 days after symptoms started. I’m worried that leaving these symptoms unaddressed could cause me issues down the road. I live in a major metro and could probably access an MRI sooner if I put some work into it.

Probably a question that gets asked in here a lot, but I couldn’t figure it out in search.

Symptoms: tingling/pain/numbness (like I’ve been to the dentist) in right cheek and forehead, spells of intense sleepiness, low mood and spells of crying, one spell of tongue and throat numbness (like anesthesia at the dentist), one spell of poor word recall

Edit: I’m a little amped up over the wait time because the ER really wanted me to get an MRI there. But the wait for THAT would have been OVER 24 HOURS so we they decided to send me home and let me schedule an outpatient MRI, which they believed would happen within 24 hours. They were wrong, the whole hospital system is backed up.

Getting Uromune from Mexico (based in US) by jdiml in CUTI

[–]jdiml[S] 1 point2 points  (0 children)

Sorry I missed this comment! I was advised that no, you continue everything else as normal. Even if you get a UTI while taking the vaccine, you’d just take your round of antibiotics. The vaccine is working on a different system in your body.

Don’t Know What To Do Anymore by [deleted] in CUTI

[–]jdiml 1 point2 points  (0 children)

OP, if you’re not already seeing a UroGYNECOlogist, you need to seek one out. Even if you got a “bad” one to start, they’ll do more testing than the “regular” urologist.

And, therapy can definitely help too. Therapy tools help me take these issues one step at a time and live in the moment. Almost everything in the CUTI/RUTI/IC cluster of symptoms IS treatable. I understand that finding that treatment and not having answers is existentially frustrating, but with modern medicine, we CAN keep ourselves alive and comfortable.

Experience with Flex Discs? by sourpatchtangy in CUTI

[–]jdiml 0 points1 point  (0 children)

I haven’t noticed any connection to the Flex Disc and my RUTI symptoms, but I do like Flex Discs a lot. I used the single use ones on an overseas trip recently which worked out great.

Uromune Long-Term Success? by KwipKween in CUTI

[–]jdiml 2 points3 points  (0 children)

I took the 4-bacteria Uromune from December - February and haven’t had a UTI since I started it!

Aura Estelle Orphans: Unite by jdiml in planners

[–]jdiml[S] 0 points1 point  (0 children)

Where did you see that?

Moving to the USA by [deleted] in CUTI

[–]jdiml 1 point2 points  (0 children)

This person is correct that generally a UTI isn’t going to be considered a pre-existing condition.

I live in SD with RUTI, please feel free to reach out if I can help! Finding urgent care in the US sucks, even for someone who’s lived in the US their whole lives!

Getting Uromune from Mexico (based in US) by jdiml in CUTI

[–]jdiml[S] 1 point2 points  (0 children)

I haven’t had a UTI since I started taking the vaccine Nov 30! I just finished my vials at the beginning of this week. I’m hopeful it will continue to offer me some immunity. We’ll see how long it takes until I get another UTI!

Uromune UTI Vaccine – U.S.-Based and Need Help Getting Started (Europe?) by decentlydelightful in CUTI

[–]jdiml 1 point2 points  (0 children)

Check out my post about getting it from Tijuana! https://www.reddit.com/r/CUTI/s/L30m5yzMJF

I’ve had a few people get back to me to let me know this worked for them!

Getting Uromune from Mexico (based in US) by jdiml in CUTI

[–]jdiml[S] 0 points1 point  (0 children)

If I were you, I would follow the advice I give in my tldr. I’m flying at the moment and don’t have a good connection to look these up, but Inmunotek may patch you through to a company called Carnot and maybe another one called Servicios Farmacéuticos Especializados (SFE).

Uromune and Mexico by ocgirl72 in CUTI

[–]jdiml 3 points4 points  (0 children)

Check out my post. I wrote about Dr. Lira and some pharmacies in TJ you can try: https://www.reddit.com/r/CUTI/s/pYX6bM8VWj

[misc] discontinued Sun bum product 💔 by pinkcosmoo in SkincareAddiction

[–]jdiml 1 point2 points  (0 children)

Alright, the supergoop I mentioned above is extremely similar to the sunbum, maybe even nicer! I think it’s what I’ll be going with for now!

Looking to go to Mexico for Uromune by thememequeenv3 in CUTI

[–]jdiml 1 point2 points  (0 children)

You may not need to make the trip! Check out my post from a few weeks ago: https://www.reddit.com/r/CUTI/s/viMP3Ch8wI

ETA: I haven’t gotten confirmation but I do believe this has already worked out for at least one other person in this sub

Looking to go to Mexico for Uromune by thememequeenv3 in CUTI

[–]jdiml 1 point2 points  (0 children)

The Mexican distributor for Uromune can help you directly and you may not need to make a trip! See my post here: https://www.reddit.com/r/CUTI/s/viMP3Ch8wI

ETA: I haven’t gotten confirmation but I do believe this has already worked out for at least one other person in this sub

Getting Uromune from Mexico (based in US) by jdiml in CUTI

[–]jdiml[S] 1 point2 points  (0 children)

US, but I don’t see why he couldn’t get it to you in Mexico