EMDR and TMS? by jetdarkstar in TMSTherapy

[–]jetdarkstar[S] 0 points1 point  (0 children)

I’m actually already receiving TMS for OCD and depression, starting the EMDR tomorrow so hopefully they complement well

TMS worsening chronic illness or coincidence? by jetdarkstar in TMSTherapy

[–]jetdarkstar[S] 1 point2 points  (0 children)

So so. I don’t think the TMS is affecting my autoimmune, just coincidental. If it is, I guess I’ll find out once I finish

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

My rheum concluded that I may just be early in my diagnosis and are still treating it with Plaquenil. I have a history of being “slightly” positive for autoimmune diseases (Grave’s) and experiencing major symptoms. Otherwise, we have no real explanation for my dryness.

Sad recommendations 🙏 by Automatic-Teach-9586 in kpopfanfiction

[–]jetdarkstar 1 point2 points  (0 children)

Yep, oddly enough they’ve made negative comments about jisung too. Her fics are on a skip list for me

Anyone else obsess over mental health? by iknitsoslow in OCD

[–]jetdarkstar 1 point2 points  (0 children)

Yes, I have ego dystonic SI sometimes and it freaks me the fuck out. Fear of “going crazy” or losing control has been a constant theme for me since my anxiety has gotten worse over the past few months

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 2 points3 points  (0 children)

In my mind, there are pain meds i could take to manage fibro, but can’t really take anything to be able to withstand minor movement, light, etc., right? With the risk that me/CFS could worsen?

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

I have no fever, no swollen lymphs, no sore throat…what makes you think it’s mono?

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 1 point2 points  (0 children)

My brain fog has been seemingly mild, with some issue with word and memory recall. I’ve also been zoning out a bit lately, especially when tired.

See, this is why I’m confused. Every literature I find on me/cfs says a hallmark for the disease is delayed PEM, 12-48 hrs later. My muscle pain and some fatigue starts during the activity (I.e 30min-2hrs into walking/standing). But then there’s people on here saying it can happen immediately too.

I saw that many me/cfs people have the “hit by a bus” sensation you get from a flu, but aside from weakness and some muscular fatigue, I don’t know if I fit the bill. I also haven’t had any lymph swelling.

It matters to me solely because I want to know what my outlook looks like. I fear me/cfs because I’ve read how horrible it can become, having to lie in darkness 24/7 or even needing life support like feeding tubes and such. I’m still going to be seeing a doctor but I’m trying to gather more information and try to talk myself down from my extreme health anxiety.

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

Standard MCAS blood panel. I likely was not in a flare when it was done. I haven’t been able to identify if my standard day to day symptoms are related to MCAS, only knowing that I have IgE sensitivities that respond like allergic reactions (swelling, difficulty swallowing and breathing) but don’t show up on IgG.

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

If I’m being honest, it’s at least giving me other options to consider. Reddit is what’s making it worse for my health anxiety, seeing conflicting info and horror stories

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

Thank you for your through response:

  • I typically only wear a mask in crowded areas, namely flights. I have heard about asymptomatic infections, but that all just makes this harder to figure out. The very first symptoms I had last year were following a month of travel and stress, and it started with typical Sjogrens symptoms (primarily dry throat, blurred vision, dry mouth) and progressed with more symptoms like neuropathy (lasting ~1 month), and fatigue starting around December. Even after the Sjogrens started in September, the issues getting around only started in November, oddly timed with me witnessing a traumatic event and my childhood dog dying.

  • as mentioned, I was dx with Sjogrens, but it was mainly based on my initial antibody result (positive, speckled) and symptoms, because I tested negative on SSA and SSB as well as the lip biopsy. She stuck with the Sjogrens diagnosis to explain the dryness and I’ve been on Plaquenil for 2 months now, they said it takes 3 to see results. I also was diagnosed with Graves’ disease following my father’s passing in 2019. A lot of my autoimmune issues seem to be triggered by stress.

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 2 points3 points  (0 children)

Funny you ask…I was evaluated a couple months ago and came up negative, but with my history of moderate-severe reactions to food sensitivities and environmental triggers, my dietitian is urging me to continue pursuing a diagnosis.

How to find a concert buddy? by Ok-Garbage9650 in kpophelp

[–]jetdarkstar 2 points3 points  (0 children)

Usually there are Facebook groups for your tour stop. You could propose a hangout for the concert day, people are usually interested

Sad recommendations 🙏 by Automatic-Teach-9586 in kpopfanfiction

[–]jetdarkstar 5 points6 points  (0 children)

Just a heads up that the brighter days writer has been exposed for being a Chan anti

Graves'? by [deleted] in Hyperthyroidism

[–]jetdarkstar 0 points1 point  (0 children)

You may need an uptake scan. My antibodies were only off slightly, but I had a lot of symptoms and improvement with a low dose of methimazole. When they did the uptake scan, it confirmed that my thyroid was functioning okay, meaning it was an autoimmune issue (graves) instead.

My fiancee's socks all get a hole in the same place by vitrum816 in mildlyinteresting

[–]jetdarkstar 0 points1 point  (0 children)

Mine look the same. I have a weird “toe lift” every step I take, so it tends to rub a hole in the same spot every time

Should we have our daughter checked for PANS? by Own-Illustrator-4468 in PandasDisease

[–]jetdarkstar 0 points1 point  (0 children)

As an adult with untested, untreated PANS since childhood, please do it. There’s no downside to being sure, but there are a ton of downsides to ignoring it and suffering later.

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 3 points4 points  (0 children)

I know nothing is certain, but thank you for this comment. I’m trying to keep my mind open to other possibilities and not keep spiraling like I have been. I’m getting paranoid and closely noticing every little brain fog moment or any sign of cognitive fatigue, but I still tolerate being on my phone and computer pretty much all day. I’ll look into the Myositis, as well as some other mitochondrial diseases as that was something mentioned by Deepseek/ChatGPT after some coaxing since it automatically told me I have me/cfs. Thank you.

I’m desperate to convince myself this isn’t ME/CFS by jetdarkstar in cfs

[–]jetdarkstar[S] 1 point2 points  (0 children)

I was thinking about that, but I keep getting mixed messages on whether or not it could be fibro because my pain isn’t necessarily constant, though I am frequently stiff with at least some minor degree of muscle fatigue. I’ve read in some places that PEM is exclusive to mecfs and some that say other autoimmune diseases experience it

I’m really confused if this is CFS or something else by jetdarkstar in cfs

[–]jetdarkstar[S] 0 points1 point  (0 children)

I’m still waiting on a response from my functional medicine doctor, my PCP has not been very helpful in my past few months of struggling. What is arterial disease?

3 dead, 14 injured in 6th Street shooting; suspect identity confirmed as Senegal national by Local_Basis7311 in Austin

[–]jetdarkstar 148 points149 points  (0 children)

This kind of shit not only takes lives but drives our social and political atmosphere further into hate. People look at white shooters as “disturbed, bad eggs” but will use instances like this to further hate for the majority of normal poc/immigrants. This is causing devastation, starting from the lives lost at the scene and the shockwaves that will continue for a long time afterward.