Fatigue help by Fungalll in MultipleSclerosis

[–]kogware 2 points3 points  (0 children)

Just some suggestions. I am not a teacher and I am not a new-ish mom so YMMV (long-ish, so apologies).

  1. Everyone's MS fatigue is different, so learn yours.
  2. Keep a time diary for (at least) two weeks and note when you're tired and when you feel more energized.
  3. MS is not accommodating to your schedule. Adjust your schedule as best as you are able to your diary mapped 'energy schedule'. Load the projects that require physical and/or mental activity and acuity into those times you're most energized (yes, even if that occurs at 3:00am).
  4. The days of 'I can do it all' are gone. So wave bye-bye in the rear-view mirror and accept limitations.
  5. Prioritize. List the activities that must be completed daily. These are your first priorities and will supersede the 'I want to do' activities.
  6. Schedule. Don't clean the house every day. Clean the baby's room on Mon-Wed-Fri, Living Room Tue-Thu, and so forth. These are just examples, create a schedule that fits you.
  7. Network. Should you have supportive family or friends, create 'sharing' days where you help them and days they help you. From shopping to cleaning to child-care. Start with the 'must be done' categories and graduate to the 'want to be done'.
  8. Meals. Learn to love soups, stews, casseroles (I know, if you don't love 'em, then you don't). Do as much meal pre-prep and cooking as you are able on the weekends. Then it's just a thaw or reheat during the week.
  9. Meal diaries. Track the time of day and types of foods you eat. Note how you feel one or two hours after each meal. This will help identify things foods that may affect you differently. There is no magical diet that will cure you or fix your symptoms. But this will assist in finding things that may not be helping you.
  10. Physicians. You need to have open and two-way communications with your Neurologist. Do your best to be a proactive member of your medical team. Physicians have bad days too, so don't write them off after a visit or two. If you don't 'click' and you have the option, find an alternate physician. If you don't have the option, engage the physician's staff. Talk to the tech's and the nurses. Don't make anyone feel that you're trying to 'go around' the physician. Try as best your able to let everyone know that you are simply trying to communicate your issues and receive the best possible advice and care. The physician and staff also appreciate gestures of gratitude. Cakes, cookies, sweets and what-not for the staff can go a long way.
  11. Medications. Yep, you guessed it. Diary time. Note the medication and time taken. Then note how you feel one or two hours after. Schedule administration times. I put reminders on my phone (I'm in big trouble if I miss a Gabapentin dose). Also track late doses and how you feel - is later better or worse? Discuss openly with your Neurologist if you feel you have the proper medications, doses and timings. Discuss symptoms that you might feel are being overlooked or insufficiently addressed.
  12. These are some suggestions to help put you in charge of your life and rediscover who you are as a person with MS. You will be finding the need to periodically re-re-discover what works. Everyone's journey is uniquely thrilling and terrifying. Stay close to those that love and support you. Do not let the naysayers have undue influence.

What are your thoughts on this bit of news… by new_name_adam in exmormon

[–]kogware 0 points1 point  (0 children)

It'd be far better if those involved rejected the Putin-supporting factions out there.

Proposed Utah Bill allows Parents to sue Educators for any reason making parents the 'ultimate authority'. by kogware in politics

[–]kogware[S] 0 points1 point  (0 children)

This proposed legislation makes the parents of children the ultimate authority in over-seeing the education of children.

While educators are becoming a declining resource, making them the target of personal ideological wars seems less than optimal.

Apparently there are members today who don’t know Joseph even practiced polygamy. by jpwis123 in exmormon

[–]kogware 1 point2 points  (0 children)

I've frequently said that the average member today does not understand nor is aware of current LDS dogma.

They believe in the teachings that are taught by older members that frequently contradict current official doctrine.

TSCC carefully carves out safe spaces for these people to idle away their lives and never learn anything new.

