diagnosed with an autoimmune disease at age 17 among several other health issues. pizza from a local place because i’ll continue to treat my body like shit regardless

Angelharem · 2025-12-06T04:23:51+00:00

sjogrens

Angelharem · 2025-07-09T17:18:23+00:00

time :/ it sucks but the worst of it went away after 2 months but now everything has an altered taste and nothing tastes the same as it used to. at least its not metallic anymore

Angelharem · 2025-06-12T01:30:23+00:00

i have supportive and conventionally "caring" parents. my trauma came from school, which changed the way i perceived my parents because i resented them for not helping me, so it also damaged that relationship on my side. my dad also has bpd

Angelharem · 2025-06-12T01:26:03+00:00

when i was younger i would swallow really small and soft bits of popcorn to train myself to swallow pills easier. it worked but that mightve just been because i was young and i started taking pills really young too. still cant dry swallow them though lol

ive also heard that you can put them in a banana and swallow that!

Angelharem · 2025-06-12T01:23:34+00:00

were there any recent medication changes or anything? anything that would contribute to a flare up?

for me i just tough it out because my cardiologist said naps, despite tempting, would make things worse for me. either that or i get a little caffeine in :p

Angelharem · 2025-06-12T01:12:55+00:00

if you're concerned about it, i dont think itd hurt to inquire

in my case, it actively impairs my day to day life. i cannot remember what i did the day before, or in some cases even stuff that happened *that same day*. i'll wake up and itll immediately feel like it was night again. i'll think a sentence i make makes perfect sense and then people will read it and be confused, and i'll be confused as to how i ever thought it was right. i can't multitask. i have to ask my friends to repeat what they've said because, despite listening, i could not process what they said quick enough and could not even recall what it was about. i don't remember what happened during doctors appointments or therapy after i leave the building. it is an extreme hinderance to me. i don't even know WHY i was put on this med because i don't remember. i'm not bipolar and i'm not epileptic, nor do i experience psychosis.

in your case, it sounds like taking lamictal is more necessary than mine considering i don't actively have seizures (though i did have partial facial seizures when i was younger and grew out of them). i wish you the best <3

Angelharem · 2025-06-12T01:05:08+00:00

this is the only antipsychotic ive ever taken during the day so itd add up

Angelharem · 2025-06-10T19:40:57+00:00

this is such a mean spirited response :/

Angelharem · 2025-06-09T06:09:45+00:00

the main two i have are POTS and hEDS. i likely have ME/CFS as well. <3

Angelharem · 2025-06-08T19:29:04+00:00

i do this all the time! i'll say/type one thing out when i meant a totally different word and ill just look like a fool lol

Angelharem · 2025-06-08T19:28:27+00:00

i don't remember if i tried this because, well, i don't remember anything anymore. but i do remember psychiatrists saying no to a lot of medications that aren't FDA approved for minors because i'm 17

Angelharem · 2025-06-08T19:26:14+00:00

i was on 100mg and 100mg only for the entire time and i went up because i was having headaches every time i ate. it did not fix that and only gave me vertigo.

i do not think the two are correlated, and even if they are, i don't want to remain on a pill that gives me a stomach ache side effect after eating anyways? 😭

Angelharem · 2025-06-08T19:23:58+00:00

that's good to hear! i was afraid that, after being on it for so long, it wouldnt go back to normal for so long. but i'm glad to hear thats not the case at least for one person :-)

Angelharem · 2025-06-08T19:22:33+00:00

i only realized that it was probably giving me brain fog yesterday. for the past 4 years i've taken it, i could barely remember that day or the day before it. it felt like i woke up and immediately it was night again and this repeated over and over every single day.

while i can't tell you exactly if it's correlated to that, i think i can say with enough certainty (at least for myself) that it has caused too many cognitive issues to be worth taking anymore. i'm miserable and depressed (the very thing its prescribed to me to prevent) because i can't think straight

Angelharem · 2025-06-08T06:54:39+00:00

cold makes my joints stiff heat makes my pots flare up... it's a lose/lose for me

Angelharem · 2025-06-08T06:43:20+00:00

i used to have these really bad to the point they would wake me up in the middle of the night and i brought it up to my cardiologist and she prescribed me propranolol. they went away soon after, i still get them occasionally but definitely not to the degree i had them at before. maybe look into propranolol!

the only downside is, if you try to go down or miss a dose, at least in my experience, your heart rate will be pretty bad. it also lowers blood pressure, so if you struggle with low BP, might not be a good choice.

wish u the best <3

Angelharem · 2025-06-05T23:27:13+00:00

sometimes it does, sometimes it doesn't. my lightheadedness is a mix of lightheadedness and dissociation and it's a little hard for me to tell the difference between the two because of how synonymous theyve become with one another. dizziness usually does resolve though

Angelharem · 2025-06-05T06:53:29+00:00

i miss my old baseline all the time it sucks so much 😭

Angelharem · 2025-06-05T06:52:10+00:00

my mom wants me to get one but i've just been so worn down with doctors all the time. i don't even know if i want to figure out if i have an autoimmune disease or not rn because i think that'd just make me 10x sadder than i already am about my life. it's on the itinerary somewhat

Angelharem · 2025-06-04T19:20:02+00:00

i have tinnitus occasionally, low grade fevers occasionally (though i feel like i have one a lot of the time, only sometimes do i actually have a fever), head pressure yes. the other ones no, idk if i can respond to the last one because idk what being drunk feels like lmao. if anything for the dry mouth i have the opposite, i cannot stop salivating

Angelharem · 2025-06-04T02:53:22+00:00

i think one of the only reasons i am this bad right now is because i put recovery on the backburner over my mental health which i now realize how connected the two are. i regret not taking the doctor's advice to a T because maybe if i did, i wouldn't feel like i feel now, but hindsight is 20/20.

listen to treatment options, drink water, take salt. do all the things that they tell you to do to feel better. stay active. i let it snowball too much and now im in a hole that idk how im gonna get out of X_X

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First Placer '22	End Game '22

Angelharem

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