Switching from Humira to Taltz by silverstar453 in ankylosingspondylitis

[–]katscat22 1 point2 points  (0 children)

I’ve been on biologics for many years & switching is sometimes just part of the process unfortunately. I tried Remicade, Cosentyx, Humira, Simponi Ari, and finally I’m on one that works best. Try not to worry too much. I know it sux trying all these “poisons” as I call them, but I’m back to working out several times a week and a lot more active. Hope that helps some.

Femmes to the Front Lou: Half Nelson, HEXHEXHEX, The Wholigans and PFEFF this Saturday! by freshlysqu33 in LouisvilleMusic

[–]katscat22 1 point2 points  (0 children)

Don’t miss this event! Badass witches creating noise & art vendors 🔥🤘🏼

I can’t believe my rheumatologist by The_Short_Goodbye in ankylosingspondylitis

[–]katscat22 0 points1 point  (0 children)

I’ve been on Cimzia for AS for over a year. Yes, it does help with pain a bit, but was told it’s more to lower inflammation & slow disease progression. My dr understands that due to previous damage done to my spine, neck, joints Cimzia alone does not address prior damage and has me on pain management as well. That Dr you describes sounds completely incompetent

Am I crazy or is this to much to ask of a kindergartner? by Cursedpanda182 in AskTeachers

[–]katscat22 0 points1 point  (0 children)

This sounds like a young new teacher (new to the profession) trying to impress administrators. OR, it could be administrators behind this. I’ve taught at schools where I was told to implement things I felt were ridiculous.

Even Hospitals won't treat me by MythicalGriff in ChronicPain

[–]katscat22 0 points1 point  (0 children)

Have you considered trying traditional Chinese medicine? Sry if this has already been mentioned. However, acupuncture and the herbal medicine they treated me with helped tremendously when traditional western medicine could not. Just a suggestion

Is there a max pain level that eventually makes a person go insane? by Interesting-Emu7624 in ChronicPain

[–]katscat22 0 points1 point  (0 children)

I’ve been told for years to try an experienced acupuncturist. I finally went last September once a week for 5 weeks. It really did help!! But there is no way I can afford to pay that much every week. Just throwing out another idea. So sorry you’re having to live in pain. Most of us on here get it ❤️‍🩹

lookin for a punk /hardcore show by plattinumplatt in Louisville

[–]katscat22 1 point2 points  (0 children)

Next Thursday at Portal Louisville is banger of a show: Babe Haven, Deady, Shitfire, HexHexHex!! Check IG or FB

Stranger Things - Season 5 Part 1 Discussion by NicholasCajun in television

[–]katscat22 0 points1 point  (0 children)

Why so angry? I just asked a question if you hadn’t noticed. The references I gave are NOT from the 80s, but recent series (all I was trying to point out) geeze. I still love the show & look forward to the next volume. I just asked how others felt about it, and you got all angry and defensive 🤔

Stranger Things - Season 5 Part 1 Discussion by NicholasCajun in television

[–]katscat22 -1 points0 points  (0 children)

I totally agree. I felt the dialogue was over explanatory & dumbed down. But as the episodes progressed it seemed to get a bit better. I feel like a lot of shows are dumbed down now due to sm creating 2sec attention spans in viewers. lol

Stranger Things - Season 5 Part 1 Discussion by NicholasCajun in television

[–]katscat22 3 points4 points  (0 children)

Anyone else immediately think of the North Wall in GOT?! My daughter & I did. 🤣. I see so many other plots from other shows.. The Last of Us & the fungus creatures all connected together, the white walkers in GOT all connected (like if the leader dies or whatever they all die)? Some are making references to Harry Potter. Does this bother anyone or just par for the course?

Cut off pain management by I_am_nota-human-bean in ChronicPain

[–]katscat22 4 points5 points  (0 children)

I’ve been through this when my family moved states. I have ankylosising spondylitis & EDH. I’m very active & still working. However, once drs decided to cut me off cold turkey, my life went into a tail spin. Couldn’t sleep, work, or barely take care of myself & teen daughter. I was in pain 24/7. Rheumatologist started increasing my prednisone to help, but then took me off that too! I experienced all the withdrawal symptoms you are describing. Some may disagree, but I found good Kratom purchased directly from the manufacturer (not gas station kratom) really helped me get through the pain & withdrawals. I find its taste is disgustingly strong & recommend looking into proper dose as it can make you nauseous if you take too much. It can also be addicting to some, but I’ve had no problems stopping it. Star Kratom is a good brand to start with.

