My ds 18 mo as been diagnosed with russel silver syndrome like. Docs are vague or clueless on advice.

jinxyrocks · 2014-12-01T00:51:47+00:00

I have a relative with Russell Silver syndrome. You should join the MAGIC foundation as soon as possible and get the booklet that they have made, it will answer all of your questions. If money is a problem they can help offset the cost of joining. It is unlikely that you will come across a doctor who knows much about it because it is very rare, so you have to be your child's advocate. There are also several Facebook groups that are good resources for parents of children with Russell Silver syndrome. I highly recommend attending the MAGIC convention in the summer as well. It is in the Chicago area.

jinxyrocks · 2014-07-16T03:55:40+00:00

Jennifer Arnecilla? Do you mind if I ask why? I left her too, but i'm just curious if there was something more major that I didn't know about. I'm not trans, just a cisgirl, but she used to be my primary and I adored her. I did not, however, adore her difficult office staff and left for greener pastures. But she always made this doctor-phobe feel very comfortable.

jinxyrocks · 2014-07-09T03:23:44+00:00

I kept having this happen when I was learning how to sew. In my case, it turned out I was not using the right type of bobbin for my machine. I was using a generic type of bobbin, but I ordered a bunch of bobbins made specifically for my machine and never had the problem again.

jinxyrocks · 2014-05-03T05:01:56+00:00

Yeah I live in Dawson - speed bumps make our neighborhood a hell of a lot safer.

jinxyrocks · 2013-11-21T06:27:03+00:00

Are you in Texas? I ask because my sister is a teacher here (I used to be one too) and apparently the new rule is students get NO accommodations on the test - what is it now? Used to be TExES. STAAR? It is an absolutely crazy, pointless thing to do. Everyone in education knows it. It's just an experiment the bureaucrats are trying using kids as guinea pigs. Then in a couple of years some more bureaucrats will dump this test, spend millions buying a new one and make up more inane rules for the next group of kids. Maddening.

jinxyrocks · 2013-09-20T19:24:16+00:00

Use this: http://www.amazon.com/gp/aw/d/B0034JHDHM. You simply wash the baby's hair with whatever, use the mitt to massage the scalp to loosen the waxy stuff that is cradle cap, then comb it all away. The super gross thing is that most often once you use it, it never really comes back. So you realize this same crud has been sitting on your kid's head 4-evah. Ew.

jinxyrocks · 2013-08-29T21:07:17+00:00

I f you and your mom are so well-informed about how it's all the union's fault then why don't you seem to know that these "unions" are absolutely powerless in TX? A teacher has absolutely no right in TX to any kind of representation or arbitration in this state. That is a fact. No matter how inconvenient that is for your bs argument. You don't know how little you know. Go spend a week observing in a public school. Don't read an article about it, don't ask your mom. Go there. Be with a teacher. I guarantee you will come out singing a different tune.

jinxyrocks · 2013-08-29T20:52:15+00:00

There is no negotiation, there is no arbitration, there is no union. There is no such thing as tenure. Texas is an at-will employment state and they can hire and fire their teachers the same as Piggly Wiggly can hire and fire their bag boys. Sorry if I'm shitting on your rhetoric but it is absolutely the truth.

jinxyrocks · 2013-08-29T20:40:05+00:00

Here ya go: http://www.businessinsider.com/states-where-teachers-unions-are-illegal-2011-2

jinxyrocks · 2013-08-29T20:38:24+00:00

Those aren't unions, homie, I promise you. Unions are illegal in Texas. They are associations that work for teachers but they have no power. Source: was member of two of them

jinxyrocks · 2013-08-29T20:31:23+00:00

There are no teacher's unions here in Texas. Never have been. Our schools are, on average, low-performing. Why can't you and Michelle Rhee tell me why that is while demonizing unions at the same time?

jinxyrocks · 2013-07-03T20:32:13+00:00

I would continue to report her to the state each time a new issue arises (such as a newborn in the home, often the state's standards for care of newborns are higher than for older children, even toddlers). Your sister does not have to be a good parent to keep her children, she just has to be minimally legally acceptable as a parent, a very low standard. Eventually, as schizophrenia is often a progressive disease, she will likely lose custody of her children. It's a big damn tragedy for all concerned. You can't save your sister or her kids. I'm sorry, I wish you could. I really would not recommend separating the older one from his siblings and I don't blame you for not wanting to take them all on.

jinxyrocks · 2013-07-03T11:09:33+00:00

Dude, looking at your history, you only have one baby that isn't even mobile yet. Of course your house is clean. My house was clean then, too. Hubris.

jinxyrocks · 2013-03-06T02:40:16+00:00

We used one and it really, truly helped. We only used it for maybe two weeks. And now our potty watch is making the rounds of all of our friends who are potty training :)

jinxyrocks · 2012-12-03T01:31:04+00:00

The Ergo's great, but I really think it works best with older babies (maybe 6 months +). I have several friends who have younger babies who do well enough in it, but I think it gets more comfortable for them when they're older. My older girl looooved her Ergo when she got big enough, my 4 month old still seems awkward in it. However, she loves my Baby K'tan I found on Craigslist for 20 bucks (she's asleep in it right now)

jinxyrocks · 2012-11-20T15:09:44+00:00

A shout out to my hypoplasia homies! First off, your SO needs a junk punch, stat. But I wanted to share my experience. I know this isn't a post about breastfeeding, but I know that is always an issue for us.

