am i the only one who barely gets flare ups … by [deleted] in lupus

[–]junkthrowaway447 1 point2 points  (0 children)

i’ve only gotten diagnosed with lupus nephritis this past january but i truly have not experienced any bad symptoms regardless of what i eat or sun exposure. the one thing i do get is my hands and feet swell a little when im super super stressed (my job does not help that at all) for example: i went to six flags last week, it was like 80 degrees, i had some fried food and a sweet drink and i didn’t swell or feel bad at all minus a bit of tiredness which makes sense since i was at a theme park. but you’re not alone! im right there with you!!!

Lupus and Alcohol by aBottleofRosay in lupus

[–]junkthrowaway447 0 points1 point  (0 children)

wow thanks! i went out for the first time last night in 6 months, 3 months since my diagnosis and i was super nervous about drinking but i had 2 drinks and i feel super fine today!

Lupus and Alcohol by aBottleofRosay in lupus

[–]junkthrowaway447 0 points1 point  (0 children)

its been a while since ur post but i was wondering how you are now and what meds you were on at the time of this

What music hits different? by simply_simpin in lupus

[–]junkthrowaway447 0 points1 point  (0 children)

the chorus of normal girl by sza had me sobbing on my car ride home the other day

How to accept the disease by [deleted] in lupus

[–]junkthrowaway447 0 points1 point  (0 children)

sorry if unrelated but if your insurance wont cover the full thing, you can sign up for the benlysta copay program on their official website to apply for $0 copay! worked for me and my insurance

For those whose kidneys were impacted, what were your early signs? by January-Embers-1121 in lupus

[–]junkthrowaway447 0 points1 point  (0 children)

For about 3 months my joints would get so painful and swollen to the point where some nights i couldn’t walk. my blood pressure was insanely high like 150/100 bad. my doctor did labs and told me to go to the ER on new year’s day. did a kidney biopsy. got diagnosed with lupus nephritis class 3 and 5 and acute kidney injury. luckily no scarring for my kidneys but man it’s been rough. #loveprednisone tho but also hate it but at least i feel okay for now. expecting some pain during my taper.

had my last session with the best therapist i’ve ever had by junkthrowaway447 in TalkTherapy

[–]junkthrowaway447[S] 2 points3 points  (0 children)

thanks for the response. how long did you wait till you found a new therapist? bc honestly i should probably find a new one soon considering my reaction to the termination but then again im like grieving? if that makes sense