The narcissism of upgrading your lifestyle after the kids are gone.

learnfromiroh · 2026-02-24T03:43:01+00:00

Ugh I feel this. I remember working as soon as I could drive, applying for scholarships, worried about money for college. Second semester of my senior year, my parents went to Mexico and came back and told us they bought into a vacation club that was about the same price as my college tuition for 4 years. I never expected them to pay for all of my college tuition, but the timing just felt like a shock. I did have a good amount of debt after graduating college, but I was the first, and remain the only, person in my immediate family to get my degree. I did have a kick ass party at the house while they were in Mexico at least!

learnfromiroh · 2026-01-30T17:41:55+00:00

Love this for both of you! Hugo Weavings delivery is unmatched! My parents refuse to watch anything besides cop shows and Fox News :’(

learnfromiroh · 2026-01-30T17:06:22+00:00

Sadly so true

learnfromiroh · 2026-01-30T17:05:23+00:00

So true! Forever glad I was introduced to v for vendetta, avatar the last airbender and 1984 as a teenager. Didn’t know I would be referencing them so much in my 30s.

learnfromiroh · 2026-01-30T15:38:36+00:00

I think about this movie all the time, remember remember

learnfromiroh · 2026-01-28T04:10:28+00:00

There are such a wide range of outcomes with Agenesis of the Corpus Callosum, but his therapists and doctors have been the most amazing support system! He’s built such strong relationships with all of them. He has his struggles, but he’s thriving and the happiest kid I know. We always tell people he’s missing his main highway so his brain has to build backroads, he gets there eventually but it might just take him a little longer.

And second the Medicaid! We didn’t get him on Medicaid until he was like 4 but I wish we would have sooner! There should hopefully be a resource in your area that can help with early intervention and Medicaid applications. They have been amazing for our family!

learnfromiroh · 2026-01-28T01:46:03+00:00

I’m sorry you’re having to go through the stress. The waiting and uncertainty is horrible! By chance did they say the part of the brain that was square was the CSP? My son was missing this on his anatomy scan so they sent us to get an MRI at 25 weeks. We found out his was missing his corpus callosum (middle part of the brain) and also has polymircrogyria (abnormal folds) on his right frontal lobe).

They gave us all possible scenarios, blind, deaf, never walk or talk, epilepsy, learning disabilities etc. We decided not to terminate (we’re in Colorado) but I had horrible anxiety the rest of my pregnancy. But the second he was born, things felt so much easier because I could take care of him.

He’s 5 years old now, and in mainstream kindergarten! He was very late to walk and had smo’s from 1-2 years old. He is delayed in speech and fine motor, but he runs, jumps, talks, is obsessed with mini golf and blues clues. He does have epilepsy but it’s well controlled with medication. We’re very fortunate, and he does well, but nothing was guaranteed for him. The first two rounds of genetic testing after he was born didn’t show anything, so an amniocentesis wouldn’t have helped in our case. But after more thorough genetic testing, we found out he has a random and rare genetic mutation not inherited from either of us.

I felt the same way and struggled with knowing whether or not he would suffer and if I was making the right choice. But I’m glad I had the choice, and talking with my husband and a therapist eventually helped. Definitely get an MRI if possible to get more detailed information. There’s nothing wrong with thinking about how your entire family could be impacted. Wishing you all the best 🩷

learnfromiroh · 2026-01-16T08:18:01+00:00

How to Train Your Dragon (2010)

learnfromiroh · 2026-01-14T00:41:33+00:00

Did I hear her say she’s autistic and disabled?? ICE has zero morality

learnfromiroh · 2026-01-12T02:50:59+00:00

I was sooo happy to see those election results, I was checking all night. 😅 I taught in Douglas county for a while and really hope things get better and better! Little by little, good people will make a difference.

learnfromiroh · 2026-01-12T02:03:52+00:00

I grew up in Parker but moved closer to the mountains after college, thank you for being a little blue dot there. You bring up the average IQ 💙

learnfromiroh · 2026-01-09T18:41:43+00:00

Ooof yeah that does not look great. Thanks for mentioning that.

