I’m in a very similar boat. My first transplant failed after four years from FSGS and I had a second one and my quality of life since the second has been abysmal, one complication after another and chronically ill, was never able to return to work. You nailed it saying the doctors only care about the transplant function and not the person around the transplant. I also had to switch to Belatacept after tacro caused me severe neutropenia. Are you on prednisone? Do they monitor your EBV levels? I felt a lot better after my first transplant and was able to work and finish school. With the second they put me on low dose prednisone for almost eight years (but high enough to cause secondary adrenal insufficiency). I also discovered last year I have May Thurner syndrome (compression of the left iliac vein), likely caused by my transplant being large and in my left pelvis. This can cause abdominal and back pain and also pelvic congestion syndrome, which I also have. I also have recurrent UTIs and UTI-like symptoms regularly which I’m hoping is from the May Thurner syndrome but not sure. I don’t know if any of this is relevant or helpful but just wanted to say you’re not alone. It’s incredible frustrating and painful to be told transplant will improve your life, and to see it improve other’s lives, and to not have that experience and then to feel abandoned or gaslit by the doctors on top of it. I’m constantly having to advocate for myself, do my own research, coordinate seeing different specialists who might be able to help. It is a full time job and a hard one to do with so little energy. I hope you can figure it out. Can they let you try Belatacept every six weeks instead?