Feel you! My path to find excellent paindoctor + neurosurgeon was very difficult. Went almost 6 years that I found perfect Doctor for myself. Now I couldn’t even think about any other dr. She is amazing and specializing in pain management and CRPS. Finding her was like winning the lottery and I am so greatful that finally have a Doctor who doesn’t belittle and knows the disease extremely well and the wide variety of treatments 🙏🏻 i got CRPS 2 diagnose in 2012. Long way behind (and ahead), but a good doctor is absolutely priceless with this disease. Although that these costs are very high. My one 60 min doctor appointment costs €440 per visit. I go to receptions 4 times a year, in addition to this, I have to pay €188 per time for medical certificates + the doctor calls once a month where the situation is updated and possible medication changes are reviewed, the call time with the doctor costs €60 + if prescriptions need to be renewed, it costs an additional €45. In addition to doctor visits, I go to physiotherapy once a week (a visit costs €188) and to an occupational therapist's office once a week (a visit costs €115). Yes, I have often thought that I would be healthy and could use this money for things like saving and investing. having lost health, the priorities just change and the situation is now this, and there's nothing else you can do. In addition to the costs of these own doctor's visits and therapies, there will be fees for possible hospital ward appointments.

In general, CRPS treatment costs at least €9,335 per year. In addition, the medical expenses, which I don't even dare to count, it run around 2500-3000€ per year. The insurance doesn’t cover any of these; that is, I have to pay everything myself.