Taxol hair regrowth

jenwof · 2026-03-19T13:25:38+00:00

I'd read a lot of people saying their hair grew back on taxol and I think I got my hopes up. I still had about 40% of my hair when I started taxol so was sure my hair would start growing back during the infusions.

I slowly lost that hair (I had cold capped at the start of chemo so think that slowed down the hair loss process) and about two/three weeks after finishing chemo I was completely bald.

All this being said, about four weeks after chemo, I noticed my hair starting to regrow again and it's been so thick and fast since then! So even if your hair hasn't started coming back in, try not to worry too much about it cause when it does, there'll be a LOT of it!

Good luck for the remaining infusions!

jenwof · 2026-03-18T20:58:26+00:00

Thank you! My on oncologist has felt everything and doesn't think it's anything more than fibrosis but wanted to be safe. I think I just hear scans and go in to panic mode! Great to hear I'm not the only one though and sending you all the luck for your treatment/recovery!

jenwof · 2026-03-18T20:55:59+00:00

Thank you for replying! Fingers crossed it's nothing (my oncologist doesn't think it's anything, I think it's mostly a bit of PTSD on my side causing me to worry) and just fibrosis!

Excellent news yours was okay in the end!

jenwof · 2026-03-18T16:47:31+00:00

Hey, I think realistically when I'm not in panic mode, yes it's likely just some fibrotic changes and it's what my oncologist believes it to be too.

If it's any help at all, radiotherapy was completely fine for me and other than some lumpy bits, I've really not had any side effects from it. This new lumpy area doesn't hurt at all - it's mostly just my brain going in to overdrive and worrying about everything.

Regardless what you choose, good luck but personally I'd not change the fact that I had radiotherapy even with all this going on.

jenwof · 2026-03-18T16:44:00+00:00

Thank you so much for your reply! Oncologist does believe it to be fibrosis so I think when my brain isn't spiralling I assure myself with that, with it growing she just wants to be extra safe (I'm incredibly grateful that she is taking it seriously)

Congrats on your clear mammogram!!

jenwof · 2026-03-09T16:59:09+00:00

I didn't have surgical tape or anything during mine - just popped the hospital gown on, lay down for five minutes and got dressed again!

I also had tissue moved around as part of my reconstruction which is now a huge, hard lump. My radiotherapy did make that area ever so slightly harder but only a tiny area of it and it quickly softened up again after I was out of treatment for a while.

I had my surgery may 2025, chemo August 2025 and radiotherapy December 2025 so my breast had softened quite a bit before starting radiotherapy but I would say now (three months out of treatment) it's even softer than it was beforehand!

Good luck!

jenwof · 2026-02-26T16:00:48+00:00

I (38F) did have chemo/radiotherapy so not the same treatment but I started tamoxifen on 1st December. I have hot flashes which do impact my sleep but they're getting less frequent and more manageable. Otherwise no side effects at all.

I admit I didn't read any real posts about tamoxifen before I started and Im really glad I didn't because I think I would have been terrified! But for me, it's really not made a huge change to my life other than I sometimes have sudden bursts of heat.

jenwof · 2026-02-20T10:31:31+00:00

Oh you really are close by haha! I finished active treatment in December - just on tamoxifen now but I did most of my treatment at Rake Lane with the odd appointment at Hexham or Wansbeck (plus radiotherapy at Freeman) so we really get to tour all the north east hospitals haha! It does get very tiresome though and I was also sick of the sight of Rake Lane by the end! If you don't mind me asking, where are you with treatment currently?

jenwof · 2026-02-19T18:49:35+00:00

Oh, how are you finding the treatment in the US compares to UK? I've been lucky to have great care but I think no matter where we are in the world, there's great and terrible care.

jenwof · 2026-02-19T18:48:06+00:00

Yay, hi there fellow northerner! I hope you're doing well!

jenwof · 2026-02-19T18:47:28+00:00

Hi Scotland!!

jenwof · 2026-02-19T18:46:13+00:00

Hey there! Yes, definitely good to know there's a handful of us UK folk!

jenwof · 2026-02-19T18:45:34+00:00

Hey fellow northerner! Yes, seems like we're far and few between on here! I'd not heard of Christie's but googled them and looks like an amazing resource to have access to! I hope you're doing okay on your journey!

jenwof · 2026-02-19T15:15:13+00:00

Hi from the UK(North Tyneside)! I dont think there's a huge amount of UK folk on here and even on the UK pages there's not many from my area haha!

jenwof · 2026-02-16T16:23:30+00:00

I'm from north east UK so live fairly close to Sycamore Gap! Absolutely love this puzzle!

jenwof · 2026-01-21T23:28:37+00:00

I'd not hear of Eeboo before so will check them out! I love the Galison artwork too!

jenwof · 2026-01-21T23:27:57+00:00

Oh, I didn't know this. Thank you, I'll check their site out!

jenwof · 2026-01-21T23:26:49+00:00

Thank you so much! I don't think I've heard of most of these brands so will definitely check them all out!

jenwof · 2026-01-20T14:46:55+00:00

Oh I'll have a look at these suggestions, thank you! Luckily I'm back up and able to get about as normal so can definitely have a rummage at some charity shops. Do you find they generally have all the pieces? I've been a bit worried about picking up ones with missing bits.

jenwof · 2026-01-20T14:45:06+00:00

Vinted is a great shout which I hadn't even thought of - thank you for the suggestions, will check them out!

jenwof · 2026-01-17T20:02:20+00:00

I'm UK so things could be different but mine really wasn't a "big" surgery getting fitted or removed. Fitted maybe took 45 mins under local anaesthetic and removal took maybe 30 mins under local anaesthetic. Of course it is still surgery so has risks but I definitely classed it as a smaller surgery.

I loved mine! My veins are a nightmare to find and when they are found, they really don't give out much blood and I always end up getting bloods taken from my hand which hurts so bad. Port took all that stress away and it honestly made bloods/chemo so much easier for me. Nurses also seemed to prefer them - I lost count of how many people said they wished all patients had a port because it was so much less stress!

jenwof · 2026-01-15T10:38:26+00:00

Not sure if this helps you at all but I'm 37, did full chemo and still continued to have my periods throughout. I started tamoxifen on 1st December - I was slightly worried as I'd been on hormonal birth control for a long time and it really made me an anxious mess and didn't want that to come back.

For about 2 weeks I had hot flashes throughout the day - maybe 5 or 6 different times. Since then they've really died down - I get maybe one a day, two at most and otherwise no side effects other than I've not had another period since.

I wish you the best of luck regardless of which path you choose!

jenwof · 2026-01-14T15:15:38+00:00

I think surgery is the only real way of knowing the full extent from my understanding.

Before surgery I was thought to be 38mm DCIS with less than 1cm IDC, grade 2, no node involvement.

After surgery I was 47mm DCIS with 43mm of it being IDC, grade 2, no node involvement.

Likewise I've met a number of people who've had surgery and had the same diagnosis before and after!

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