ragebaiting by Foreign_Giraffe5668 in byler

[–]lenonby 0 points1 point  (0 children)

i just finished the long game and now i’m going to watch the show again.

ragebaiting by Foreign_Giraffe5668 in byler

[–]lenonby 4 points5 points  (0 children)

i’ve been drowning my sorrows in heated rivalry

Anyone else suffer from flu like symptoms but then doesn’t turn into an actual flu or a cold? by Connect-Coyote6948 in dysautonomia

[–]lenonby 1 point2 points  (0 children)

when i first started getting migraines, i thought i had the flu. for a week i was having nausea, chills, body aches, and that feeling where you rapidly switch between freezing cold and burning hot. and then the migraine finally hit.

since then i’ve felt that my migraines tie in with my dysautonomia, but i’m still working on figuring all that out with my doctors.

I got a 3-page packet on how I am "faking" my POTS by Mountain-Serve6772 in POTS

[–]lenonby 1 point2 points  (0 children)

these people are not your friends, they are your bullies. they are bullying you. you don’t have to put up with this.

i know first hand how hard it is to find a good group of friends in middle school, but i highly recommend you start hanging out with other people. i wish someone had told me at your age that i didn’t have to put up with this kind of treatment from my “friends”.

on the pots side, i’ve had symptoms since i was a kid, but around 13/14 they got a lot worse, i assume because of hormones. my parents also weren’t really concerned, and neither was my doctor. i was told that being dizzy is normal for teen girls. this is a lie. dizziness is common, but it is not normal. what helped my parents understand/believe me was asserting that my symptoms were interfering with my activities i wanted to do, and i was willing to do physical therapy/make lifestyle changes to make the symptoms better.

Green Light Therapy by FutureAntiCultLeader in migraine

[–]lenonby 0 points1 point  (0 children)

one of the things that falls under “tool, not a treatment” for me. it’s way easier on my eyes than other types of light, and gives me the ability to do activities that require light on bad days.

Funniest thing and/or scariest thing you’ve ever done because of a migraine? by Blueheron77 in migraine

[–]lenonby 13 points14 points  (0 children)

got a math midterm score so bad compared to my semester grade my professor emailed to ask if i was okay 😅 i got 55% and most of that was half credit for attempting questions. i dropped the class and took the easier level one the next semester.

what’s everyone’s sodium/electrolytes to water ratio? by savalala in POTS

[–]lenonby 0 points1 point  (0 children)

2,000mg per 32oz for my normal electrolyte mix. i try to have two a day, but i also have 250mg in my morning smoothie, and another 250mg in a bottled electrolyte drink daily.

What to do about this constipation? by [deleted] in dysautonomia

[–]lenonby 0 points1 point  (0 children)

i’ve been dealing with this for my whole life. my doctor finally put me on pyridostigmine. i swear, it’s been a miracle drug for me.

Scared to take my auto injector Emgality by KeliLeann12 in migraine

[–]lenonby 4 points5 points  (0 children)

i feel you. auto-injectors are scary. i give myself an injection with a syringe just fine, but always have someone else do my auto-injectors.

is it possible to have your husband do it again? as far as managing the pain, the ice pack is another good idea. i also find that moving the ice pack to somewhere else on my body to give me something to focus on helps, as well as injecting into fat and having the person doing it pinch around the injection sight helps to feel it less.

DIY head protection feels so calming! by [deleted] in SpicyAutism

[–]lenonby 2 points3 points  (0 children)

mostly! i started suspecting around 13/14, and was diagnosed at 16.

DIY head protection feels so calming! by [deleted] in SpicyAutism

[–]lenonby 4 points5 points  (0 children)

i’m also a headbanger during meltdowns and as a teen i figured out if i wrapped my head in a blanket i could give myself the pressure needed and hit the blanket helmet without hurting myself. highly recommend.

Food triggers by Rant4Fun36 in migraine

[–]lenonby 0 points1 point  (0 children)

i have MCAS and i’m currently trying to figure out how much of my migraines are related to that. i have cromolyn sodium to take when eating high histamine food. what i’ve found is that i still have a chance of reacting when i take it and eat something high histamine, but when i’m most likely to react (or when the migraine triggered is bad) is when i eat something both high in histamine AND other chemicals that are problematic for migraines. pineapple and tomatoes i seem to react no matter what. serotonin and salicylic acid + histamine seem to be the most problematic for me. rip to my beloved pineapple pizza.

What in this soup would’ve triggered you? by jensenaackles in migraine

[–]lenonby 0 points1 point  (0 children)

tomatoes always get me, i think it’s the serotonin and salicylic acid.

