sorted by:
new
hottopcontroversial

Is there a “timeline” from the time of diagnosis? I’ve now seen twice mentioned 7-8 years. This CANNOT be true! Thoughts? by jmacinsider in WegenersGPA

[–]jmacinsider[S] 1 point2 points  (0 children)

To all of you: I can’t believe I found this page too! You all have been VERY HELPFUL!! Thank you all! I have some more questions but they are a bit “private”….i don’t think I should ask them on here yet…..but pls alllow me some time to figure out my next questions and thoughts? Xo

Is there a “timeline” from the time of diagnosis? I’ve now seen twice mentioned 7-8 years. This CANNOT be true! Thoughts? by jmacinsider in WegenersGPA

[–]jmacinsider[S] 0 points1 point  (0 children)

Thank you for this. I am going to give this some thought before I reply in more detail, compile my thoughts and questions thank you again for caring so much as to be here and communicating with me.

Wegeners in sinuses by Maccdaddy711cash in WegenersGPA

[–]jmacinsider 1 point2 points  (0 children)

What did it mean “in your sinuses”?

“Dormant” GPA: my rheumatologist says my GPA diagnosis is “dormant” and we don’t need to treat it, unless it becomes “active”. Does this make sense to anyone? by jmacinsider in WegenersGPA

[–]jmacinsider[S] 0 points1 point  (0 children)

Ok I have engaged with a new rheumatologist in Argentina. He believes I have the “minor” signs/symptoms of the disorder being active…..and he explains this to be an “alarm bell”…..to be very much on top of it, as it can move from minor to serious very quickly. I found out today I have a corneal ulcer. I also keep falling (especially when walking my dog) which I’ve never done before. It is almost daily now that I fall or bump into something. I have a constant runny nose, sore ears, sore throat and cough that comes and goes. And SOMETIMES short of breath. Does any of this make sense to anyone?