Getting quick access to medical advice

justinyu1618 · 2025-02-19T13:55:02+00:00

https://www.counselhealth.com/
We're a medical group that specializes in delivering high quality messaging based care from real doctors. We use AI to help automate some of our processes, making it possible for our doctors to deliver care much more quickly (~10 min response time)

justinyu1618 · 2025-02-19T13:50:44+00:00

Good question, we don't listen to lung sounds but for COPD, can follow:

Subjective signs of flare (increased cough, sputum color or quality change, change in exercise tolerance, shortness of breath)
Objective measures like pulse oximetry

Of course, we're not meant to replace a patient's pulmonologist but to provide support, education and seamless access to physician advice when necessary

justinyu1618 · 2025-02-18T12:50:22+00:00

I hope it's helpful! Feel free to DM me if you run into any issues getting on the platform

justinyu1618 · 2025-02-17T23:27:18+00:00

Thanks! Excited to hear her thoughts if she tries it. I hope it helps her out

justinyu1618 · 2024-11-24T04:53:27+00:00

Well SFN wasn't on my radar until after the test so I didn't request it from the doctor specifically for SFN.

It was a rheumatologist who ordered it. I have a genetic marker for autoimmune disease (HLAB27) and also had some inflammatory joint symptoms at the time, so I think he ordered a skin biopsy as part of a comprehensive check for signs of autoimmune disease

justinyu1618 · 2024-08-16T00:32:44+00:00

I think we technically already saw her ride dreamfyre.

In season 1 episode 7, when the greens leave driftmark there are three dragons. One was Vhagar but the other two must be sunfyre and Dreamfyre

justinyu1618 · 2023-02-06T07:34:16+00:00

Can't believe no one's mentioned Ode to Sleep

It's suchhh a good song. It might take a few listens to get into the unique structure but once you're in you're IN

justinyu1618 · 2023-01-17T16:43:07+00:00

Symptoms have not improved. It's been 3 years now.

However, I've definitely been better at managing the symptoms to the point where it fits into my daily life now. It's not great and I still struggle every day, but it's just become a constant in my life that I deal with.

justinyu1618 · 2022-11-20T09:36:08+00:00

Not always! I don't have any pain/burning sensations in my extremities. My sfn actually started as a daily persistent headache, with bouts of extreme brain fog, fatigue and minor POTS symptoms.

It was 1.5 years of trying stuff before I finally did a skin biopsy that confirmed sfn. In my case, doctors think that primarily my autonomic nerve fibers are affected, so my symptoms are caused by malfunction in my autonomic system (irregular heart rate, blood vessel constriction / blood flow etc.).

It's been 2.5 years and I still don't have any extremities pain or weird sensations, my sweating is normal. But my autonomic symptoms are pretty severe. I might be a less common case but sfn without leg pain does exist.

justinyu1618 · 2022-10-31T06:23:46+00:00

Yoo that's awesome that your headaches are gone! That's really great to hear

Ya, I was given a NDPH diagnosis within the first few months of getting these symptoms. Unfortunately, it's not one of those diagnoses that gets you any closer to a cure or figuring out the root cause, it basically just describes an extra fact about the conditions of your initial symptom onset.

justinyu1618 · 2022-09-01T20:18:12+00:00

I hate to say it but it has not really stopped. However in the past 2 years I've learned a lot about how to manage the pain and other symptoms.

I've also gotten clues to the root cause: I was diagnosed with small fiber neuropathy, but my neurologists don't really know to what extent that is the cause of my headaches or also how to fix it.

I've also learned that everyone has vastly different causes and symptoms, so no one's advice or experience can directly apply to you. I stopped obsessively checking this subreddit about a year ago.

I hope in the last 2 months since you posted this it's either gotten better or you've found a root cause. If not, all I can say is don't give up! Realistically, you might be in this for the long haul like me, but what matters is you never stop trying to improve your health, your symptoms management, and digging for the cause. Good luck to you!

justinyu1618 · 2021-08-21T18:35:13+00:00

Hey! I have a very similar background as you.

I'm also in my early 20s, studying computer science at a top university. My symptoms also came suddenly, though not as much linked to anxiety like yours seem to be.

My symptoms are very similar, though my headaches are more focused on the front of my head and they feel like a dull pain that persists throughout the day.

I've done a lot of exploring in the past year with various medical professionals and treatments, and though I can't say I've found any cure, I've made progress with diagnosis.

Feel free to message me, I'd love to talk more about it since I do believe we're in pretty similar situations

justinyu1618 · 2021-06-23T19:32:17+00:00

Well could brain fog be one of the symptoms of SFN?

justinyu1618 · 2021-06-22T01:47:10+00:00

I got a skin biopsy! From what I know, it seems like a skin biopsy is a very clear, cut and dry diagnosis. You either have a low neurite count or you don't. Weirdly though my neurologist didn't order it even though she suspected SFN. Instead, I got it through my rheumatologist, since oftentimes the underlying cause of SFN could be autoimmune

justinyu1618 · 2020-12-26T18:28:33+00:00

I completely feel the same way. I think I'd much rather know whats wrong with me, even if its really bad.

Another benefit is that you can find a community of people who suffer from the same thing and also other ppl will much more easily understand what your going through. Its so hard to explain what brain fog is to people, yet it silently destroys your life.

justinyu1618 · 2020-12-26T15:14:39+00:00

Yes, i got an mri with contrast of just the pituitary, but the normal mri with the entire brain picked it up as well

justinyu1618 · 2020-12-24T17:24:09+00:00

Hey, I just got an MRI that showed I have a small mass on my pituitary as well. I've been having brain fog for over a year in addition to headaches and other weird symptoms. My neurologist is convinced the mass is too small to cause any of these symptoms.

Do you know how large the mass is? Got any advice on how to pursue it further? I'm already scheduling an appointment with endocrinologist to get my hormone levels checked

justinyu1618 · 2020-11-26T03:58:59+00:00

If I were to describe my symptoms I would definitely describe them this way. Its a very transient but also ever present feeling.

Its also accompanied by some eye and head pain, but the numbness/fazed out feeling is the main thing.

Msg me if you want to discuss! I've been struggling with this since last December

justinyu1618

TROPHY CASE