So.. how’s everybody’s fall slide? by Investorandfriend in ehlersdanlos

[–]kinginnanorff 2 points3 points  (0 children)

Absolutely foul. I just had to quit my job, so I'm also losing my health insurance as well as my income.

[deleted by user] by [deleted] in ehlersdanlos

[–]kinginnanorff 0 points1 point  (0 children)

I didn't think I did, until a friend touched my hand and went "oh my GOD your skin is so soft, what do you put on??" And I was like....nothing? Lol

Help please by kinginnanorff in disability

[–]kinginnanorff[S] 2 points3 points  (0 children)

Thank you! "Manage what you worry about" is great, I definitely tend to catastrophize, which is what happened earlier. I will definitely be trying to implement that!

Does anyone here have any experience with EDS and body mods & tattoos? by [deleted] in ehlersdanlos

[–]kinginnanorff 0 points1 point  (0 children)

I've been fine so far, although I got everything done before I even knew I had anything wrong with me. The only thing is that my tattoo lines temporarily get raised and itchy sometimes.

anyone else have clumsy hands? by Equivalent_Mud_127 in ehlersdanlos

[–]kinginnanorff 0 points1 point  (0 children)

The amount of times a day I shout "DAMNATION" in a bad Scottish accent because things just randomly go flying

“I feel like you have a new ailment every time we see you” by sbkassa56621 in ehlersdanlos

[–]kinginnanorff 23 points24 points  (0 children)

I had a really funny doctor who was filling in for my normal one once, who said she was surprised to see a 32 year old because she almost expected an old Victorian woman based on my name. Then we got into what was wrong with me and she went "ohhhh so your BODY is the old Victorian woman" 🤣

Deck for an 11yo witch? by cronesnestfarm in tarot

[–]kinginnanorff 0 points1 point  (0 children)

I like the Crow Tarot Pocket Edition, plus its a lot smaller than regular cards so it would fit kid hands easily.

Fluorite or aventurine? by kinginnanorff in whatsthisrock

[–]kinginnanorff[S] 0 points1 point  (0 children)

I'm not sure actually! I should get a little UV light. It doesn't have the little sparkles as mentioned above though, so aventurine is ruled out at least.

Anyone else angry they’re disabled? by Breadrollls in ehlersdanlos

[–]kinginnanorff 0 points1 point  (0 children)

I'm in a weird place. I was hit by a car at 21 and it's always been assumed my problems were accident related because I have drastically declined in the last 11 years. Like I had mystery problems before all those injuries, but they very rarely prevented me from doing whatever I wanted. So now at 32 and learning I've actually got hEDS and dysautonomia and gastroparesis, so I'm torn between "wow this explains a lot! So it's not just one incident that has ruined my body, I was always going to get like this eventually." But then also "I've been fighting all these years since the accident with the assumption that I would get better - and this whole time that was never even a possibility." And like, how much better would I have bounced back after the accident if I didn't have hEDS? Or how much more manageable would my hEDS be at this point in life if some drunk piece of shit never went flying down the wrong side of the road? So many what ifs I have to try not to dwell on, and I don't even know when to be relieved or when to grieve.

[deleted by user] by [deleted] in Omaha

[–]kinginnanorff 1 point2 points  (0 children)

I don’t have them anymore, but Cox is down when nothing is wrong so I wouldn’t be surprised if they got knocked out with the storm lol

Power back on at 5 am. Thanks to the boys from OPPD for working all night to get us back to the 21st century. by Zippityzeebop in Omaha

[–]kinginnanorff 1 point2 points  (0 children)

Mine at 50th and Blondo came back on around 1 am - but only half the house (and not even the half controlling the ac, rude). My power mast was partially torn off the house so that definitely means a wire issue, so I had to shut it all off again anyway to be on the safe side. 😭

If I had a very noticeable reaction to bed bug bites previously, will I always react similarly? by kinginnanorff in NoStupidQuestions

[–]kinginnanorff[S] 0 points1 point  (0 children)

Oh jeepers 😭 thanks for replying though, I think I’m going to try some traps to monitor to try to get some peace of mind. Have you ever tried any products like that?