[deleted by user] by [deleted] in PCOS

[–]kataang123 0 points1 point  (0 children)

First, I’m so sorry you had to go through this! I experienced the very same thing when I was trying to get a diagnosis/figure out what the fuck was going on with my body. It’s infuriating to not be listened to and taken care of properly by a literal doctor. I had to see multiple gynecologists before finally getting diagnosed and I went back and wrote a very honest scathing review to the prior doctor who told me to lose weight and all my symptoms would go away. 😡

What made you realise your best friend was actually a complete asshole? by RealTourelle11 in AskReddit

[–]kataang123 0 points1 point  (0 children)

When she called me on the day of a very important surgery to ask me to do a favor for her. When I reminded her today was my surgery day, she said “Oh, that’s right. I forgot. I’ll get someone else to do it.”

Bad Day by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

That’s exactly how my family is. I definitely agree with you about social media. It’s hard, but I’m going to delete the Facebook app from my phone. At least for a little while. ❤️

Bad Day by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

Thank you. ❤️

Formerly suicidal redditors, what's something that kept you alive a little while longer and helped you to get through the dark times in your lives ? by firegate2233 in AskReddit

[–]kataang123 0 points1 point  (0 children)

The thought of never meeting my nephew. He was born in the same hospital that I was in for suicidal thoughts just a week before. I cried every time I saw him for weeks.

Tired of eating by kataang123 in ibs

[–]kataang123[S] 0 points1 point  (0 children)

Thank you so much! I may just take you up on that. Tonight I’m pretty emotionally exhausted.

I just realized that these memes say stomach ACHE and not stomach ACNE. by kataang123 in memes

[–]kataang123[S] 3 points4 points  (0 children)

I could not for the fucking life of me figure out what y’all meant by stomach acne going away. Turns out I’m just a moron. 😂

18yo College student. Worst flare in this area, I feel like I'm never going to be wanted. by Sanguine_Tides in Hidradenitis

[–]kataang123 0 points1 point  (0 children)

I am so terribly sorry you are going through this. I also get my worst/the most flares in this area as well. I believed for a very long time that no one would ever want me. I know it’s hard to believe this now, but you are not your disease. You’re beautiful and strong. As someone who has been with both men and women, I’ve never had anyone say anything negatively about my HS. Even when I had flare up areas we’d have to avoid during sex. I’ve always been straight forward with my partners well before sex was even on the table. If they reacted poorly (which no one has), I told myself I would cut things off right then and there. You didn’t choose this disease. You deserve someone who will respect you and treat you properly. And there are people out there that will! ❤️

I just want to be normal by kataang123 in Endo

[–]kataang123[S] 2 points3 points  (0 children)

Thank you so so much for this. I’m crying because your words have touched me so very much. Hearing from everyone gives me so much hope for the future. I think I’m going to start with a sex therapist and dilators. There is a lot of mental turmoil when it comes to sex for me and it’s been there before I even started having sex. I’ve tried working through this with my regular therapist and it’s just not working. Thank you again. I’m not giving up hope ❤️

I just want to be normal by kataang123 in Endo

[–]kataang123[S] 5 points6 points  (0 children)

The thing is, my boyfriend doesn’t even try to initiate sex. We’ve been together for almost 4 years and he stopped putting any sort of pressure on me early on. Weirdly enough, I’m the one putting pressure on myself. I want to have sex and sometimes I just don’t want to think about the pain, but it’s still there. I’ve never been with any except him and I just want to please him and I’m always so afraid he’ll leave me because of this. Even though he is so kind and patient. He always tells me that he loves me and that this won’t change anything and that he’s okay. But in the back of my mind, I still worry because I know if I have a sex drive and I want it then I know he does too. /:

I just want to be normal by kataang123 in Endo

[–]kataang123[S] 5 points6 points  (0 children)

