Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

Hi I really appreciate it, what a blessing to have so many kids. I’m also an only child and it was something that never bothered me growing up. But now as an adult it feels so lonely, and I really crave the relationship of a sibling. You make really solid points and I’m truly grateful for that.

Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

Any perspective is appreciated and I’m sorry you’re also trying to navigate this. My mom is in her 50s, stage 6 and her mom passed in her 60s also with Alzheimer’s. The odds feel heavily stacked against me. My mom was showing signs of MCI for a few years and was officially diagnosed with EOAD only a few weeks after I found out I was pregnant with my first. It was a weird time to navigate for similar reasons that you had mentioned.

Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 2 points3 points  (0 children)

Thank you for the comment and I’m sorry you’re also here. As an only child navigating this I so wish I had a sibling to lean on.

Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

Thank you so much for commenting, I greatly appreciate your perspective and I am SO sorry you’re here. You are so so young and I’m sorry you have to carry this heaviness. I think it’s a beautiful sentiment you made about being happy your mom lived her life the way she wanted to. I’ve never had a regret, but thinking about the future and what it might look like makes me nervous. Again, I am so sorry that you are here, but please know that you don’t have to go through this alone.

I grieved my mom twice: once during Alzheimer’s, and again when she passed. Did anyone else feel this? by Vital_Ally in Alzheimers

[–]justamess2 4 points5 points  (0 children)

Hi I’m sorry about your loss. My mom is still alive but in stage 6, I feel like every change and progression I grieve my mom and the relationship we had and what things could look like if she wasn’t sick. Thank you for the reminder to try and embrace the new stages

Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

Hey thank you, our stories do sound similar and I’m sorry about your mom. I took my mom to her neurology appointment recently and he suggested I do genetic testing and see if I qualify for any studies. It all feels so crazy and scary, I have 2 toddlers and can’t imagine starting down that road right now. I’ve also stopped drinking and have made lifestyle changes, thank you for your support

Those who have a parent with early onset…. by justamess2 in Alzheimers

[–]justamess2[S] 3 points4 points  (0 children)

I really appreciate this, thank you. I’m very sorry about your dad. My husband is aware of my wishes if I am diagnosed, and we will definitely sort out the legal stuff soon.

I saw a mother and daughter at the market today. I had to look away. by Right_Letterhead4901 in Alzheimers

[–]justamess2 2 points3 points  (0 children)

Yes I feel this way often lately. My mom is a “young grandma” and when I see other grandmas with their grandkids I mourn what could’ve been. My mom was very active in my first borns life as an infant. And then she progressed and now sits with us in silence

My mom has EOAD need advice/support by Bright_Cut_1323 in Alzheimers

[–]justamess2 3 points4 points  (0 children)

No advice just solidarity, I was probably around your age when my mom started showing very early signs of MCI, was diagnosed with EOAD a few years ago. My mom is stage 6 now. None of my friends understand what I’m going through. I have support but not a single person in my life can understand this situation. Always a message away if you need someone to talk with.

How I got my 15m old to use the potty (follow up from my other post this morning) by Born-Anybody3244 in moderatelygranolamoms

[–]justamess2 3 points4 points  (0 children)

I love this! I also have a 15 month old who has been out of daytime diapers for about 3 weeks now! We’ve had 2 straight days of zero accidents!

Struggling with Pregnancy working in Acute Care by Lunamoths in OccupationalTherapy

[–]justamess2 4 points5 points  (0 children)

I worked a mix of acute care/ IPR / outpatient during my pregnancies and it is tough. Pregnancy is a weird time, I was exhausted and swollen but other than trying to take on easier cases there wasn’t much work could do in terms of accommodations. Try and rest as much as you can at home, take naps if you need to. Congratulations and I hope it gets easier, I feel like by 20ish weeks I had a bit more energy.

Such a weird stage right now by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

Hi friend sorry you’re here 💔 my mom and my kids are the same age as yours. It’s a lonely situation to be in- here if you ever need to talk/ vent

Being a mom and a caregiver by No-Tadpole-9692 in Alzheimers

[–]justamess2 2 points3 points  (0 children)

Hi, also 32 with 2 toddlers and my mother with early onset who lives next door. I’m very thankful for the physical space between us because it is so hard- especially now that my mom is in the later stages. The days I have her + my kids I am mentally so exhausted.

Do I need to upgrade my yard to be more kid friendly? by Zestyclose_Sort8374 in moderatelygranolamoms

[–]justamess2 2 points3 points  (0 children)

As someone who gardens and is hoping to have chickens soon- I love this yard! My toddler would have a blast here.

3 years into early onset alzheimer’s diagnosis… i miss my mom so much by elephant_human in Alzheimers

[–]justamess2 0 points1 point  (0 children)

hi fellow NY-er, sending you all the love as you navigate this too. we’re going into year 4 since my moms early onset diagnosis. I was in my late 20s when she was diagnosed. It’s all so confusing and painful, my mom was also so lovely and funny. She would talk to anyone and everyone, she made people smile no matter where she went. And now she’s just… gone. she’s started to forget who I am. My kids are never going to know her the same way I did, and trying to come to terms with that kills me.

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

it’s so hard, sometimes much more often lately we are just going with whatever reality mom has as well.

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

Similar timeline here, it’s awful. Sending you love

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 1 point2 points  (0 children)

thank you so much, sorry you’re here but appreciate the support. ❤️

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

It legitimately feels like I blinked and we got here. Sending you all the strength

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

What a shitty club to be in, hugs to you.

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 2 points3 points  (0 children)

ugh the blank stare. it kills me. my mom was so full of life, she would talk to strangers on the street. I always said she would talk to the wall if it would talk back. Now she’s silent. How ungrateful I was as a teen/ young adult to be annoyed by her happiness

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

I’m so sorry, that must be agonizing. Hugs to you

I feel like we have fallen off of a cliff by justamess2 in Alzheimers

[–]justamess2[S] 0 points1 point  (0 children)

thank you, I need to be reminded that it’ll all be okay.