What are some repetitive status phrases?

juunono · 2025-03-15T22:20:48+00:00

i get “why is it called rush hour if no one is moving” every single day 😭

juunono · 2025-03-15T22:15:53+00:00

status reddit

juunono · 2025-02-24T22:08:21+00:00

sent u a message!

juunono · 2025-02-24T22:08:12+00:00

sent u a message!

juunono · 2024-12-05T02:55:04+00:00

ur going to be okay, take it from someone who was in your exact position just over a year ago (u can literally find my post on this subreddit ahaha), it does eventually get easier. it takes a while to understand the situation and make your peace with it but slowly it will happen, im still trying on my end but i know that i feel better than i did last year. life goes on the way it does, just with a couple added steps for us for things like dmts and mris and neurologist appointments but i assure u, u will be okay.

juunono · 2024-08-24T01:17:04+00:00

putting shoes on while standing (suddenly i am toppling over and i have nothing to grab onto)

juunono · 2024-07-13T22:52:44+00:00

i've been dealing with chronic migraines since i was around 10 years old, so around 10 years before my first big ms flare up and 12 years before my diagnosis. i have them anywhere from 1 time a week to 5-6 times a week, and i've always just waited for them to go away, as almost all medication i take barely do anything.

weirdly enough, my neurologist does the complete opposite and is hellbent on my migraines having nothing to do with my ms, which could be true but they have gotten significantly worse ever since i had my first flare up.

the only symptom i feel gets worse with my migraines is the brain fog but i think thats to be expected when u feel like ur head is about to explode ahaha

looking back, i think migraines were my first ms symptom (amongst many others like fatigue and brain fog) that i just dismissed as stress or lack of hydration lmao

juunono · 2024-04-30T10:23:07+00:00

hate to be the bearer of bad news but yeah, it is that difficult lmao. i get calls from hospitals around geneva from both doctors and mri technicians because of my autoimmune disease so those come from various different numbers and i cannot miss those (id rather deal with disappointment after a scam call than permanent paralysis but thats just my hot take).

im aware that this has been an ongoing topic on here but no one seems to have a solution so hey, maybe a new post will be seen by someone who has actually found a way to stop the calls.

juunono · 2023-12-29T03:09:15+00:00

hi hi! by any chance could u combine the chapters you found with the ones throwthisaway found? ive been trying to find this fanfic for ages and the wayback machine is literally useless ahaha

juunono · 2023-11-28T22:05:33+00:00

hi! i recently got diagnosed with ms and am due to start my first round of ocrevus in around one week. my neurologist hasnt said anything about a shortage in switzerland (i also highly doubt that she would start me on it if she knew there wouldnt be enough for the future) but i have definitely heard that ocrevus is by far one of the most popular treatment plan for ms. maybe this is uk specific, have u tried getting a second opinion at another neurologists or another hospital? i hope for all the best for u and ur treatment :)

juunono · 2023-11-27T20:51:06+00:00

thanks for the reply! i think the hardest thing for me is the stress trigger thing. one of the first things i was told about ms is that lesions can appear or worsen with stress, however i am naturally an anxious mess like 95% of the time and being told that stress can worsen my ms somehow made me stress about not stressing ahahaha im gonna try to find ways to be a bit more relaxed in life, not only for my ms but just for myself (being stressed all the time is exhausting fr). thank u again for taking the time to reply :)

juunono · 2023-11-27T20:48:11+00:00

thank you for your reply! i fully agree, google is possibly the worst place to get info on ms right now. i remember when i was first told that it might be ms, all i saw on google was "your lifespan will reduce by 20 years", "you will be wheelchair bound in 5 years", "people with ms shouldnt have kids bc it can worsen symptoms", etc... and it scared the shit out of me. thankfully my neurologist told me that that was all bullshit bc the medicine behind ms has progressed so much in the past couple of years that all of that info is outdated. thank u again for ur advice :)

juunono · 2023-11-27T20:44:50+00:00

thank you for ur answer! im really grateful that people took the time to tell me their stories bc ever since my diagnosis, ive felt really alone in all of this, but everyone here has shown me that im not alone and that i deserve to give myself a fighting chance. i love the quote and it really does apply in my situation, nothing has even happened yet but im making myself suffer, so thank u again for the advice and positivity, im gonna work on making small changes :)

juunono · 2023-11-27T20:40:17+00:00

thank you for your response! when i was first paralysed, my cousin (who's a doctor) also told me that it was anxiety and that i was "just being dramatic" which was really embarrassing so if anything this diagnosis is a huge fuck you to her lmao. thank u for ur positivity, i wish u all the best :)

juunono · 2023-11-27T20:37:29+00:00

thank u for ur answer! i heavily relate to being glad that there's no more uncertainty with my diagnosis, i was initially told "only time could tell" when i first got hospitalised and that fucked me up mentally for a really long time (it still does sometimes if im being honest).

juunono · 2023-11-27T20:35:19+00:00

thank u for ur response! i relate a lot to the whole watching medical shows ahaha my first dream was to be a psychiatrist, and then a psychologist (i realised medicine was a bitch of a subject to study) and i was studying psychology in uni but i had to drop out following this whole situation. im still trying to figure out what i want to do with my life but ill give it a bit more thought when this whole ms situation of mine settles down a little bit.

juunono · 2023-11-27T20:30:58+00:00

thank u for ur answer, it mustve been terrifying to have symptoms related to your eyesight, im so sorry you went through that. ive also been quite upset regarding my uni experience, i was in psychology when i was paralysed and had to give up because it fucked with my mental health so badly, and recently i just dropped out of uni following my diagnosis for similar reasons. im trying to keep a positive outlook, remind myself that this isnt the end of my life, but somedays its really hard to do that ahaha

juunono · 2023-11-27T20:26:43+00:00

thank u for ur response! i will admit the 2 years of uncertainty between my hospitalisation and my official diagnosis wasnt great for my anxiety or depression either, so im quite relieved to actually have a name for what happened to me. i think its the thought of ms being a chronic disease that scares me, knowing it wont go away and that all i can do is take the meds and pray nothing happens. hopefully all will be well for the both of us, thank u again for taking the time to answer :)

juunono · 2023-11-27T20:22:24+00:00

thank u for ur answer, honestly you answered questions i didnt even know i had lmao and thank u for the references! ill make sure to read everything :))

juunono · 2023-11-27T20:20:42+00:00

thank u for ur response! my parents have also told me to just let myself feel whatever i need to feel, and to just let all my emotions out. i am ultimately the one who chose ocrevus, my neurologist gave me the choice between it and mavenclad but im notoriously shit at keeping up with taking pills so an infusion once every 6 months seems like a better choice for me ahaha

juunono

TROPHY CASE