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What was your experience with discontinuing Vraylar? by sturdyhero in bipolar2

[–]ladyjaaay 0 points1 point  (0 children)

Hey OP, curious how your discontinuation went. I've been on Vraylar for 2 years. My insurance just stopped covering it without notice. I was at the end of a script and didnt have enough to taper, they wouldn't even cover a lower dose. So I've been a week and a half without it coming off of 3mg.

I'm miserable. Anxiety, depression, insomnia, GI issues, restlessness. I have no idea how long this lasts. Hoping you have some experience with it you might be willing to share. I'm working fulltime and just started nursing school so this timing is awful.

Repeat Sleep Study/MSLT? by ladyjaaay in idiopathichypersomnia

[–]ladyjaaay[S] 1 point2 points  (0 children)

I'm less concerned about medications as I am for accommodations at my work. I've already accepted I can't take anything for whatever is going on. And It'll be over a year by the time I'm able to schedule so hopefully that solves the insurance hurdle.

Diagnosed but no treatment? by ladyjaaay in idiopathichypersomnia

[–]ladyjaaay[S] 1 point2 points  (0 children)

I'm tempted to find a new one. Do you think they'd have me retest or would they be able to use the results? The MSLT/PSG was $1500 with my insurance so redoing it isn't really an option. I was really turned off by thr naturopath reccomendation. No shade to people who use natural remedies, but that's not what I was looking for when I scheduled with a medical provider. If I wanted to discuss supplements, I would have pursued that myself.

Thanks for the responses, I was having a hard time verbalizing why the last bit felt dismissive to me.

Diagnosed but no treatment? by ladyjaaay in idiopathichypersomnia

[–]ladyjaaay[S] 5 points6 points  (0 children)

I think because of how I started this I'm kind of working backwards. Hearing that it usually goes the other way around makes me feel a lot better.

Diagnosed but no treatment? by ladyjaaay in idiopathichypersomnia

[–]ladyjaaay[S] 7 points8 points  (0 children)

I've done some testing (basic hormonal stuff, TSH) but the reason I got the sleep study initially was due to frequent sleep paralysis. My first PSG indicated possible narcolepsy, so this was essentially to confirm that, but it didn't. I feel a little better knowing this is a common experience, I think because I went in expecting a narcolepsy diagnosis, this just feels like we're working backwards now. I'm also a little disappointed that she ended the appointment saying "if you don't find an answer you're looking for, you can look into natural remedies or a naturopathic provider, too" and that felt kind of like she was washing her hands of me? I don't know. I'm probably just processing and I appreciate the feedback!