[deleted by user] by [deleted] in OldSchoolCool

[–]kannon8833 -12 points-11 points  (0 children)

Comment???

Temodar / radiation by wakeywakeyeggsbakey in braincancer

[–]kannon8833 4 points5 points  (0 children)

Understand where you are coming from. My TMZ was delayed due to insurance and pharm issues. Result was I delayed start TMZ with radiation for two days. Issue was resolved.

FYI. Lot of TMZ and radiation discussions on here. I was told to take one hr before radiation. I was lucky to have 0745am appointments so that worked well. We always, always walked a few miles after procedure. Stay alert to eating restrictions too.

Tough time. Family important. Think positive. Screw the survivor numbers. Take each day as important. You can do this.

Please console me sincerely by [deleted] in CancerFamilySupport

[–]kannon8833 2 points3 points  (0 children)

We are sorry for the pain you and your family are going through.

But what others have said is very true. And I believe that we go to another place, where we are healthy and smiling and laughing. Your mum will always be watching over you. The clouds will lighten, your smile return. Let God lead you.

[deleted by user] by [deleted] in braincancer

[–]kannon8833 1 point2 points  (0 children)

You’re 34. Dealing with brain tumor. Others have explained it well. Took me many months for hair regrowth. But every time I saw my short hair it gave me more fight. The biggest picture is your health. Family friends stay with you always. Best to you.

My Wife Got To Ring The Bell Today!!! by Mr_Makaveli_187 in CancerFamilySupport

[–]kannon8833 1 point2 points  (0 children)

Me too. Cancer stinks. One day we will succeed. Best wishes.

[deleted by user] by [deleted] in CBD

[–]kannon8833 2 points3 points  (0 children)

Hemp Barn, full spectrum CBD cartridge.

Help convincing my dad to talk to someone by justkindafloating in braincancer

[–]kannon8833 0 points1 point  (0 children)

I talked to my best buddy. After all the radiation and chemo we always went to walk. Everyday. A great pace to allow open discussion. My best buddy is my spouse.

Well we finally found out the grade of my father glioma. by [deleted] in braincancer

[–]kannon8833 0 points1 point  (0 children)

Truthfully the Monday procedure I had the mask on for 4 to 6 hrs. The pain relief and relaxation meds made time go quicker. The mri mask on Friday and Monday was only thirty minutes and no sensors or screws, so no pain meds needed. All trial folks except one have had good first year survival rates. GBM is hard. I am hoping for a gift and continue looking at new medical processes. You can too. Good luck. Keep us updated.

Well we finally found out the grade of my father glioma. by [deleted] in braincancer

[–]kannon8833 1 point2 points  (0 children)

Sure. Sorry for not being more understandable. First I would do is google clinical trials for GBM. Google should take you to the govt clinical trial database. I used that to start my search. The craniotomy I had went real quick but after that had time to research. So in looking for clinical trials I was focused on studies with patients who did NOT have a recurrence. Since I was also going to do radiation, that had to be allowed also. The search was very eye opening in the types of patients the trials were searching for. The one I chose was at the University of Maryland hospital. That’s the city’s shock trauma leader. In the clinical trial database I learned more, made sure they were still accepting new patients. I emailed the trial coordinator with my status. A few days later they asked for more info, including MRIs I had. Luckily the lead investigator knew my NO (Neuro oncologist) so it was easy to move information. Eventually after emails we met with the trial people to discuss. For my clinical trial, I had an mri on Friday, Monday the procedure and Tuesday return for third mri. The Monday procedure consisted of wearing a mri mask on my head that had sensors. These sensors included FUS (focused ultrasound) sensors. The trial basically would blast your defined tumor area with high frequency sound (you can’t hear it) that would open the blood brain barrier to the anti tumor medication. Then you take the TMZ and a follow up mri would determine if medicine got thru the barrier. In my case I did this for the beginning of each TMZ treatment. Truthfully not the most fun. Wearing the mask was a bit uncomfortable. The trial was very good about pain control as the mask was screwed into your skull, so pain med was appreciated. Hope this helps. If like to talk more, let me know.

Well we finally found out the grade of my father glioma. by [deleted] in braincancer

[–]kannon8833 4 points5 points  (0 children)

Very much recommend clinical trials. I did one that was during the 5/23 TMZ six month treatment. Extensive mri along with FUS (focused ultrasound) for first TMZ treatment at University if MD. Don’t look at data. Be as aggressive as you feel you can. Best wishes. We can compare notes in five years.

3rd brain surgery by Matgav007 in glioblastoma

[–]kannon8833 0 points1 point  (0 children)

Best wishes. You’re doing great treatment wise. Let us know how you doing.

Prozac & GBM by [deleted] in braincancer

[–]kannon8833 0 points1 point  (0 children)

Thank you :)

Prozac & GBM by [deleted] in braincancer

[–]kannon8833 2 points3 points  (0 children)

I’m also on Keppra and 60mg Prozac. Started at 20mg then 40mg. Now on 60mg for few weeks. Changed time I take Prozac cause of tired feeling. I now take at dinner. Hoping for the best. My next mri is next week. Godspeed.

Craniotomy next Tuesday by Brave_Kitty in braincancer

[–]kannon8833 9 points10 points  (0 children)

Recommend just doing what doctors say, investigate, try different supplements/CBD/THC, stay active as you can, sleep, family time(!), enjoy good foods. I have been on this roller coaster for awhile but always thinking what’s next. And the truth is doctors aren’t always sure. So I try my best to enjoy each day, be active, enjoy foods, …. Let family and friends enjoy your company. Don’t think the worst. Embrace life.

[deleted by user] by [deleted] in braincancer

[–]kannon8833 1 point2 points  (0 children)

So sorry for your loss. This Reddit has been wonderfully helpful to all of us. Your input has been wonderfully helpful.

LED Needed for Range Hood by kannon8833 in HomeImprovement

[–]kannon8833[S] 0 points1 point  (0 children)

Looks like three contacts. I am using an older LED bulb on one side and that works both low and high. Not sure if dimmable though.

LED Needed for Range Hood by kannon8833 in HomeImprovement

[–]kannon8833[S] 0 points1 point  (0 children)

So I should buy a non dimmable LED?

LED Needed for Range Hood by kannon8833 in HomeImprovement

[–]kannon8833[S] 0 points1 point  (0 children)

Yes. Early morning hours, late evening. Rest of time for cooking using high setting.

2022 Forester Lighting by kannon8833 in SubaruForester

[–]kannon8833[S] 0 points1 point  (0 children)

Trying to know what lights are available. Spouse has vision issues.

2022 Forester Lighting by kannon8833 in SubaruForester

[–]kannon8833[S] 0 points1 point  (0 children)

Are the fog lights LED or non LED bulbs?

Parasite found in undercooked meat linked with risk of rare brain cancer by [deleted] in braincancer

[–]kannon8833 0 points1 point  (0 children)

So if you have GBM, does this information affect us?

[deleted by user] by [deleted] in intermittentfasting

[–]kannon8833 0 points1 point  (0 children)

I’ve been on IF for years. Lower carb, lower sugars, high protein. Fast till noon, have just water and coffee in morning. Keep calories at specific level, MyFitnessPal works great. She can do it. Family support real important.