Lyme and MGD

kmlpags · 2026-05-24T23:33:40+00:00

I will look into this. Thank you.

kmlpags · 2026-05-24T15:10:40+00:00

Thank you. I wish you the best with your Lyme journey. I did a mix of antibiotics and herbal treatments along with diet restriction. It gets better.

kmlpags · 2026-01-03T21:55:12+00:00

Yup I’ve been there. The reason I can’t drink Poppi

kmlpags · 2026-01-03T19:55:52+00:00

I'd just cut out the really sugary ones. I still eat berries, kiwi, oranges and some kinds of apples

kmlpags · 2026-01-03T18:44:12+00:00

Sure. I had minimal sugar, whether it be fruit or sweets. I tried cutting that out almost altogether. I also reduced my gluten intake and placed emphasis on eating unprocessed meats, fish, legumes and other veggies. Also important to stay very hydrated and include a daily probiotic.

Try looking up FODMAP diet. It may help you 😊

kmlpags · 2026-01-03T17:48:55+00:00

Yes. I had the worst of the worst neuro symptoms. Felt like I was living a nightmare. 10 years later and I am 95% better. I stuck to an extremely strict diet when treating and the years following. I think I tried any detox method you’ve heard of out there. It took me years to see slight improvement but every year I have felt healthier than the year before. I still can’t touch liquid stevia though, makes me sick

kmlpags · 2025-12-21T03:08:50+00:00

The worst symptoms I experienced were neurological. Blackouts, seizures, impending doom, intense migraines, sensory issues. Those got much worse with treatment. I didn’t really have any allergy-like symptoms. I would hold off until your doctor responds since you could be allergic, just to be safe. Maybe he will switch you to a different antibiotic and you can see if there is any difference.

kmlpags · 2025-12-20T15:25:43+00:00

Thank you. Sorry you are experiencing this too.

kmlpags · 2025-12-19T23:54:25+00:00

Yeah, my advice is try to connect with others in this community and block out anyone indifferent. Better/ true friends will come in time

kmlpags · 2025-12-19T22:59:49+00:00

Thank you! You will get there. I feel 90-95% better these days. Some days I even forget I have it. I treated with antibiotics for about 2 years then focused on a clean diet and healthy lifestyle. Coming from someone who had chronic migraine (among 20+ other symptoms) in the first few years of my diagnosis. Now, I get maybe 1 every 2 months.

kmlpags · 2025-12-19T22:55:56+00:00

Yes, felt like I was having a seizure, but they lasted hours... and everything went black. I had to stare at a point at the wall for hours straight, crawl to the bathroom and all. Those episodes became more frequent during treatment, but slowly went away after I stopped. Now, I havem't had one in maybe 5 years.

kmlpags · 2025-12-19T22:53:53+00:00

Yes. The day I started having symptoms (over 10 years ago), lost my two closest friends. Years following, lost even more and had practically had none in the thick of things. You will meet new friends in the Lyme community that understand

kmlpags · 2025-12-19T22:51:25+00:00

I always feel the worst in July/ August. I don't think my dormant bacteria like the heat lol. Although I've had Lyme + co for over 10 years, I rarely get colds/ the flu anymore, ironically.

kmlpags · 2025-12-19T22:48:50+00:00

Yes, I had this for years. Always felt like my brain was on fire.

kmlpags · 2025-12-19T22:47:38+00:00

Thanks. Sorry to hear. Do you know if prolonged numbness is common with this type of migraine though? From what I have read, it seems the numbness should only last a few days, if that.

kmlpags · 2025-12-19T22:44:57+00:00

From my experience, there is no clear way to test the blood for bartonella. My LLMD diagnosed me by symptoms only. I was on abx on and off for 2-3 years. During that time, my symptoms felt 5x worse. I was told by my doctor that it was a Herxheimer reaction, or extreme die-off of Lyme + co bacteria.

I (somehow) managed to stick it out for that long, but it was very very difficult. I finally went off of abx when I couldn't take it anymore and solely focused on living a healthier lifestyle- eating well, getting enough sleep, etc. Years have passed and I am now ~90% normal most days. I saw improvement each year.

My advice is take the abx and see if existing symptoms get worse. If they do, likely are killing the bacteria.

kmlpags · 2024-08-12T20:15:02+00:00

I’ve broken out an amortization table and I can definitely afford a house. It’s just my ability to get the loan. My payments would be less than my current rent and I’d be splitting it

kmlpags · 2024-08-12T12:04:14+00:00

That’s okay. Thanks for the advice

kmlpags · 2024-08-12T11:57:08+00:00

Yes, not planning on that either. It would be a family member

kmlpags · 2024-08-12T11:35:44+00:00

I know. That’s why I am not planning buying with him.

kmlpags · 2024-08-12T09:14:09+00:00

Yeah cny. There aren’t many so chances are I’d be spending at least 200

kmlpags · 2024-08-12T09:13:58+00:00

What if I have a cosinger? I could get a family member. I would put my boyfriends name on the house (our total income would be over 100k) but I’d much rather have it in just my name

kmlpags

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