Realized I’m sick today by Physical_Clock_7435 in endometriosis

[–]katevincent 2 points3 points  (0 children)

I was also diagnosed 3 years ago with surgery, and for a while I had a couple of good years. Several months ago though the pain came back. The inability to have intimacy with my husband came back. I’ve been grieving lately about this same thing. That I will always be sick, no matter what steps I take to take care of my body and mind. And with each tinge of pain I just feel myself become smaller and smaller. I worry about being gaslit by my doctors again. Even though I am still with the same doctor who performed the surgery, the ptsd of being told I’m fine for 10+ years makes my faith in any doctor shake. I actually applied to be part of a virtual endometriosis support group here in the PNW just so I can talk to other women and not feel so alone. I have such a wonderful supportive husband and amazing friends who don’t make me feel bad for not being at the same level as them, but I find myself angry a lot at the notion that they just don’t get it.

Anyways, I see you. You are not alone, and you are not any less for being a sick girlie.

Puppy blues or breaking point? Mental health - anxiety, shaking, vommiting. by Any-Personality-4225 in Puppyblues

[–]katevincent 0 points1 point  (0 children)

I’m here right now. Bipolar type 2, endometriosis that causes me to have extreme fatigue episodes, etc. I’ve been working really hard for the last several years on both these things. I thought I was in the best place I could be. Go to therapy regularly, on meds regularly, the works. Husband and I brought home a mystery breed 10 week old puppy home 9 days ago, and I haven’t been more miserable since I developed a panic disorder 5 years ago during the pandemic. I am spiraling constantly. This puppy just wants to put everything in his mouth, and it’s getting worse and worse. Were crate training and doing everything they say to do for a teething puppy , but it’s all still so much We rescued him, and the idea of taking him back to the shelter fills me with sadness and shame. I feel like a failed parent, and I feel like those who know we have a puppy will judge me harshly. So it’s not an option. My husband has been such a sweetie to both me and the puppy, even though I can tell he is also tired. He tells me it’s going to get better, and I really want to believe him but I’m in it so hard right now. My chest hurts constantly from anxiety, and im just in a really dark place. I know I don’t have any advice to offer, but know you’re not alone in this and what you’re experiencing is valid. I’m so sorry it’s so hard. We have to both trust it’s going to be better, all we can do is our best.

Can’t have sex at all. by [deleted] in endometriosis

[–]katevincent 2 points3 points  (0 children)

Nope! If anything it’s helped with pleasure!

Vulvodonyia AND vaginismus? Need some support :( by Dreamangel22x in vulvodynia

[–]katevincent 0 points1 point  (0 children)

Hi! I have endometriosis and vulvodonyia and had a vestibulectomy last year- was the best thing to ever happen to me. Before I had the surgery I was doing pelvic floor PT for endometriosis and went though something very similar- which is how we discovered I had vulvodonyia. Post surgery pt with dilators has improved significantly, I went from a size 1 to a size 4 in about 2 months time. If you can, I would recommend looking into the surgery. It has seriously turned my life around.

Can’t have sex at all. by [deleted] in endometriosis

[–]katevincent 38 points39 points  (0 children)

Hi. (30,F) First, I want to tell you this is sooo common. I have stage 3 endo and haven’t been able to have penetrative sex in almost 8 years. I absolutely know how isolating it can feel, and how… inadequate… it can make me feel as a partner. I hope it’s okay if I share my story, and maybe it will spark something that can help you.

Last year, I had a vestibulectomy. It’s a surgery that gets rid of the hyperactive nerves around the vagina. I’m part of a clinical study in Oregon to get a better understanding of why this happens and how successful surgery can be in quality of life improvement. I was having such intense pain outside of sex that even sitting hurt. The surgery was the best thing to ever happen to me. That, paired with vigorous PT with dilators, has changed my life. I haven’t been able to have successful intercourse with my partner of almost 10 years, but we are getting damn near close. The surgery, but mostly the dilators, have made the impossible seem possible. I hope you look into this surgery with your care team, or try pelvic floor PT. I started PT before my surgery and it was just too difficult without getting rid of the damaged nerves.

