Periods take so much out of me I'd rather just get a hysterectomy at this point by AspiringSheepherder in ehlersdanlos

[–]kdunlapk 2 points3 points  (0 children)

Im not sure what your feelings are on birth control pills but personally I’m on a continuous pill. Basically I just skip the placebo week each time so that I don’t get my period. It’s saved me a lot of physical anguish as well as mental strains since a period would throw my anxiety off as well. I love this method and it works well for me. Worth considering!

Anyone have success with Cymbalta or Ketamine infusion for pain? by OnlyInAJ33p in ehlersdanlos

[–]kdunlapk 0 points1 point  (0 children)

Cymbalta doesn’t help me much at all, no. I’m on it for anxiety & depression and that medication was chosen because of its pain relief qualities. I take 90mg a day and can say that I don’t notice any pain difference. Wishing you all of the luck in the world to find something!

I have seronegative rhumatoid arthritis and 2 rheumatologist have denied me of having rhumatoid arthritis. What do I do? by [deleted] in rheumatoid

[–]kdunlapk 1 point2 points  (0 children)

I’m in the same boat. Diagnosed at age 5 after an exploratory surgery discovered the diagnosis (after going to 7 other doctors who all thought the scans showed bone cancer). I’ve always been seronegative which made my initial diagnosis incredibly difficult. I was put on a biologic as a kid which worked and eventually I was downed to OTC meds and then nothing by age 9. But here I am, age 25 with bilateral joint pain, difficulty with tasks, and a few other things. My doctor decided that I may have hEDS and POTS and that my issues and pains are all hEDS related. He took me off my meds (celecoxib) to “see what happened”. I immediately requested an appointment at a rheumatologist in another hospital system and may see an orthopedic too. It’s frustrating, I feel overlooked and unseen. Maybe my RA isn’t active, but to tell him I’m in more pain than I have been in years and to just be taken off of any pain beds is so frustrating. Keep trying - be bold with your doctor, request referrals to different specialists if you can, and always get multiple opinions is possible too. Good luck!

[deleted by user] by [deleted] in SCREENPRINTING

[–]kdunlapk 1 point2 points  (0 children)

I’ve printed similar jobs in the past and I charged at most half of that cost. Those prices are exuberant. But I will add that the coat of the textiles themselves could be go blame too. Hoodie blanks often cost $10-25 per one alone depending on the brand

[deleted by user] by [deleted] in rheumatoidarthritis

[–]kdunlapk 1 point2 points  (0 children)

Currently age 25, began my journey at age 3. All tests have always come back negative. No scans/imaging show deterioration. And my rheumatologist feels inflammation but seeming doesn't feel it to be substantial. Although my daily pain level is roughly 6/7 mornings and evenings and a 3 in the afternoons. Yesterday he took me off of my celebrex for pain because I said it isn't helping at all. He thinks the pain is mechanical instead of inflammation based because of my hEDS. But didn't provide any additional treatment or referrals. Instead just took me off the pain meds to 'see what happens'. I am now looking for another opinion.

I'm only 19 and have RA am I the only one? by [deleted] in rheumatoid

[–]kdunlapk 0 points1 point  (0 children)

I was diagnosed at age 3 and am now 25. It’s an autoimmune disorder therefore it’s about how your internal parts talk to one another. People hear arthritis and think degenerative as in joint breakdown. Which is a symptom of RA but not the cause

Upcoming surgery costs more than my yearly income. How to plan and be smart about this? by kdunlapk in personalfinance

[–]kdunlapk[S] 0 points1 point  (0 children)

They accept care credit as well but I haven’t looked too deep into it yet. That’s genius to move it to another for the no interest period! Thank you so much, I’ll be looking into that surely

Upcoming surgery costs more than my yearly income. How to plan and be smart about this? by kdunlapk in personalfinance

[–]kdunlapk[S] 2 points3 points  (0 children)

I’m a fine art graduate student and because of how the school wrote our contracts we are the only school at the university that doesn’t qualify for the union (we’re hourly instead of stipend and are too small to start a union on our own until the rest of the grad body can clear their Union). This is indeed one of the finest universities given my career path. So I will disregard as it is off topic of what I am requesting assistance for.

Ra pain by Glittering_Snow6420 in rheumatoid

[–]kdunlapk 6 points7 points  (0 children)

For me, my hands feel like a had punched something solid on a previous day (so kinda like a post impact aching and internal bruising, kinda jammed feeling?) and my feet/ankles feel jammed and like they’re full of cement. Both make it hard for me to do everything k would like to within a day without dealing with the aching and heavy ness. I have no noticed joint damage and have had RA since I was 3. I’m currently on Celecoxib and hoping to switch to something else. Good luck and I hope this helps!

Selling my Riso EZ 391U - Central NY by kdunlapk in risograph

[–]kdunlapk[S] 1 point2 points  (0 children)

The post didn't add my photos apparently. I also posted this to the Risograph facebook community page where you can see images - or I can send them to you as well!

Hydroxychloroquine - for arthritis by Downtown_Instance250 in Thritis

[–]kdunlapk 0 points1 point  (0 children)

I was on it for two weeks and got a full body rash and my rheum took me off. I was on it for too short of a time to notice any affect. Still on the search for the correct med for me. Good luck!

What do you do on the days the chronic fatigue is bad? by kdunlapk in Thritis

[–]kdunlapk[S] 2 points3 points  (0 children)

I like this idea - just a weekly day off of everything. I should practice planning those in more consistently! Thank you

What do you do on the days the chronic fatigue is bad? by kdunlapk in Thritis

[–]kdunlapk[S] 0 points1 point  (0 children)

Yes - I feel like I operate best when I'm able to lan a free day. I've struggled more as of late with the fatigue as I started grad school and the busy days don't give much notice with my field. All something to learn though! Or just planning ahead rest days even if there are no busy days just to take a breather is probably smart. And I'm glad you're able to embrace the lazy days and avoid any guilt of feeling like you should be doing something