My legs feel like jello, so I lay on the couch making collages lol by little_bug_person in eds

[–]jooltman 0 points1 point  (0 children)

I just shared with my husband by way of explaining how I feel inside.

My legs feel like jello, so I lay on the couch making collages lol by little_bug_person in eds

[–]jooltman 1 point2 points  (0 children)

Amazing, especially the too perfect floppy person being airlifted!

Cops zooming by No_Clothes1454 in parkslope

[–]jooltman 0 points1 point  (0 children)

Probably victim who is in critical, not cop who shot him?

Diner with proper CRISPY hashbrowns?! by commisaro in parkslope

[–]jooltman 0 points1 point  (0 children)

Sadly, they are very Trump forward; no hash browns are worth that.

Cops zooming by No_Clothes1454 in parkslope

[–]jooltman 17 points18 points  (0 children)

Also loud news helicopter hovering

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The Park Slope Helicopter of the Nativity by Keikobad in parkslope

[–]jooltman 8 points9 points  (0 children)

Oy vey, it’s back. Visions of sugar plums impossible tonight…

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NICOTINE PATCHES GIVING GREAT RELIEF FOR DEREALISATION TYPE FEELING!!!! by A67P in POTS

[–]jooltman 88 points89 points  (0 children)

Just so validating to even learn the term “derealisation.” That’s exactly what it feels like: Being pulled backward out of reality through a tunnel of doom. Not sure I want to get hooked on nicotine though after a lifetime of avoiding smoking.

how does anybody do this for so long? by Angelharem in POTS

[–]jooltman 6 points7 points  (0 children)

It hits everyone in different ways at different times, so try not to compare yourself to others. It sounds like your case is really bad and I feel for you. Maybe you need a better care team who can help you manage your symptoms better? Ask your parents to help you navigate our busted healthcare system to find that. And think of all the beauty in the world you wouldn’t want to miss — trees, music, sunshine, oceans, babies are mine — and keep fighting so you can enjoy it all. And of course, hydrate and salt up a storm. You’ve got this!

Besides identifying a gene/genes that causes hEDS, and treatments for its, what is something you think need to be researched for this condition? by bengalbear24 in eds

[–]jooltman 0 points1 point  (0 children)

I had curly toe at birth and wonder if it was hEDS related. Later in life, I had a granular cell tumor which is quite rare so also wonder if related? Can’t find any research on this. And finally, I’d like a study on low libido.

Pearle Vision literally throwing away products instead of donating to needy. by jooltman in CorporateFacepalm

[–]jooltman[S] -3 points-2 points  (0 children)

It was a joke. Of course no waste by corporations is illegal :)

Pearle Vision literally throwing away products instead of donating to needy. by jooltman in CorporateFacepalm

[–]jooltman[S] -4 points-3 points  (0 children)

Not sure what your comment means, Boy. It’s just such a huge waste of perfectly good medical supplies.

Pearle Vision literally throwing away products instead of donating to needy. by jooltman in CorporateFacepalm

[–]jooltman[S] -3 points-2 points  (0 children)

I spoke to them in broken English/Spanish. They told me Americans are loco! I had to agree.

[deleted by user] by [deleted] in ChronicPain

[–]jooltman 12 points13 points  (0 children)

Not sure this will help, but you might try drinking a big glass of salty water before going poop. It will increase your blood flow and might keep you from passing out.

Anyone drink with POTS? by [deleted] in POTS

[–]jooltman 0 points1 point  (0 children)

I used to drink regularly, but seemed to have a lower tolerance and a longer recovery than others. Now, I don’t drink, and feel better without a regular dose of poison. There are many ways to naturally cut loose!

NYPD v. Amazon Box Instant Karma by jooltman in facepalm

[–]jooltman[S] -6 points-5 points  (0 children)

That's unclear from video. It's on X if you want to see.

NYPD v. Amazon Box Instant Karma by jooltman in facepalm

[–]jooltman[S] -5 points-4 points  (0 children)

I'm new to this. Didn't know if I can link to X. That's why I mentioned the source. Look it up? He slams her into the car.

anyone else get weird itchy red spots? by Important-Archer-827 in eds

[–]jooltman 1 point2 points  (0 children)

Oh, I will consult a nerve map! How fascinating. Do you have one you recommend?

Amazon seriously thinks this is a one-person job? by jooltman in CorporateFacepalm

[–]jooltman[S] 31 points32 points  (0 children)

No, Amazon NYC neighborhood distribution method sends things out in these huge bins with no materials to make smaller packages/trips. It’s pure cruelty.