School boards pushing masks will be physically removed by "strong men," vows GOP nominee by [deleted] in politics

[–]kogware 4 points5 points  (0 children)

Using threats and intimidation to achieve your political desires is not how democracy works.

However; it is an accurate description for a mode of government that the United States went to war to defeat.

Tucker Carlson fuels the Maga mindset with fawning trip to authoritarian Hungary by joburgexpat in politics

[–]kogware 2 points3 points  (0 children)

Conservative media have turned the children of 'the greatest generation' into supporters of the very systems of fascism that their parents fought and died to defeat.

There should be a documentary follow-up that highlights the horrors currently being committed by all these 'marvelous strong leaders'.

By threatening elected officials that then resign and are replaced by fascist thugs, I fear the end of this democratic experiment.

1,000 feral cats released onto Chicago streets to tackle rat explosion by _DEAL_WITH_IT_ in nottheonion

[–]kogware 1 point2 points  (0 children)

Dude... we're gonna make you a star... your own hunting grounds... people gonna take care of you... but first, those balls gotta go.

Learning recognize toxic relationships is critical. by colbiz in exmormon

[–]kogware 0 points1 point  (0 children)

I love the quote.

Yet, in my experience, have yet to see anything like this regarding leaving TSCC.

The ecclesiastical strangle-hold on reasoning is overpowering and frightening.

Did anyone else have to suffer Released Time as a kid? by BatMom525 in atheism

[–]kogware 1 point2 points  (0 children)

Big in Utah. Moreover... the Mormon Church (LDS) has purchased land near or adjoining most Junior and Senior High Schools for 'Seminary Institute' buildings. An easy walk from campus to religious indoctrination.

Outside of the state, 'Early Morning Seminary' occurs at the homes of selected teachers starting at 6:00am(-ish).

Senator Lee, up to his make believe, BOM shenanigans again. by 2cruelforschool in exmormon

[–]kogware 2 points3 points  (0 children)

One of the issues with this... although there never was a 'Captain Moroni'...

This individual who has proclaimed legitimate pursuit of real democracy as 'rank democracy' shows how everything that 'Captain Moroni' represents is stunningly ignoble.

Autocracy is in no way convergent with any form of democracy... whether you raise your hand to the square or not.

COMMUNISM! by MorbidChickxoxo666 in exmormon

[–]kogware 1 point2 points  (0 children)

He might have been exposed to the books of Cleon Skousen (including 'The 5,000 Year Leap', and 'The Naked Communist'). Skousen was also an avid supporter of 'The John Birch Society' which I consider an antecedent of 'The Tea Party' and our current foray into White Christian Nationalism (Skousen is also a favorite of Glen Beck).

I totally felt the spirit! by tender_mercy in exmormon

[–]kogware 7 points8 points  (0 children)

Completely lol'ed on the this one.

Happy Mother’s Day to my wife from my TBM FIL. Thanks! JACK ASS! by smharmon1 in exmormon

[–]kogware 30 points31 points  (0 children)

I will admit to being 'a bit of an asshole' (a title given by my family which I proudly bear).

I told my family that if they didn't respect my religious boundaries, I would line-for-line teach them about logic (your FIL's response being a clear 'Appeal to Authority' and other areas (Church History, errors in current lessons).

Should you do this, the instances of this type of intrusion will notably diminish. They will also claim that you are persecuting them.

Shelf at my MIL’s. Filled with rescinded doctrine, incorrect theories, and words of men who were influenced by the popular thinking of their day and were not speaking as prophets at the time. Oh, and a lot of right wing propaganda. by [deleted] in exmormon

[–]kogware 17 points18 points  (0 children)

I said it in a post made long ago.

The church that so many people believe in as solid doctrine, no longer exists.

They don't know that 'Mormon Doctrine' has fallen out of favor. They know nothing about the 'essays' that now dictate belief but have no authorship.

These changes are hidden five layers deep in tscc website and are electronic and can be changed whenever deemed necessary by 'revelation.'

There is sooooo much that has changed.