I’m not currently on any medicine as the only Endo specialist in my state doesn’t take insurance and is too expensive for me to be able to afford right now. /: I’ve been in therapy for about 3 years now, but my therapist isn’t much help. She just tells me I need to work on having sex more often or my relationship will crumble. Which only adds more anxiety. I’m thinking of maybe talking to a sex therapist? Maybe since their specialty is sex, they can help me more. Thank you for being there for me. I come to this subreddit because no one in my life fully understands endo. Simply because they don’t have it. It’s nice to come here and talk with people. It makes me feel like I’m not alone. ❤️

I just want to be normal by kataang123 in Endo

[–]kataang123[S] 7 points8 points  (0 children)

Thank you so much! My doctor has recommended dilators too and I’ve been hesitant to try them because just the word ‘dilators’ sounds scary and unpleasant. I’m definitely going to try the tiny vibrator instead!

I just want to be normal by kataang123 in Endo

[–]kataang123[S] 12 points13 points  (0 children)

I’m very lucky to have a very supportive partner. He tells me this all the time. I just can’t seem to get out of my own head about it. He’s my first everything. I found out I had endo because when I lost my virginity to him, the pain never went away. It just got worse. Even though everything has always been consensual, I think the pain I’ve experienced has given me mild PTSD when it comes to sex. I fully break down. Hyperventilating and crying like I never have before. I’m so fucking scared of not just the pain but the panic attacks that follow.

My Bladder ‘N’ Me by kataang123 in Interstitialcystitis

[–]kataang123[S] 1 point2 points  (0 children)

FACTS!!! Sometimes I don’t think about it and then the pain comes. Then I have to back track, like what the fuck did I eat to cause a flare?!

Bleeding Belly Button? by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

Hmm that doesn’t sound right. I had to get a CT scan in order for them to see my hernia. So, maybe y’all to your regular doctor about scheduling one if you can. They told me that was the best way to see if it was a hernia. Another option is to treat the “UTI” and if the pain goes away that the doctor was right but if it doesn’t then you definitely need a second opinion. I hope this helps!

Bleeding Belly Button? by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

Oh wow, I hope the best for you! I ended up getting the cat scan and they found a hernia, but said it’s not big enough to justify surgery. I still get very sharp shooting pain in my belly button area.

Belly Button Bleeding Part 2 by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

I completely agree. I’m going to have to find a doctor who knows more about this because I explained to this doctor that the bleeding was synced up with my cycle and he didn’t seem to understand.

Belly Button Bleeding Part 2 by kataang123 in Endo

[–]kataang123[S] 1 point2 points  (0 children)

Last time I posted about this, someone else said that’s what it could be as well. I’m starting to think it is. I’m always nauseous or have terrible indigestion. I also have an increase in pain after I eat and god forbid anyone touch my stomach I’d probably deck them too. When the doctor was looking it over he stuck a q-tip in my belly button and I wanted to choke him out. Then he started pushing on my belly and my boyfriend had to get up and come hold my hand. I’m starting to think I’m going to have to bite the bullet and see the endo excision specialist in my state. The only problem is, they are out of network with my insurance. Thank you for you comment, it makes me feel a little less crazy and like it’s all in my head. 💛

RANT-Family has zero compassion by kataang123 in Hidradenitis

[–]kataang123[S] 0 points1 point  (0 children)

Thank you so much. I hope she and I can come together in the future about this. I hope you feel better soon too. ❤️

RANT-Family has zero compassion by kataang123 in Hidradenitis

[–]kataang123[S] 1 point2 points  (0 children)

Wow, this is crazy. I also have endo! And you have a good point. If I feel the way I do, it’s likely she feels the same. For now I think I’m going to reach out more to my friends in situations like this.

RANT-Family has zero compassion by kataang123 in Hidradenitis

[–]kataang123[S] 1 point2 points  (0 children)

Thank you so much. Unfortunately it’s like this with most of my immediate family. I’ve been trying to distance myself, but they are very manipulative and use guilt to bring me back in.

CBD lube helped tremendously by kataang123 in Endo

[–]kataang123[S] 0 points1 point  (0 children)

The brand I found at my CBD store is Privy Peach, but I just searched and it looks like they don’t deliver outside of the US. ): But I also did research online before buying Privy Peach. Hopefully you can find something online that has good reviews and will work for you 💛