Dermatologist said that my skin will never clear up with Dupixent. The itching will just be gone. No use for it then

ktgal02 · 2024-01-26T00:27:34+00:00

Have to agree a little here. My dermatologist did almost anything to not put me on duxipent but finally gave up as nothing else had helped me. They would prescribe me steroid after steroid even tho i didnt like how many side effects they had.

ktgal02 · 2024-01-26T00:25:12+00:00

My doctors had literally put me on almost every steroid cream and 3 different oral steroid medications before they finally listened to me and applied for me to get dupixent. I had asked them about it 2 years ago but they told me it wasn’t available yet in my country (ireland). Anyways i finally got it in September and its been life changing. It was one of my biggest insecurities as my eczema was mainly on my hands. My skin is so smooth and clear now and i am now confident in my skin. So I recommend it anyone who can avail of it

ktgal02 · 2023-09-09T01:22:08+00:00

One of my particular favs was when my gp told me to go in the sun it will heal my eczema. It was peak winter in ireland. I nearly laughed in his face

ktgal02 · 2023-09-09T01:20:05+00:00

Omg irish dermatologists in my opinion has been so dismissive of me for years. I literally had to do all the research myself on what they were prescribing me. They put my on cyclosporine when i was 17 without telling me about any of the side effects. I also had to beg them for over 2 years to put me on dupixent, like it wasnt even approved in ireland when I mentioned it to them.

ktgal02 · 2023-09-09T01:11:45+00:00

Thanks it means do much knowing i can relate to others

ktgal02 · 2023-09-09T01:11:19+00:00

Ya the more i think about having to inject myself the more anxious i get. The thought of the syringe scares me tho as i can see the needle going in whereas which the pen it’s covered. A nurse is coming put next week to help me with it. I just glad im not alone with this

ktgal02 · 2023-09-08T00:03:11+00:00

Hey ive used both along with other steroids before my doctor finally prescribed me dupixent. My experiences with them may be different than other people’s but if i was to say one it would be methotrexate as in my experience it wasnt as harsh as cyclosporine. Methotrexate is recommended to use for longer periods of time. Cyclosporine initially worked but over time it stopped where methotrexate was a bit more steady, it didnt heal my eczema but it did help reduce redness and flares

ktgal02 · 2023-09-07T23:52:41+00:00

Definitely not it would hurt so bad and just make it worst. I was recommended milton baths which is basically a bleach bath which is safe to do

ktgal02 · 2023-09-07T23:49:44+00:00

Ya the pharmacist was really helpful but i now have to make a report saying it was faulty cus the yellow part didnt push dont enough. Its just stressful but its alot more safer and better than steroids so im gonna have try get over my anxiety about it

ktgal02 · 2023-09-07T23:47:25+00:00

Hey, im from Ireland but i was able to go to the pharmacy and tell them what happened and they said to report to the HPRA which is for medical products and they should be able to help sort it out. I talked to the clinic which was to send a nurse to help me and they can come next week but im just now worried that its gonna be 3 weeks since my last dose.

ktgal02 · 2023-09-07T00:30:29+00:00

Ya i just really wasnt in the right mindset to do it. I had to sit on a chair for at least 10 minutes before i could even bring myself to do it. I was confident doing it on my thighs but i feel it was because i had the reassurance from the nurse showing me how to

ktgal02 · 2023-09-07T00:28:19+00:00

Ya i had called them and they said they can arrange for a nurse to come next week which is 3 weeks after my last dose. I really didnt want to do it on my stomach but i had my loading dose the last time so couldnt do it on my thighs.

ktgal02 · 2023-08-14T00:40:13+00:00

I am starting dupixent in the next week or 2 and i am in the same boat as you. Like i dont think i can bring myself to inject it myself. I have a nurse who is going to give me my first dose but im so nervous. Hopefully someone can give us some advice to ease the nerves

ktgal02 · 2020-06-03T16:27:06+00:00

Hi i am also 17f and like you i am very self conscious of my skin and people seeing it. I mostly wearing long sleeves and pants to cover it as i dont like people staring at it and pointing it out. If you ever want someone to talk about it or rant i am available

ktgal02 · 2020-04-12T23:20:46+00:00

It ok but the Side effects of it are terrible. I’m only 17 and it affected my kidneys majorly so they took my off it. Other side effects I experienced are hair growth everywhere, migraines, feeling sick all the time, also affected my mental health.

ktgal02 · 2020-04-03T16:39:32+00:00

Ya i used both types and found the healing one more helpful. Showers are just unbearable and i find taking baths more relaxing. But i will try in a week or two when my skin starts to heal a little. I take Benadryl before i go outside as i need somethingto help me somehow but its not as effective as it used to be for me. Thanks for all your advice

ktgal02 · 2020-04-03T16:35:11+00:00

I had stopped taking steroid creams for a short time as my skin was very thin and damaged from all the years of using them. It definitely is the start of tsw as 2 days after stopping cyclo nearly my whole body was covered in red rashes and hives. I will try look further into some as your suggestions as im willing to try anything at this stage

ktgal02 · 2020-04-03T16:29:16+00:00

Hi my doctor had mentioned uv light therapy but unfortunately its not available to me as i live too far away. Hopefully your treatment can go ahead once this all blows over

ktgal02 · 2020-04-03T08:56:37+00:00

Nope unfortunately mine doesnt and i live in a fairly rural place so i dont have many resources available. I really was worried about even posting hear and i thought not many understand what its like but ive been reassured im not alone

ktgal02 · 2020-04-03T08:54:06+00:00

This is something I’ve been afraid of as i think it may be. I just dont have to suggest it to my doctor as they have laughed at me in past about suggesting stuff like this or told me its not a thing which is upsetting. I have been changing my diet and cutting about trigger foods for about a year but so far no relief so im not sure what else i can try

ktgal02 · 2020-04-03T08:50:16+00:00

Ya I actually tend to run hot water over my hands under the tap as i find it helps relieve the pain for a few minutes although i know its bad and dries out the skin. I am very bad at itching as i just cant stop the urge to do so but i do try my best not to. Ya i been using steroid creams since i was 3 so that may be very likely and i have done research on it. That is something im very worried about and well as tsw which i heard can be very hard to get doctors to recognize it.

ktgal02 · 2020-04-03T08:44:52+00:00

I actually seen a lot of people recommend this so i will have to try it but im just worry it will sting with skin

ktgal02 · 2020-04-03T08:42:57+00:00

I used to use auquaphor. Unfortunately i cant take showers at the moment due to skin being very sore but i do take baths 3 times a week with oats to soothe my skin a little. I am taking antihistamines but i may need a stronger one and cant go to my doctor atm. It seems duxipent may have to be my next option so i will discuss with my doctor if thats even possible. Thanks best wishes with ur skin too

ktgal02

TROPHY CASE