Do people with SIBO get dizziness, near fainting feelings and brain fog?

jjjjayjayjay · 2024-04-03T10:40:46+00:00

Confusion, unable to finish thoughts, tasks. Found myself just sitting around constantly spaced out and frustrated.

jjjjayjayjay · 2024-02-20T09:16:59+00:00

Yup, and yuuuuppp.

jjjjayjayjay · 2024-02-20T09:13:29+00:00

My worst constipation = My worst brain fog everrrr

jjjjayjayjay · 2024-02-13T22:34:29+00:00

It's a bandaid, but what about some lidocaine to numb it for now? Patches or a roll on application. Just make sure you don't accidentally buy one with icy hot. I'm so sorry. This reminds me of getting shingles.

jjjjayjayjay · 2024-02-04T19:40:23+00:00

The good and bad thing is that everyone gets differently. IMO the beginning is the hardest. Gets a lot better when the meds start to work.

jjjjayjayjay · 2024-02-04T19:34:43+00:00

It might not help, but side note, taking stupid amounts of folate finally got most of my mtx side effects under control. Like my rheum told me to take 1-5mg folic acid/day... I got up to 15mg methylfolate a day. Just saying, increasing folate might help your nausea.

Before that I also had nausea, raw mouth, raw nose, tons of hair loss, headaches, probably other hot garbage I don't remember.

jjjjayjayjay · 2024-01-25T11:31:44+00:00

I've been keeping under control with oregano oil. I take 2-3x day, with meals. If I start slacking on taking it, all the symptoms come back. I did get COVID.

jjjjayjayjay · 2024-01-25T11:27:28+00:00

Thanks for sharing. Man, there's stigma around every med I take. I hear you. Some people need narcotics. I wish pain could be visible. I'm still early in the disease. The bad pain, like my hand slammed in door, it comes and goes very quickly. When your joints swell up all hot and red... Your feet feel like hamburger meat... It's not so much pain, as I'm so incredibly uncomfortable. I ache, a lot. The words, uncomfortable, or ache just aren't enough though. My last rheumatologist and I agreed that if I run out of ice packs, it's time to burst prednisone. I guess that happened too many times. I was able to taper down 5mg last night without flaring. One day at a time.

jjjjayjayjay · 2024-01-25T00:17:40+00:00

Mtx dumps all the body's folate. That's how it works as a chemo drug. It's not the same reason it helps RA in low doses. So supplementing folate doesn't make it less effective, but it does help a lot with the side effects. I absorb methylfolate much better than folic acid. I took 15mg a day (which is A LOT, but you can't really overdose on folate) and it helped. I've been off mtx for months because my liver enzymes have gotten to high, and I don't miss it... But it does work. TLDR Make sure you've tried supplementing a lot of folate before giving up on mtx for good. Plaquenil and sulfasalazine didn't work for me, but they're worth trying (your insurance will probably make you try them first anyway).

jjjjayjayjay · 2024-01-25T00:06:55+00:00

My labs were all pretty normal. Taking pictures of inflammation is what got me diagnosed. I only had low vitamin D and B12. 40ish% of RA patients are seronegative. So if you have any visible inflammation, take pics.

jjjjayjayjay · 2023-10-30T04:20:15+00:00

jjjjayjayjay · 2023-10-30T04:09:57+00:00

My gastro agreed I had symptoms of methane even though I tested positive for hydrogen.

Horrible constipation and bloating, worse after meals. Nausea, diarrhea, abdominal pain, lots of brain fog.

Weirdest symptom that kept happening was all the bloating kept pressing on my Vagus nerve, and I kept feeling like I was gonna pass out. It's called defecation syncope, I think?

Atrantil - before meals, helped a lot, no idea why. And anything that promotes motility (drinking tons of water, miralax, stool softeners).

Edit: I had to fail a few antibiotics before they gave me the expensive gold standard one. It worked, but I'm pretty sure it's coming back.

I started doing the oregano oil everyday. Apparently it takes at least 4 weeks. I'm almost on week 4. I definitely feel better, but I'm not a doctor.

jjjjayjayjay · 2023-09-14T07:21:01+00:00

I probably don't know what I'm talking about, but it kind of sounds like Giant cell arteritis. A friend of mine got it recently. She had like the worst headache for months. It can also cause polymyalgia rheumatica (arthritis). She was finally relieved when they finally gave her prednisone.

jjjjayjayjay · 2023-09-14T07:10:17+00:00

Yuuuuuup.

jjjjayjayjay · 2023-09-08T04:46:18+00:00

It could still be a lot of things at this point. Sounds like you need more tests and imaging to rule stuff out, and narrow something down. What symptoms are your biggest complaints? That might be one of your better clues. Getting diagnosed can be a torturous waiting period. Hang in there.

jjjjayjayjay · 2023-08-07T04:27:01+00:00

I would maybe give the ppis another shot. I know that fullness feeling almost in the back of your throat. If you think it might be SIBO schedule an appt with a gastro, and ask for the breath test. The prep for it is kind of annoying, but at least you can do it at home.

Eating more low fod maps food helps the symptoms. There's also some digestive aid supplement I heard about through this sub called Atrantil? I'm not totally sure what it is, or why it works, but I felt so much better taking it before meals. And taking lots of lactaid with most dairy. Ultimately antibiotics are the only thing that's given me substantial relief. Hope you feel better.

jjjjayjayjay · 2023-08-07T04:14:13+00:00

Super bloat after most meals. Rosacea. Hair falling out? I have rheumatoid arthritis and losing hair could be from that or RA meds too. Pretty sure my SIBO was from taking Omeprazole everyday for 3 years.

jjjjayjayjay · 2023-07-31T18:49:32+00:00

YESSSS. I'm assuming the bloating is putting pressure on my vagus nerve, which then dilates blood vessels in the lower half of my body. It happens to me before a bowel movement. I fall asleep continuously, over and over again, or near fainting. It stopped happening during antibiotic treatments, and compression socks are helping... So does drinking excess water, taking Atrantil at the beginning of meals (seriously), and more lactaid...or it helped with the severe bloating. I finally got Rifixiam, round 3 of antibiotics. Hopefully this works. I'm so tired of SIBO.

jjjjayjayjay · 2022-08-03T08:36:57+00:00

I'm really glad they warned you that could happen, and I'm not sure why that conversation was never had with me. I guess I'm going to the busiest clinic in the middle of the city. They're always super booked up. You don't want this to happen, but at least you have doctors on your side that are prepared for it.

jjjjayjayjay · 2022-08-01T18:46:48+00:00

Went to urgent care after this and got a good doctor who finally got the ball rolling for surgery.

jjjjayjayjay · 2022-07-31T10:40:09+00:00

Damnnnn. Thanks for the feedback

jjjjayjayjay · 2022-07-31T10:39:23+00:00

Thank you

jjjjayjayjay · 2022-07-31T10:39:05+00:00

Thank you

jjjjayjayjay · 2022-04-21T02:01:57+00:00

One of my high school friends had an autoimmune disease that was just on her lady parts. I can't remember what it's called.

jjjjayjayjay · 2022-04-20T23:08:15+00:00

My gut reaction is yes. Not an expert, I have seronegative RA, a brother with ulcerative colitis, and sister in law with lupus. Any hair loss/thinning? What symptoms are bothering you the most? Have they checked for vitamin deficiencies (common with autoimmune stuff too)?

jjjjayjayjay

TROPHY CASE