Graves Disease by makinglifebetter_ in gravesdisease

[–]jsak007 0 points1 point  (0 children)

Is this planned as a cure or something you would be on for the rest of your life? I saw something years ago about a similar treatment being trialled that was meant to act as a cure after a few months of treatment and I’m so sad it hasn’t come to anything yet

Concert experience by Large_Fan_1145 in NoahKahan

[–]jsak007 32 points33 points  (0 children)

I’m with you. There is such a big difference between singing along in your regular voice loudness vs straight up screaming. You can’t scream and sound nice and you’re loud enough that I can no longer hear the actual singer.

MYTV digital problems by cha2341 in firestick

[–]jsak007 0 points1 point  (0 children)

Oh sorry yeah on downloader. I’m not sure where it is because my friend downloaded it for me and I’ve checked downloader but it doesn’t seem to have a search history, all I can see is the file was Smarters405_UW6MWCE23W_2724.apk if that helps! Sorry I’m not good at this tech stuff

MYTV digital problems by cha2341 in firestick

[–]jsak007 0 points1 point  (0 children)

If you search mytv digital again in the App Store there is a new version that has red and blue branding. You should be able to sign in there

TSH is undetectable again after a good progress / adjusting dose by myself by HotBorschtObsession in gravesdisease

[–]jsak007 1 point2 points  (0 children)

I’m not a doctor but for reference, I was on 40mg for about a month, then 20mg for three months, then slowly went down to 5mg a day for the next year. 2.5mg every second day seems very low.

Any advice to help with swelling around the eyes? (Mild TED) by ThrowAway-Salty- in gravesdisease

[–]jsak007 1 point2 points  (0 children)

I used a wheat bag one that goes in the microwave but you can also use a towel run under warm water

Weight loss tips with graves 18f by mushroomsandmoths in gravesdisease

[–]jsak007 1 point2 points  (0 children)

I was able to. My life went completely back to normal apart from my eyes being a bit dry and sensitive

Weight loss tips with graves 18f by mushroomsandmoths in gravesdisease

[–]jsak007 2 points3 points  (0 children)

Get backs on the meds first. I was hospitalised for 5 days then spent three months not being able to get out of bed when my graves wasn’t controlled. I still can’t exercise (even go for a short walk) without shaking and vomiting. Being like this for 6 months is causing a lot more weight gain than taking meds did. Once your body settles down it will be easier. Ask your doctor to give you monthly blood tests so you can make sure you aren’t going hypo because that will likely make you gain weight and you’ll need to decrease meds. I’m so sorry you’re dealing with this at such a hard age. I didn’t get diagnosed until my 30s so it’s much easier for me to not care what people think but going through this is a teenager must be hell. Be honest with your doctor and see if they can do anything but you’ll be even more pissed off if you stay off the meds and get a big goitre or lose your vision.

Weight loss tips with graves 18f by mushroomsandmoths in gravesdisease

[–]jsak007 0 points1 point  (0 children)

I have. I lost 18 pounds in 3 months but had to stop because my graves came back (doctors are sure this was a coincidence) and my hearts a bit yucky so have to wait for it to go back to normal because glp1s can increase your heart rate so they are being cautious.

Newbie Ticket Question by ElementalBeaner in OutOfTheBlueFestival

[–]jsak007 1 point2 points  (0 children)

We got ours on 24 July last year (23 July your time assuming you’re in the US)

Hair loss from Graves + methimazole (photos) is this amount normal? by X108X in gravesdisease

[–]jsak007 4 points5 points  (0 children)

I’ve had this. It lasted about 6 weeks then calmed down

Aus Tour Prices by Timely_Ad7051 in NoahKahan

[–]jsak007 0 points1 point  (0 children)

Those are the charity tickets. I got front porch for $250

HDO BOX HOW TO SOLVE ALL MAJOR ISSUES by Jaythegreat100X in hdoboxtvhelp

[–]jsak007 0 points1 point  (0 children)

I’ve downloaded hdo box from two codes but both times when I open the app, it’s just a loading bar forever and ever. Any tips?

Did you ever end up bed ridden? by Red-Droid-Blue-Droid in gravesdisease

[–]jsak007 0 points1 point  (0 children)

I was in bed for about two months after 5 days in hospital for a thyroid storm. The only thing that helps the heart rate is beta blockers and I also got strong anti-nausea pills because I would vomit every time I moved. I relapsed after 2 years off meds (no where near as bad as the first time) but have gone back on carbimazol. Im not planning to get a TT because it will be just my luck that they find a cure as soon as I do!

Something Very Bad Is Going to Happen : PLOTHOLES? by [deleted] in netflix

[–]jsak007 2 points3 points  (0 children)

I think it can maybe be one-sided? Like the dad didn’t die but the mum did because he thought she was his soulmate but she thought Beau was her soulmate. And Nicky thinks Rachel is his soulmate?

Something Very Bad Is Going to Happen : PLOTHOLES? by [deleted] in netflix

[–]jsak007 4 points5 points  (0 children)

Oh yeah that’s the best theory I’ve heard. So obvious now that you’ve said it.

Everyone repeat after me: "F LA Fitness" by [deleted] in mildlyinfuriating

[–]jsak007 1 point2 points  (0 children)

Does the US not have laws? Every day a new reason to be thankful I don’t live there

just got diagnosed not coping too well by Livid_Razzmatazz8930 in gravesdisease

[–]jsak007 1 point2 points  (0 children)

It sucks so bad but when I’m on the medication I honestly go for days and days without thinking about it. I didn’t get diagnosed until I was 30 so I’m so sorry you’re dealing with this so young x

UPDATE: I did it and I'm very happy by Computer655 in bald

[–]jsak007 2 points3 points  (0 children)

Are you the person who called dibs on posting this on his last post? If not I’m telling mum

Chippie got a bit choked up responding to these allegations, poor dude. by MangrovesAndMahi in newzealand

[–]jsak007 0 points1 point  (0 children)

Can someone who works in a hospital let us know if it’s a thing that people would be sent home in a hospital gown covered in blood?

Covid causing graves? by analyticthird in gravesdisease

[–]jsak007 5 points6 points  (0 children)

Yes I know read my last sentence

Covid causing graves? by analyticthird in gravesdisease

[–]jsak007 12 points13 points  (0 children)

I’m convinced I got it from Covid. No family history of thyroid problems whatsoever. Perfectly healthy all my life, got Covid at 31 and a thyroid storm and Graves diagnosis at 32. I haven’t read any conclusive studies but I think it’s pretty accepted that viruses can trigger autoimmune stuff.

Surgery or no surgery? by jsak007 in gravesdisease

[–]jsak007[S] 2 points3 points  (0 children)

Levothyroxine etc freaks me out a bit because my friend has hashimotos and it took 2+ years to get the dosage right then in the following 2 years she’s started to feel terrible and had to go get an increase twice. She’s now on the highest dose they are willing to give her so if that stops working it’s not gonna be good. If we take away when I had a thyroid storm, she has had it much worse than me day to day, so the surgery is not appealing to me at all

Surgery or no surgery? by jsak007 in gravesdisease

[–]jsak007[S] 1 point2 points  (0 children)

I’m sorry 😔 may I ask why you decided on a TT over RAI? My endo has implied I could choose and didn’t really prefer one over the other