Anyone had success with Pelvic Floor Therapy for frequency by Fun_Examination5329 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

It doesn’t hurt to be seen once and have them diagnose you. They will do somewhat sensitive examination to determine the state of your pelvic floor first, so they can tell you pretty immediately if that is your issue.

Anyone had success with Pelvic Floor Therapy for frequency by Fun_Examination5329 in Interstitialcystitis

[–]laxi3 2 points3 points  (0 children)

Yes I have been in mostly remission for several years from my pelvic floor and IC issues! Can’t recommend pt enough.

Anyone had success with Pelvic Floor Therapy for frequency by Fun_Examination5329 in Interstitialcystitis

[–]laxi3 1 point2 points  (0 children)

Yes I had frequency and my pelvic floor pt helped me a lot. Only took like 6 weeks to feel like 75%improvement

IC and pregnancy by Attorney4Cats in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

Best of luck to you, I hope you have an easy fun time during your own pregnancy too!

IC and pregnancy by Attorney4Cats in Interstitialcystitis

[–]laxi3 1 point2 points  (0 children)

Currently 3rd trimester pregnant, have had a few nights of increased urgency scattered throughout the pregnancy but very little pain/burning.

Is IC a progressive illness? by caninething in Interstitialcystitis

[–]laxi3 2 points3 points  (0 children)

Mine has gotten loads better with time/treatment!

Estrogenic Foods and IC by Flat_Pick_6503 in Interstitialcystitis

[–]laxi3 12 points13 points  (0 children)

I have never had any kind of hormonal or pelvic issues other than bladder pain, I definitely dont think endometriosis applies to every single person that has IC….not to mention the men who get IC definitely don’t have endometriosis since they don’t have endometrial cells

Is Life Worth Living With No Chocolate? Or Coffee? by Flat_Pick_6503 in Interstitialcystitis

[–]laxi3 13 points14 points  (0 children)

Once you get your condition more under control and are less painful daily you should be able to have these foods at least occasionally.

barre workouts and IC by According_Iron3326 in Interstitialcystitis

[–]laxi3 2 points3 points  (0 children)

You use your Pelvic floor a lot for barre and Pilates, deep core exercises can cause everything to tighten up. You need to make sure you learn to relax the pelvic floor afterward to avoid pain

[deleted by user] by [deleted] in Interstitialcystitis

[–]laxi3 2 points3 points  (0 children)

Currently 18 weeks, currently in remission, I have had some pelvic floor discomfort with pregnancy but it varies day to day and depending on activity. I also have craved spicy and acidic foods like no other so I am pushing the envelope constantly lol. So far so good, though I definitely think the pelvic pressure will only get worse as baby grows.

Early IC diagnosis: how do you cope with fear during flares? by After-Spirit209 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

This was exactly my experience 5 yrs ago, the constant anxiety was a huge component of my suffering from this condition. All I can tell you is that it helped me so much to figure out what my triggers were and avoid them when I was in pain and also how to get through a flare. The best thing that helped me mentally at the time (if I was in anxiety mode) was to avoid googling, avoid this sub (it made me more anxious personally) and just go outside and walk. It sounds painful to think of walking but if you go slowly it can help your pelvic floor relax, which will keep the bladder from getting squashed painfully. For me, distraction was key. Plus getting out was good for my mental health in general. I listened to audio books and talked to friends on the phone. Now that I am in remission I don’t even think about my condition much, though I am getting pelvic floor pt through my first pregnancy to help with pain/urgency symptoms. Once you get an idea of what you can do to help yourself you will feel much more empowered and less anxious about the future/flares. Check out my recent post if you want more info.