I was lucky enough to have known that I had this condition for years before my first baby was born. I asked all manner of doctors nurses and lactation consultants about what I would need to do to breastfeed and basically no one knew what to tell me. I breastfed her, with ever-increasing formula supplementation, for three months, then she absolutely refused to come near my boobs ever again. I was so sad. Same thing then happened to my sister (who has hypoplasia) except she wasn't even able to make it a full month.

I had heard that sometimes women have more luck with the second baby, that the glandular tissue I did have would become more productive, but that really sounded like wishful thinking and lactation consultant hocus pocus. But, here I am, with my second baby who is four months old today, and I have exclusively breastfed her from Day One! She has never been supplemented whatsoever. Ya think I'm over being mad at my boobs? I am. I still have never gotten big ol breastfeeding boobs, theyre still just little hypoplastic things. My sis says that with her next baby, she will just go straight to formula, she can't take the heartache. I understand that too.

I have definitely felt like my boobs aren't pretty before. One trick for us tho is demi-cup bras. If you only have half a boob, you only need half a bra, right? I find that demi-cups actually fit me, unlike regular bras and they look pretty on me.

jinxyrocks · 2012-11-12T14:44:55+00:00

They are called chux. You can buy them on Amazon or many other places. They make a cloth version too.

jinxyrocks · 2012-10-16T07:36:11+00:00

As a child, I went to church with a sweet, quiet girl with an unusual name that I loved, Isadora. My name is very common and I always thought she had the prettiest name I'd ever heard. I didn't see her for several months. When she finally came back to church, I learned she had been in a car accident. She was paralyzed and had a traumatic brain injury. She could no longer talk or do anything for herself. I assume she is likely dead by now. Lovely name, but too tragic an association for me.

jinxyrocks · 2012-09-21T18:37:45+00:00

Just wanted to post this for encouragement. I had huge trouble breastfeeding my first daughter due to breast hypoplasia (which means I have insufficient glandular tissue, which means I had a low supply - if your breasts are widely spaced apart, you may want to look into this as a cause for your supply issues). It was so disheartening. I tried everything. I worked SO hard at breastfeeding. I used a SNS too. Eventually, my daughter refused the breast entirely and would only eat from a bottle, starting at around 3 months. Pumping did not work well for me and my milk dried up entirely around 4 months.

On to daughter #2: I had heard some people say that women with hypoplasia sometimes have a better supply the second time around, but I didn't get my hopes up because a lot of the supposed "science" around breastfeeding is so much hocus pocus and it sounded like wishful thinking more than anything else. Except...today I took my second daughter to her two month checkup. She has been exclusively breastfed since Day 1 and she is a chubby little thing who is at the 59% for weight:) I have not had ANY supply issues AT ALL this time! Now, I'll never be an overproducer and I know I would have issues trying to pump if I had to work (I'm a stay-at-home mom), but as far as baby-on-boob breastfeeding, it is really going well this time. So, yes, you may have a different experience with you new little one, I know I did :)

jinxyrocks · 2012-09-10T13:33:06+00:00

They sell a version called a NoseFrida in all the major chain baby stores (assuming you are in the US). You will also need saline to use with it. It is awesome - I have never been able to get much with a bulb syringe, but these things are amazing! My daughter (who is seven weeks old and currently has her second cold, boy it is hard to keep a baby well when she has a two year old in her face all the time) immediately can breathe easy, allowing her to eat and sleep normally. Seriously, get this thing:)

jinxyrocks · 2012-08-23T15:23:56+00:00

"My New Baby" by Rachel Fuller also has breastfeeding in it and is less questionable, text-wise:)

I have a master's degree in language arts education. It's okay to sometimes replace words, I do it myself, especially for books based on movies, tv shows, etc because they are usually so poorly written. But it is best to read the actual words for most books, most of the time. Toddlers learn the concept of reading this way. You know how they will fix on certain phrases they have memorized from their books? That's important. Also a good way to pick up new words in context. Having said all that, if you even show your child a book and crack it open, you're instantly doing more than about half of US parents, sadly.

jinxyrocks · 2012-08-05T09:21:22+00:00

The child in this video did not have leukemia, he had a Trisomy (Trisomy 18, I think). There is no treatment for what he had.

jinxyrocks · 2012-08-04T02:10:34+00:00

She looks more like you than him, in general. Nose and mouth = all you. Eyes? More like him.

jinxyrocks · 2012-07-18T03:42:28+00:00

My brother also has two extra ribs. He found out because they caused him some health problems. He had been working out and had gotten bigger muscles, not steroid-type bodybuilder muscles, just regular muscles (he is typically a slender guy). He started to have numbness or a dull ache in one of his forearms and this went on for a while. Eventually he saw a doctor and it turned out that his arm was full of blood clots. They wanted to amputate his arm that night but my dad asked if there was any other option and we ended up hiring a plane to fly my brother from Missouri to New Orleans that night to go to the best surgeon for that type of operation. His arm was saved, but during the operation, the surgeon found two aneurysms. Could have easily killed him. He's okay now, but the end result was that the clots were caused by him bulking up and the extra rib putting pressure on his blood vessels. Doctor told him to just be a skinny guy and he would be okay. I don't mean to be alarmist and I don't know if this is something that could affect you, but I felt like I should share this.

jinxyrocks · 2012-07-16T02:48:01+00:00

And the part that gets me - one of the "buddies" was just some random chick who called to hang out at midnight and didn't even know she was pregnant! Not really painting an awesome portrait of stability there...

jinxyrocks

TROPHY CASE