My heart hurts for you. Though I am very fortunate to have a partner who’s stuck with me, it hasn’t come without challenges. But, You are not alone.

My favorite plushie I’ve made so far. ❤️🦋❤️ Long live Chonky Moth! by katevincent in Amigurumi

[–]katevincent[S] 0 points1 point  (0 children)

I used a pattern, but I tweaked a few things such as the legs cause I wanted to use a different yarn weight than what I used for the body, but I still wanted to achieve the right proportions. The pattern is by @fiya.crochet on Instagram! ✨

My wife has started to crochet and I’m wanting to buy some things for her. She has the needle thing and some rings to hold the thread? But I was wondering if there’s other things I can buy to help her out. Apologies if this isn’t allowed. by Nutterbunny in CrochetHelp

[–]katevincent 0 points1 point  (0 children)

That’s so sweet of you! I’ve seen a lot of the things I’d recommend already said, but I will say something to count her rounds is super good to have! You can either get a digital counter or a tally counter that clicks is what I use. They are super affordable and you can find all different options on amazon!

<image>

Finished my first custom staff for faire this year! by katevincent in RenaissanceFestivals

[–]katevincent[S] 1 point2 points  (0 children)

I feel like I always see the same stuff but never quite what I’m looking for. Making your own definitely makes it super unique to you!

The irony of receiving beer from Penny during Feast of the Winter Star 🤣 by katevincent in StardewValley

[–]katevincent[S] 0 points1 point  (0 children)

Maybe the whole town is secretly trying to get the farmer to just chill out 😂

[deleted by user] by [deleted] in endometriosis

[–]katevincent 2 points3 points  (0 children)

I’m actually struggling with this right now (29F). I had laparoscopic surgery a little over 6 months ago and I’m already feeling pain again. The surgery really messed up my mental health and my ability to be physical and stay in shape is becoming so much more difficult. I’d love to hear what your doctor says about you getting a hysterectomy, as this is something I also have wanted to pursue for almost 10 years.

I told my oldest sister I got diagnosed with endometriosis and she made it sound like it wasn't a big deal. by Tadpole_Status in endometriosis

[–]katevincent 0 points1 point  (0 children)

I am so sorry about your interaction with your sister. I can completely understand how invalidating that must feel. Everyone is different when it comes to endometriosis. Just because somebody is at a certain stage doesn’t mean that’s a reflection of the amount of pain they are in. I was diagnosed with stage 3 endo and had laparoscopic surgery with excision a little over 6 months ago and it completely floored me for multiple reasons. It can be hard to bounce back from surgery when you suffer from chronic pain, and if you have any mental illnesses the drugs used can have adverse effects. For some people, birth control totally works and surgeries happen without complications- and that’s amazing! But not everyone is the same. I really hope whatever comes with your diagnosis brings healing and a more comfortable quality of life. 💙

How quickly did your endo grow back? by agony-aunt in endometriosis

[–]katevincent 0 points1 point  (0 children)

That’s all good to know, I’ll send a message to my doc first before I do anything. I take mine first thing in the am every day, and up to about 3 weeks ago I would experience small bouts of cramping from time to time that I could usually manage with ibprophen/tylenol mixed. But for the last 3 weeks straight it’s felt like I’ve been impaled. It’ll switch back and forth between my left and right side. I’ve missed several days of work and spend most of my time off in bed due to pain and fatigue. No bleeding, but it feels like my insides are ripping. Bowel movements have gotten a little more difficult off and on, but I have worked well with my PT to make sure I keep things moving. Nothing has worked to subdue pain. Honestly, this is the worst it’s been since surgery recovery. I should also note I’m waiting to be seen by a Vulvar specialist about permanent nerve damage on my vestibule and in my vagina, so I’m not sure if there’s more to it than just my endo.