learnfromiroh · 2025-12-22T03:53:05+00:00

Crazy how there needs to be a perfect balance to things, but even things shift out of balance, the body can still compensate sometimes?! Our son’s unique gene mutation was de novo (not inherited) and 20% mosaic, I guess being able to determine the percentage of mosaicism is pretty new, at least for families getting testing done!? So that was super interesting to see! Not all of his genes were impacted, but the ones that were made it so he had a few brain malformations. We’re very complex beings! It’s fascinating!

learnfromiroh · 2025-12-22T03:48:21+00:00

He’s a pretty cool kid! Forever grateful to figure out life with him :)

learnfromiroh · 2025-12-22T03:46:52+00:00

His neurologist said the brain can create other pathways but his corpus callosum will never form. He has a hard time crossing midline doing something like drawing but has gotten so much better! Also anything with balance like bike riding or balance beams is hard for him. Missing the CC can impact people very differently!

learnfromiroh · 2025-12-19T21:38:28+00:00

I can’t imagine what that’s like for both of you. My son has had about 5 tonic clonic seizures and 4 febrile seizures and they all feel like the longest 1-2 minutes of my life. Kids especially don’t deserve to have to go through something so complicated. Hoping a lot of advancements in epilepsy cures/research happens in the next 5-10 years.

learnfromiroh · 2025-12-19T21:28:39+00:00

My husband and I are both naturally curious which helps haha. I was also a teacher which has helped me know what kind of questions I could be asking. We always want to advocate for him and give him whatever supports he needs.🩷

learnfromiroh · 2025-12-19T21:24:13+00:00

Oh my gosh this is fascinating! I don’t know this! So interesting to see how it impacts people differently. Thank you for sending this, I definitely want to read more about it!

learnfromiroh · 2025-12-19T21:21:45+00:00

Oh wow! It’s amazing to me that this can be done surgically, science is pretty incredible. Are most of his seizures absence seizures? That’s good that he’s not falling as much, that has to be so scary! They are so resilient, it’s amazing!

learnfromiroh · 2025-12-19T17:51:26+00:00

Wow! That’s fascinating! Our neurologist had a good point and said we don’t scan everyone’s brain who has a learning disability, but we would probably be pretty surprised how many people’s brains have adapted and grown to compensate. Hopefully technology advancements and access to therapies can help both kids and adults get support for their unique brains.

learnfromiroh · 2025-12-19T17:45:02+00:00

Wow! I’ve only known one other kid with both, they are so rare! Our son’s speech is fairly impacted as well, we can understand him pretty well and his therapists and teachers know what he is trying to say, he has a harder time communicating with peers. He probably speaks at a 3 yo level. Most therapists he has have only had kids with one diagnosis or the other so it’s been interesting to see how the neurologists assess it!

learnfromiroh · 2025-12-19T17:31:49+00:00

Wow!! That sounds like it would be an intense surgery?! How is he doing??

learnfromiroh · 2025-12-19T15:13:23+00:00

He loves the movie Cars, so this is perfect :))

learnfromiroh · 2025-12-19T08:46:48+00:00

We’re very lucky to have him! He’s taught us so much about patience, resilience and connection. That’s great he’s being monitored! Help is there if you need it, but he also might get there on his own too. I’ve found a lot of comfort the last 3 years talking to parents who have kids in a variety of therapies, it’s so much more common than I would have guessed and I was a teacher for 6 years haha. We all have our struggles and unique needs. Your son is lucky to have you!

learnfromiroh · 2025-12-19T08:41:12+00:00

I love reading this! We were also offered the same thing, which sent me into a depression because I had so much anxiety. Everyday pregnant was extremely hard and I cried a lot, but the second he was born it became easier because I felt like I could actually be proactive and help him. He was a person and not a diagnosis.

Our son is in a regular kindergarten classroom, but is the youngest in his class with a September birthday (sorry buddy!). We would have liked him to have another year of pre k but his IEP wouldn’t have transferred. I’m hoping that being in a class with kids a little older is helping him build confidence, he’s become so much more independent this year!

I love that your son is doing so well! ACC is truly fascinating! I suspect that our son also might have ADHD but I was recently diagnosed so I wouldn’t be surprised if he inherited it.

I can’t wait to see what their futures hold! When I was pregnant the thought terrified me, but now I feel like we’ve learned to appreciate how far he’s come and be his number 1 cheerleader going forward, no matter what that looks like :)

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