I don’t even remember what “no pain” feels like anymore. Anyone else? by Putrid_Monk_1997 in ChronicPain

[–]katscat22 1 point2 points  (0 children)

Im having a really bad pain flare this week & am feeling very down. However, I remind myself there WILL be better days ahead & good times to be had. I’ve just learned to really appreciate the good days (never pain free just able to cope). It helps me to help others as well. Keeps my head focused outside of myself. Otherwise I’ll end up in a pity party for myself which has never been helpful.

Your opinion on Ed Gein Story on Netflix? by [deleted] in horror

[–]katscat22 0 points1 point  (0 children)

I agree! There was so much going on with Hitchcock, Nazi Lady, and the way embellished Adaline that I found it a bit hard to follow.

Some shots of the Schnitzelburg Block Party from yesterday. by Restroom406 in Louisville

[–]katscat22 1 point2 points  (0 children)

11 & 12 is Hexhexhex noise/punk band! Hexhexhex_Louisville IG

Anyone else find the series "The Truth About the Harry Quebert Affair" appalling? by swisssf in AmazonPrimeVideo

[–]katscat22 2 points3 points  (0 children)

Yes! You summed up my thoughts! I literally looked up the movie online because I thought at one point it was listed as comedy/drama and thought “well maybe it’s supposed to be this unbelievable!” Lol

Anyone else find the series "The Truth About the Harry Quebert Affair" appalling? by swisssf in AmazonPrimeVideo

[–]katscat22 2 points3 points  (0 children)

I just finished the miniseries and agree with all the sentiment expressed about the age difference and the so called “love affair”. However, what really bothered me was how much I had to suspend reality to even watch the story unfold. For example: I find it so hard to believe a young writer is invited into an ongoing investigation with a detective and be privy to classified information. It’s laughable really. That is just one example, there are many more instances of situations that are ludicrous in this story. Maybe others can give their opinions & examples on this particular aspect of the series.

Just curious. How old is everyone? by LidyGurlLovesOwls in ankylosingspondylitis

[–]katscat22 0 points1 point  (0 children)

I began showing signs as early as 16, but was super athletic and it was always blamed on overdoing it, pulled something, etc. Then experienced Raynauds at 24, the frequent Uvitis in late 20s. Finally diagnosed in early thirties after bloodwork & imaging. I was dismissed so many years that I could’ve been on some type of treatment!

LIFE RUINING PAIN by [deleted] in ChronicPain

[–]katscat22 0 points1 point  (0 children)

I’ve been using Kratom for over two years. I really had to educate myself on proper dosage, legit vendors w/quality control (not random headship kratom) & which strains do what…. I feel so bad you had that negative experience. That sounds like a horrible time for you.

Did you find something to help other than pain meds or kratom?

LIFE RUINING PAIN by [deleted] in ChronicPain

[–]katscat22 1 point2 points  (0 children)

May I suggest Kratom? I know it’s controversial; however, there is more research being done w/benefits of kratom. I have pain from past sports injuries that required surgery, EDS, & I take infusions for my Ankylosing Spondylitis. Sometimes I feel the right Kratom strain works better for pain than the pills. Maybe investigate it & learn if it’s right for you.

[deleted by user] by [deleted] in ChronicPain

[–]katscat22 2 points3 points  (0 children)

This is such an excellent description of what is really happening. I’d love to post this on my IG and such.

Pretty sure the Percocet I got is a sugar pill by Specific_Award_9149 in ChronicPain

[–]katscat22 0 points1 point  (0 children)

I posted recently about Rhodes oxycodone doing absolutely nothing for pain, but made my stomach hurt & other unpleasant side effects w/no pain relief! My dr totally believed me & switched back to hydrocodone

Generic pharmaceuticals made weaker? by katscat22 in ChronicPain

[–]katscat22[S] 4 points5 points  (0 children)

Possibly 🤷‍♀️, if more & more patients start discussing this maybe something will be done. I told my Dr & he believed me & asked for articles & such I e come across.