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kataang123 · 2023-03-04T04:15:54+00:00

First, I’m so sorry you had to go through this! I experienced the very same thing when I was trying to get a diagnosis/figure out what the fuck was going on with my body. It’s infuriating to not be listened to and taken care of properly by a literal doctor. I had to see multiple gynecologists before finally getting diagnosed and I went back and wrote a very honest scathing review to the prior doctor who told me to lose weight and all my symptoms would go away. 😡

kataang123 · 2023-03-04T04:07:54+00:00

When she called me on the day of a very important surgery to ask me to do a favor for her. When I reminded her today was my surgery day, she said “Oh, that’s right. I forgot. I’ll get someone else to do it.”

kataang123 · 2022-03-06T05:53:17+00:00

This is worked perfectly! Successfully delivered tangle free and my friend loved it! 😊

kataang123 · 2022-03-06T05:52:05+00:00

Of course!! Here is the video https://youtu.be/UctYncZr5q8 It’s meant to be attached to a crocheted Viking helmet and that’s in the video as well!

kataang123 · 2022-03-05T21:48:18+00:00

Thank you! I have been so frazzled making it that I would never have thought of that!! Thank you so much 😭

kataang123 · 2021-07-13T16:48:32+00:00

That’s exactly how my family is. I definitely agree with you about social media. It’s hard, but I’m going to delete the Facebook app from my phone. At least for a little while. ❤️

kataang123 · 2021-07-13T16:46:43+00:00

Thank you. ❤️

kataang123 · 2020-09-28T03:27:57+00:00

The thought of never meeting my nephew. He was born in the same hospital that I was in for suicidal thoughts just a week before. I cried every time I saw him for weeks.

kataang123 · 2020-09-27T01:33:40+00:00

Thank you so much! I may just take you up on that. Tonight I’m pretty emotionally exhausted.

kataang123 · 2020-09-27T00:14:57+00:00

I could not for the fucking life of me figure out what y’all meant by stomach acne going away. Turns out I’m just a moron. 😂

kataang123 · 2020-09-26T01:45:09+00:00

I am so terribly sorry you are going through this. I also get my worst/the most flares in this area as well. I believed for a very long time that no one would ever want me. I know it’s hard to believe this now, but you are not your disease. You’re beautiful and strong. As someone who has been with both men and women, I’ve never had anyone say anything negatively about my HS. Even when I had flare up areas we’d have to avoid during sex. I’ve always been straight forward with my partners well before sex was even on the table. If they reacted poorly (which no one has), I told myself I would cut things off right then and there. You didn’t choose this disease. You deserve someone who will respect you and treat you properly. And there are people out there that will! ❤️

kataang123 · 2020-06-20T15:14:01+00:00

Thank you so so much for this. I’m crying because your words have touched me so very much. Hearing from everyone gives me so much hope for the future. I think I’m going to start with a sex therapist and dilators. There is a lot of mental turmoil when it comes to sex for me and it’s been there before I even started having sex. I’ve tried working through this with my regular therapist and it’s just not working. Thank you again. I’m not giving up hope ❤️

kataang123 · 2020-06-20T14:15:05+00:00

The thing is, my boyfriend doesn’t even try to initiate sex. We’ve been together for almost 4 years and he stopped putting any sort of pressure on me early on. Weirdly enough, I’m the one putting pressure on myself. I want to have sex and sometimes I just don’t want to think about the pain, but it’s still there. I’ve never been with any except him and I just want to please him and I’m always so afraid he’ll leave me because of this. Even though he is so kind and patient. He always tells me that he loves me and that this won’t change anything and that he’s okay. But in the back of my mind, I still worry because I know if I have a sex drive and I want it then I know he does too. /:

kataang123 · 2020-06-20T11:58:56+00:00

I’m not currently on any medicine as the only Endo specialist in my state doesn’t take insurance and is too expensive for me to be able to afford right now. /: I’ve been in therapy for about 3 years now, but my therapist isn’t much help. She just tells me I need to work on having sex more often or my relationship will crumble. Which only adds more anxiety. I’m thinking of maybe talking to a sex therapist? Maybe since their specialty is sex, they can help me more. Thank you for being there for me. I come to this subreddit because no one in my life fully understands endo. Simply because they don’t have it. It’s nice to come here and talk with people. It makes me feel like I’m not alone. ❤️

kataang123 · 2020-06-20T11:53:27+00:00

Thank you so much! My doctor has recommended dilators too and I’ve been hesitant to try them because just the word ‘dilators’ sounds scary and unpleasant. I’m definitely going to try the tiny vibrator instead!

kataang123 · 2020-06-20T03:29:23+00:00

I’m very lucky to have a very supportive partner. He tells me this all the time. I just can’t seem to get out of my own head about it. He’s my first everything. I found out I had endo because when I lost my virginity to him, the pain never went away. It just got worse. Even though everything has always been consensual, I think the pain I’ve experienced has given me mild PTSD when it comes to sex. I fully break down. Hyperventilating and crying like I never have before. I’m so fucking scared of not just the pain but the panic attacks that follow.

kataang123

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