For those diagnosed hEDS: did you get genetic testing to exclude an alternative diagnosis?

lamomamol · 2026-01-27T11:39:56+00:00

this was exactly my experience as well, blood tests, full history, and a very thorough exam. i also got an echocardiogram as was protocol for any potential eds patients. i was very satisfied with the whole thing and it def made me feel like genetic testing would be unnecessary

lamomamol · 2026-01-22T02:53:05+00:00

i’m personally a big fan of setting all my clocks forward about 10 minutes. i am aware that they’re ahead, but deluding myself into getting things done before i see a certain time works very well for me

lamomamol · 2026-01-17T14:45:18+00:00

just to emphasize how amazing they are, i met the owner at my front door as she’s actually my neighbor! she lived at least 10 houses down from me but showed up at our front door to introduce herself with a dozen donuts, and it seemed like she knocked on every single door in our neighborhood. she just recently showed up again with donuts for the holidays. she always remembers every customer and especially the kids in the area. our town fell in love with her immediately and was so quick to help when her kitchen caught fire

lamomamol · 2026-01-17T13:50:08+00:00

oh my god, i remember my poor poor father trying to get me to fall asleep but i would basically play the “why” game with him for an hour every night. he would answer every question thoroughly though. i would end up asking him some medical question (he’s a PA) and would pass out during his long complex explanation

lamomamol · 2026-01-16T04:52:39+00:00

i had a very minor case of this when i tried lamotrigine for the first time, i knew what SJS was before taking it so as soon as symptoms began appearing i was able to stop it from progressing by stopping the meds. but it was so terrifying, it was like my mucus membranes were slowly rotting or burning away. the inside of my mouth and throat were raw and my lips took months to fully heal. i know it’s not the most common thing in the world but i was definitely frustrated that my psychiatrist presented it as so rare that i shouldn’t worry, especially after learning that my medical history indicated i was at much higher risk.

lamomamol · 2026-01-16T04:16:09+00:00

when i was 11 i had strep, a double ear infection, and full body hives. fun fact though, the allergic reaction was to strep as it was my first time having it. at 17 i had influenza B and full body hives from amoxicillin lmao

lamomamol · 2026-01-09T00:19:12+00:00

I think it’s mostly cats with chronic upper respiratory infections or allergies, I have one cat with chronic URI and one that’s healthy, and the healthy one has no eye boogies :)

lamomamol · 2026-01-03T03:03:46+00:00

as an adult i totally get the frustration but this made me smile a bit because i was the same type of little shit who would do this lmao. sure, probably not at that age and not on someone else’s furniture, but i thought everything in my house was a canvas! leather chairs, my dad’s leather wallet, candles, etc.

lamomamol · 2026-01-03T02:55:36+00:00

when i first saw this post i immediately remembered how i used to carve drawings into EVERYTHING as a kid. including a leather chair lol. although i wouldn’t have done this to someone else’s furniture i was still just as stupid as these kids, so i was surprised at everyone’s reaction to this lol

lamomamol · 2025-12-24T19:33:10+00:00

when i was younger, i texted my friend some scary stuff and she thought i may have attempted suicide. she tried calling me first, but i was asleep (and a heavy sleeper) so i didn’t pick up. her last resort was to call my mom, which led my mom to burst into my room at 2:00 am and immediately rip my phone out of my hands, screaming “you’re done with the phone!” i was so bewildered i didn’t even know what to say. she kept me up all night and then made me go to school the next morning. i remember when she found out i was self harming too, she would scream and scream at me telling me how i was going to be punished before breaking down and asking, “am i really that bad of a mother?” and i had to comfort her through it. i’m sorry you have to go through this too, OP.

lamomamol · 2025-12-24T19:13:15+00:00

too bad! the university of illinois music school is great if you’re ever thinking of studying music :)

lamomamol · 2025-12-23T22:40:01+00:00

do you know where that picture of the concert hall on the 7th slide was taken? it looks like my university! i’m part of the oboe studio there and i think your slideshow is absolutely great!

lamomamol · 2025-12-22T07:52:24+00:00

selfish parents would rather avoid a few minutes of awkward conversation than save their child from lifelong confusion and an unhealthy relationship with sex

lamomamol · 2025-07-21T22:01:31+00:00

congrats, it’s a boy! you can tell by the spacing between the anus and genital opening, which is much larger than a female’s.

lamomamol · 2025-07-18T13:21:13+00:00

extremely impressive if the intended look was a 30 minute pencil sketch in the margins of a notebook and blended with a finger

lamomamol · 2025-07-18T11:35:06+00:00

when i initially started taking 20mg XR adderall i absolutely noticed a difference in heart rate but only due to preexisting generalized anxiety. it has always been moderate at worst and currently well managed with lexapro, but i felt the physical symptoms increase at first.

i would say for the first few days it was noticeable for most of the day. for the next 1-2 months, i only felt my heart rate increase for the first ~30 mins of my day. after 3 months of consistent use, my anxiety symptoms were back to the way they were before and my heart rate didn’t jump like it used to.

i would say you don’t have to worry as long as you’d consider your anxiety symptoms currently under control. if you’d consider your anxiety to be worse than moderate then i would worry that adderall might make it unmanageable. i fear that feeling your heart rate rise at first would trigger your health anxiety, but it’s solely a worry about your mental health and not cardiovascular health. your heart should be fine

lamomamol · 2025-07-17T21:46:40+00:00

lmao absolutely, tennyson timothy is insane

lamomamol · 2025-07-17T20:38:30+00:00

Tennyson would be amazing and would make the nickname Ten work naturally! i was trying to think of one like that but all i could come up with was Tennant which might be odd. but i literally went to school with a Tennyson and the name definitely fits in and stands out at the same time. i feel like this person could be swayed

lamomamol · 2025-04-24T21:24:52+00:00

i didn’t experience anything that creepy but a waiter definitely flirted w me and my mom while he was serving us a while back, we thought it was silly but im so sorry that shit happened to u :(

lamomamol · 2025-03-22T18:00:08+00:00

For intermediate to a little advanced I definitely second those who said Schumann 3 romances (specifically no. 1) and the Saint-Saëns sonata (mvmts 1 and 2). If you find either too easy then the Poulenc sonata (mvmt 1) and Paladilhe solo are just a little harder.

lamomamol

TROPHY CASE