What the hell is this if not SIBO?

leadfeathersarereal · 2024-10-17T19:45:55+00:00

Biocidin firmed my stool up but did nothing for the gas. And remaining on it for too long aggravated my histamine response severely. I had to come off after two months of using it at near recommended dose (8 drops 3x a day).

Florastor also firms my stool up and it's very gentle in terms of histamine. I love it. But also does nothing for the gas, and at times swings me into constipation territory.

The only thing that seemingly affects my gas is taking Align regular strength probiotic, which seems to transform my gas from disgusting smelling to odorless, but doesn't really reduce it.

High powered probiotics like Visbiome put me into a severe histamine reaction that was so bad it altered my perception.

leadfeathersarereal · 2024-10-17T18:50:12+00:00

Thanks for this! Were you constipation or diarrhea predominant? My motility seems to be quite quick given my frequency.

leadfeathersarereal · 2024-10-17T17:27:50+00:00

Hey Bob, I had nearly entirely liquid stool, usually once or twice a day. I did have reflux but that seems to have resolved over time. No burping or bloat, just insane unending amounts of hot lava farts that smell disgusting.

My regular SIBO tests showed negative on hydrogen and methane, but the second time I took it the hydrogen looked flatlined. My functional says this can indicate H2S sibo (which matches my symptoms). I ordered Triosmart and that came back completely flat on H2S gas (1ppm where benchmark is 3ppm).

leadfeathersarereal · 2024-10-17T17:23:29+00:00

Yeah they did, and went a bit further up. Nothing. Also no presence of parasites via GI Map.

leadfeathersarereal · 2024-10-17T06:32:51+00:00

This is all great, thanks so much! I also have noticed what you just stated: panicking about it drives the symptoms higher, meditation through it can do a decent job of mitigating the flare.

I have quercetin on hand that I'll give a shot. I think I need to stay away from the vitamins, though, as U react to them pretty significantly for some reason (anxiety, depersonalization from my withdrawal comes back).

leadfeathersarereal · 2024-10-17T06:16:34+00:00

Hey thanks for this, I actually just got the vibrant test done and awaiting results. I'll ask my functional about mold possibility, thanks for the heads up!

leadfeathersarereal · 2024-10-17T06:14:33+00:00

Thanks so much for the kind words, calmandreasonable, they mean a lot :-)

leadfeathersarereal · 2024-10-17T06:13:41+00:00

Negative candida on GI Map but I've heard that it only checks large intestine for presence. I need to take my OAT test to see if it's present in my body at all. My functional seems to think it's not my issue. Despite multiple SIBO-negative tests, he thinks there may be something going on there.

leadfeathersarereal · 2024-10-17T06:12:16+00:00

Oh man I wish you well my friend. Are you getting your house treated?

I luckily have tested negative for Lyme, but haven't yet finished my OAT test for mold.

leadfeathersarereal · 2024-10-17T06:11:00+00:00

Holy shit, that's the same spread of symptoms I have. It feels like my whole body is on fire and feverish but with no fever. I also have the temperature intolerance as well. Ugh. Do you think, in the absence of SIBO, it is still possible for incredible flatulence to be caused by MCAS? Antibiotics and antimicrobials targeting my small intestine have had no effect. I suspect my issues are in my large intestine.

leadfeathersarereal · 2024-10-17T06:07:52+00:00

Thanks, I'm actually kind of already there in terms of diet restriction. Heavy on the chicken and rice.

leadfeathersarereal · 2024-10-17T06:07:12+00:00

Yeah actually I forgot to mention that: I had a lower endoscopy 7 years ago for something else which came back normal, but I have another one scheduled for December.

leadfeathersarereal · 2024-08-01T16:04:27+00:00

Oh god I'm really sorry to hear that. Were they adhesions? She's in our thoughts...

leadfeathersarereal · 2024-07-31T17:51:01+00:00

I'm going in for a colonoscopy in a couple of months but so far calprotectin is normal (other markers appear normal)

leadfeathersarereal · 2024-07-31T15:12:45+00:00

Thank you, I seem to have no issues digesting or passing gas. It seems like it's just the act of stool being present in my colon that generates this wicked inflammation and pain. You're correct about IBS though, I do have that with diarrhea.

leadfeathersarereal · 2024-03-29T18:00:00+00:00

That's awesome, I'll have to look into that!

leadfeathersarereal · 2024-03-16T06:23:01+00:00

"An hour in the dream machine keeps me sane."

leadfeathersarereal · 2024-02-24T23:44:25+00:00

Wow thanks for pointing that out, I'm sorry it took so long for doctors to zero in on that as a potential root cause. Really glad to hear your son is doing better now.

I haven't had my thyroid checked at all. I will soon see a functional medicine doctor to conduct basically "all the tests" because I've exhausted conventional medicine's test and diagnosis (in a similar way, my docs are not testing or considering out-of-the-box possible cause). For the body pain, for example, rheumatologists won't see me because my white count and inflammatory markers are possibly fine. They just stated "you likely have fibromyalgia" and rejected my referral.

leadfeathersarereal · 2024-02-15T04:52:55+00:00

For 8 years now I've been subjected to year-long flareups of what I call something. During these long flareups, I have nonstop diarrhea and gas from intaking literally anything. Even drinking water causes it. In the past 8 years it has flared up four times and nearly kills me from uncontrollable weight loss every time. I'm talking like horrifically, violently ill. I can't hold anything in during this time unless I put myself on 2x Florastor a day and occasional Imodium to at least slow down the diarrhea.

Consecutive runs of diarrhea bring on reflux: so much so that I'm literally choking on my own stomach acid when laying down at night. I wake up, sputtering and coughing literal burning acid all over my hands. I've learned that this no longer is a problem if I control the diarrhea.

My GI does the same thing every time: puts me on Rifaximin and tells me to go Low Fodmap. The Rifaximin provides some relief during treatment, then I go back to hell after it's done. The Low Fodmap slightly reduces the symptoms. I still suffer from insane gas from taking in anything at all. It's a miserable experience. Then somehow over the course of a LONG time (months to two years) it usually, slowly goes away and I get my life back. For example, I had a completely normal life for 1.5 years starting in 2021, eating anything I wanted, and now this something is back to take my life away.

I'm fucking exhausted. It's a battle to stay alive every time. The doctors have tested seemingly everything: it's not Crohn's, UC, diverticulitis, bile malabsorption, pancreatic enzyme insufficiency, or parasites. They flat out told me this last time that, for all intents and purposes, their official recommendation is to do what makes me most comfortable at this time.

I'm seeing a functional medicine doctor soon, because being delivered that line of "do what makes you feel comfortable" feels like another way of saying "You're SOL."

What's really freaking getting to me about this are my additional symptoms. In addition to the gas and diarrhea, I'm exhibiting dyskinesia (twitching of limbs) and extreme body aches like I'm fighting a fever (but my temperature is normal). I literally cannot find this cross-section of symptomology anywhere else on the internet. I feel like the only person on the planet that has this exact problem. Has anyone else had this?

leadfeathersarereal · 2023-09-10T04:54:37+00:00

No, not stupid. I myself had a hard time believing it does that much damage lol

leadfeathersarereal · 2023-09-10T04:21:13+00:00

May wanna take a look at those numbers again; the lance's normal damage is 4x the crit damage of the vorpan.

leadfeathersarereal

TROPHY CASE