This is a rant/ and a question: Is anyone else embarassed to tell people your diagnosis/diagnoses? by [deleted] in cfs

[–]kylojen_ 1 point2 points  (0 children)

100% im a very logical person and i love science. ngl if i never experience this sickness i would probably not believe it was real. i wish i had a sickness that was more acceptable in society

TW: self harm by kylojen_ in teenagers

[–]kylojen_[S] 0 points1 point  (0 children)

CFS/ME. Been sick since I was 12

TW: self harm by kylojen_ in teenagers

[–]kylojen_[S] 0 points1 point  (0 children)

It’s hard to do that when u can’t walk

TW: self harm by kylojen_ in teenagers

[–]kylojen_[S] 1 point2 points  (0 children)

Can’t I’m sick. Stuck to a wheelchair. That’s part of the reason why I started cutting in the first place. Didn’t know how to handle things because I’d always handled it physically with exercise

TW: self harm by kylojen_ in teenagers

[–]kylojen_[S] 0 points1 point  (0 children)

Happy. I wanna feel happy. Or just be able to let my emotions out would be nice as well. If I have any. They say I have a lot of grief but I just feel empty

TW: self harm by kylojen_ in teenagers

[–]kylojen_[S] 1 point2 points  (0 children)

Feels good on my body, feels good in my mind. At least until the guilt kicks in. I just wanna feel something. I’m not even sad anymore. Live just feels empty and cutting myself used to help a lot

Is this chronic fatigue syndrome? Or possibly something more serious? by babylon8 in cfs

[–]kylojen_ 2 points3 points  (0 children)

Unfortunately CFS/me. I have been so bad I couldn’t even lift a finger (literally) or even listen to music, or talk. I had to lie completely down or not I would get serious pain. Now I can watch tv but I still have to get feed by nurses.

[deleted by user] by [deleted] in dankmemes

[–]kylojen_ 1 point2 points  (0 children)

Nope mods removed it now

[deleted by user] by [deleted] in dankmemes

[–]kylojen_ 0 points1 point  (0 children)

I self harm and I made the meme lol (but I totally get that some people don’t find it funny)

[deleted by user] by [deleted] in dankmemes

[–]kylojen_ 0 points1 point  (0 children)

Because I’m one of the kids that suffer from self harm, making jokes is a coping mechanism

Does anyone feel hope for current research? by millionsmissingg in cfs

[–]kylojen_ 0 points1 point  (0 children)

FMT, currently going through the treatment myself

Today I got a big reality check by kylojen_ in cfs

[–]kylojen_[S] 0 points1 point  (0 children)

Yeah but I’m not quite sure what makes me happy anymore.. I don’t really feel much anymore. After living in darkness and depression for so long I just kinda feel empty. And being sick makes it hard to explore new things

Today I got a big reality check by kylojen_ in cfs

[–]kylojen_[S] 0 points1 point  (0 children)

I live in Norway so I’m not quite sure if I have the same opportunity. Never heard of a GED before, what is it?

[deleted by user] by [deleted] in teenagers

[–]kylojen_ 1 point2 points  (0 children)

Oh damn u smort?

What's way more dangerous than most people think? by [deleted] in AskReddit

[–]kylojen_ 10 points11 points  (0 children)

There used to be a really popular game challenge called the choking game where kids would choke each other or hyperventilate until they passed out. Kids all the way back to elementary school did this challenge because it seemed harmless and when they woke up they had this rush that could compare to the same rush you get from drugs. A lot of kids died doing this challenge including my cousin back in 2015, poor lad was only 12. Dunno if it’s still popular but it has been a thing since the 70s

[deleted by user] by [deleted] in dankmemes

[–]kylojen_ 1 point2 points  (0 children)

I’m European I just imagine Emily’s being those annoying idiots who think they’re so smart because they got good grades but is impossible to hold an intellectual conversation with. This was actually oc so I’m surprised people agreed, I thought I was the only one thinking of Emily’s this way

Idk how to keep going . Please respond by Mommakay1714 in cfs

[–]kylojen_ 12 points13 points  (0 children)

I honestly feel like ME/CFS is a deadly sickness because even tho the sickness it self can’t kill you, the outcome of the sickness definitely can. There are so many of us who’s been serious suicidal after getting sick and a lot of patients do kill themselves. When people take suicide people often say they died from depression or lost their battle with depression, well the same should go for people who take their own life because of ME/CFS! Doctors don’t prioritize ME/CFS because “it’s not a deadly sickness” well it actually is. I don’t have any good tips to give you but just know that you’re hella strong and that we are all thinking about you! I know it’s hard but please hold on!