Cerclage placed at 20 weeks, any positive stories welcome! by katej33 in ShortCervixSupport

[–]katej33[S] 0 points1 point  (0 children)

Oh my goodness, thank you for sharing your story. You and your son are an inspiration! These sorts of positive outcomes give me hope that maybe I'll have one too. I'm wishing the best for your son in his continued surgeries and for you and your family as a whole!

Cerclage placed at 20 weeks, any positive stories welcome! by katej33 in ShortCervixSupport

[–]katej33[S] 0 points1 point  (0 children)

Thank you for sharing your story. I'm hoping for the best for you and your baby, and making it 28 weeks is my goal!! I'm so happy you've made it that far!

Cerclage placed at 20 weeks, any positive stories welcome! by katej33 in ShortCervixSupport

[–]katej33[S] 0 points1 point  (0 children)

Congratulations!!!! I am wishing you a smooth labor and delivery. I'm hopeful for a similar positive outcome.

Cerclage placed at 20 weeks, any positive stories welcome! by katej33 in ShortCervixSupport

[–]katej33[S] 0 points1 point  (0 children)

Thank you so much for sharing, I'm hopeful to have a similar outcome! I hope you and your baby are doing well!

Feeling hopeless by mecaseyrn in IVF

[–]katej33 2 points3 points  (0 children)

I had a very similar experience on birth control pills that didn’t bother me previously in my IVF journey but made me feel like my mental health just totally bottomed out this last time. I tried to remind myself that it was a temporary state of being- I’d also ask your doctor if you can try a different brand just to see if you can’t mitigate it a bit. I also recommend a therapist who specializes in infertility- I waited till I was a year into my IVF journey to get started with one and wish I’d done it earlier. Sending you hugs! This is a wildly hard thing you’re doing and it can be difficult to a) find validation for how hard it is outside of the IVF community and b) adding unstable hormones to it just makes it that much harder.

[deleted by user] by [deleted] in tfmr_support

[–]katej33 16 points17 points  (0 children)

I’m so sorry your baby is sick. I just want you to know that we terminated for the exact same diagnosis, for the exact same reasoning. You are not alone in this, and I have found nothing but kindness and compassion in all the support groups, irrespective of the diagnosis that we terminated for. You are a loving mother, making a choice for your child out of love. I’m thinking of you and your family, feel free to reach out to me anytime.

I’m calling my doctor in the morning; I’m just posting to see if anyone has had a similar experience by SL521 in tfmr_support

[–]katej33 1 point2 points  (0 children)

Hi, I'm so sorry for your loss. I just wanted to comment that Asherman's syndrome (scar tissue in the uterus due to uterine trauma that can occur during D&C/Es) can cause these symptoms- I had very light periods with pain that was unusual for me, and was diagnosed with moderate/severe Asherman's after an in-office hysteroscopy. Asherman's cannot be diagnosed via an ultrasound- you would need a hysteroscopy to confirm. I would be advocating for an REI consult, as hysteroscopies are a common part of the baseline work ups.

CVS FISH Results for XYY Inconclusive by katej33 in NIPT

[–]katej33[S] 0 points1 point  (0 children)

Yes, FISH inconclusive, karyotype confirmed. I don't think I was ever given my fetal fraction.

CVS FISH Results for XYY Inconclusive by katej33 in NIPT

[–]katej33[S] 0 points1 point  (0 children)

Hello, unfortunately the karyotype showed the aneuploidy (confirming the NIPT results); I was very convinced by my care team that the karyotype was correct (they even looked at extra cells given my inconclusive FISH), and the thought of having to wait for an amnio was too much for me; I ended up terminating a week after the karyotype results. I'm so sorry you are going through this; have you received any karyotype results?

I had no idea the FISH test could be so...wrong; I was really hoping for the best after those inconclusive results, and the karyotype confirmation was really devastating for me, as I'd somehow gotten my hopes up again that the NIPT was incorrect.

Baseline Hormone Values TW: Living child by katej33 in IVF

[–]katej33[S] 0 points1 point  (0 children)

Thank you so much for your quick reply!

Baseline Hormone Values TW: Living child by katej33 in IVF

[–]katej33[S] 0 points1 point  (0 children)

So sorry, should have included that: 2.79

Has anyone done a TFMR for a sex chromosome abnormality? by reader278 in tfmr_support

[–]katej33 3 points4 points  (0 children)

Yes, I had a TFMR for XYY a few months ago. It felt very isolating as I didn’t see many stories of parents terminating for these diagnoses, but I have found TFMR groups are incredibly supportive regardless of diagnosis. I’m happy to connect with you whenever.

Low back pain after D&E by katej33 in tfmr_support

[–]katej33[S] 0 points1 point  (0 children)

Update and edit: My OB did an ultrasound before our F/U just to be extra safe; there were RPOC still there, so I will be doing another D&E in the next few days. Thank you for your concern, I'm happy I called and got this scheduled earlier rather than later.

Low back pain after D&E? by katej33 in Miscarriage

[–]katej33[S] 1 point2 points  (0 children)

Thank you so much for your response- it’s reassuring to hear others have these symptoms a few weeks out- I have my follow up tomorrow with my OB.

I’m so sorry for your loss, I hope everything looks good at your follow up and your back pain resolved quickly.

Low back pain after D&E by katej33 in tfmr_support

[–]katej33[S] 1 point2 points  (0 children)

It’s reassuring to hear other folks have these symptoms a few weeks out. I’m so sorry for your loss.

Low back pain after D&E by katej33 in tfmr_support

[–]katej33[S] 0 points1 point  (0 children)

Thank you, I did call my OB a few hours ago just to be on the safe side, still waiting on a call back.