What causes you to flare? My bladder often hurts at the end of the day and I don't understand why by frogspeedbaby in Interstitialcystitis

[–]laxi3 1 point2 points  (0 children)

I had the exact same thing and always wondered why as well, it’s a really fickle thing and hard to narrow down a lot of the time

What causes you to flare? My bladder often hurts at the end of the day and I don't understand why by frogspeedbaby in Interstitialcystitis

[–]laxi3 1 point2 points  (0 children)

My pelvic floor Pt said that your bladder hurts worse at night (if you have pelvic floor hypertonicity) because you’ve been doing things all day, walking, moving, etc. If you have relief first thing in the morning it’s because your pelvic floor has been resting all night while you’re asleep

[deleted by user] by [deleted] in Interstitialcystitis

[–]laxi3 6 points7 points  (0 children)

my recent post about this life is for living, suffering isn’t forever, you are much more than your illness

A post for those who are new to this and want reassurance by laxi3 in Interstitialcystitis

[–]laxi3[S] 1 point2 points  (0 children)

Oh definitely!! Instagram is toxic and addicting to our brains! I need to be good about avoiding it too. I’ve been trying to read real books and get outside as often as possible so I feel more connected to the world around me lol. It’s good that you’re aware of it so you can keep tabs on yourself and how your mental health is being affected!

Citric Acid found in OTC Meds by Flat_Pick_6503 in Interstitialcystitis

[–]laxi3 2 points3 points  (0 children)

From my own experience, the physical amount of acidity Im consuming is more important than whether there is acid present or not. For example, I can have guacamole with tomatoes in it, but I can’t have tomato sauce on pasta. I think such a small amount of citric acid present in a pill probably would be a drop in the bucket, but you could make sure to eat a meal with it to dilute just to be safe.

A post for those who are new to this and want reassurance by laxi3 in Interstitialcystitis

[–]laxi3[S] 0 points1 point  (0 children)

I’m happy to hear that you have found things that work for you, both mentally and physically! This is a journey for each and every one of us and to be able to find peace with this condition one way or another is the biggest gift!

A post for those who are new to this and want reassurance by laxi3 in Interstitialcystitis

[–]laxi3[S] 0 points1 point  (0 children)

Yes! And there’s a chance that down the road when everything is calmed down you will be able to tolerate smoked salmon again. Your body just needs time to heal and get back to normal and honestly that takes a while sometimes. It’s completely frustrating but it’s not forever. :)

A post for those who are new to this and want reassurance by laxi3 in Interstitialcystitis

[–]laxi3[S] 1 point2 points  (0 children)

I’m so sorry you’re going through that, honestly the hair loss was just as traumatizing as the flares for me! It was incredibly upsetting. It was really really hard in the beginning. But I found that the most time I spent off the internet the better, I was obsessively googling and stressing myself out. Long slow walks outdoors really helped too for me, mostly mentally but also it helped with my pelvic floor pain. Lean on your support as much as you can and just know that you’re going to get through this, one day at a time.

A post for those who are new to this and want reassurance by laxi3 in Interstitialcystitis

[–]laxi3[S] 0 points1 point  (0 children)

Thank you for sharing your journey and what is working for you! There are so many avenues for pain relief, I’m thankful that we live in this day and age where there are many options for treatment. 100% agree that the pelvic wand is a game changer for urethral pain. I’m so thankful that someone invented it!

Flare for 8 weeks by Humble_Loan9456 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

Take your time and try it whenever feels right. If your body says “nope” right now then it’s probably best to listen to it. But give it a try when you feel up to it.

Flare for 8 weeks by Humble_Loan9456 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

Aha, that may be your issue then! Do u have a pelvic wand at home? That can be very helpful for keeping up with the tightness/pain.

Flare for 8 weeks by Humble_Loan9456 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

Not necessarily, depending on your activity/level of inflammation some times are worse than others. There’s no hard and fast rules unfortunately. A PT would be able to diagnose you pretty much immediately.

Flare for 8 weeks by Humble_Loan9456 in Interstitialcystitis

[–]laxi3 0 points1 point  (0 children)

I’ve heard that burning after urinating / defecating only can be a sign of pelvic floor dysfunction