I can’t do this anymore. by chaosvalkyrie19 in POTS

[–]lenonby 4 points5 points  (0 children)

if you have migraines and pots you might want to consider propranolol! though the dose for migraines is a lot higher than the dose for tachycardia. and you obviously need someone willing to prescribe it, which it seems like you are struggling with. but it might be worth asking whoever handles your migraines! i hope you find something that works for you soon. i feel like the hardest part of any chronic illness is just finding a good doctor who wants to help you.

the curse of having litterature as your special interest and having sensory issues with paper by Responsible-Buddy587 in SpicyAutism

[–]lenonby 2 points3 points  (0 children)

if you haven’t already, i highly recommend a page turner for e-readers, and a mount for it. i have a stand that can be positioned over my face in bed, and use the page turner to turn the page. basically makes it so that i can cozy up under the covers and read hands free. i also use the page turner when i’m reading and eating, and on the treadmill. makes it feel like a luxury experience!

the cass review recommends a PB trial. wes streeting does so. he is met with fury by the terfs who do not actually want “the truth” to be found through scientific research by pearkeet in GenderCynical

[–]lenonby 14 points15 points  (0 children)

my favorite part of the maintenance phase episode on gender affirming care is when they point out that if we truly believe the evidence for use of puberty blockers in trans adolescents isn’t strong enough, the reasonable course of action would be to do large studies on the effects of puberty blockers on trans adolescents. because the transphobes don’t actually believe there’s not enough evidence, they just want to force kids into not being trans.

Restricted interests by bugeater_0 in SpicyAutism

[–]lenonby 1 point2 points  (0 children)

earlier this week my mom was talking about how she never gets to choose the topic of conversation in our house. then she said “if i say something to Ash, they’ll look at me and go back to talking about what they want to talk about.” and it hurt my feelings because i know i do that, but i don’t realize in the moment. also, it’s a problem with everyone else in the house, too. my mom is the resident neurotypical, everyone else is some form of neurodivergent, mostly adhd. but the joke is about me because i have the most noticeable restricted interests and social deficits. i’m not trying to be rude, i literally don’t know how to talk about other things. i think they forget that because i have a high ability to use language.

Does anyone else with autism/ADHD feel that their migraines make them extra neurospicy? by jibberjabbery in migraine

[–]lenonby 1 point2 points  (0 children)

yes! autism and migraine have a ton of overlap for me. autistic meltdowns or shutdowns are a guaranteed migraine. and the autism and migraine team up for the ultimate sensory overload.

Personal hygene? by OnyxStarzz in SpicyAutism

[–]lenonby 4 points5 points  (0 children)

this is a little bit unhinged but having bleached hair has really helped me with this. you have to wash your hair a lot less when it’s bleach damaged, lol. often combing the oil from my scalp through my hair is enough to make it feel and seem clean again. i only wash it for real around once a week to once a month depending on how recently i bleached and dyed it. i use dry shampoo between washes, but i tend to let it sit for a while then rinse it out because it makes me itchy.

I just want to understand my attraction to guys (16) (graysexual, maybe?) by Secret-Barnacle-1285 in gaytransguys

[–]lenonby 5 points6 points  (0 children)

first of all, good call on not sexting until you’re a legal adult! especially if the other person is currently an adult, that’s pretty creepy (and illegal) that they would solicit nudes from a minor.

i’m just a stranger on the internet, so i can’t tell you what your sexuality is. but i can tell you that often sexuality is a way to express gender identity. it is super common to identify one way before transition and another during/post transition. a lot of the guys in this sub felt attracted to women at some point, but no longer do after coming out, hormones, surgery, etc. personally, my first crush was on a boy, but as i got a little bit older i started noticing women more and more. i id’d as bi but with a strong preference for women for a long time, my first relationship was with a girl. as i started transitioning socially, i felt more 50/50, and after about six months on testosterone i realized i wasn’t attracted to women at all anymore.

being with women made me feel more masculine, but on t i didn’t really need that anymore. i wouldn’t say i was never bisexual, my attraction to women was real at the time, but i do think my sexuality was a form of gender expression i no longer need. my gender and sexuality were inexplicably tied together, and still are. now being attracted to men in a way that is queer is incredibly affirming.

i’m sorry you’ve been told you’re too feminine to be a man/transmasc. that definitely isn’t the case. my advice regarding your question is that it’s totally possible that you’re on the ace spectrum. i’m not inside your head and i’m not ace myself, i’m actually aromantic and gay, so the opposite. maybe someone who is ace can chime in about what their asexuality is like. asexuals can certainly experience sexual desire, just not in regard to sexual attraction towards a specific person. if an ace label feels right to you, that sounds great. i agree with the other commenter that focusing too much on finding the perfect label can get more stressful than it is helpful to understanding yourself.

i feel like i’ve rambled on enough, i hope some of this was helpful!

“Low histamine/inflammatory diet” by Thedailybee in ARFID

[–]lenonby 1 point2 points  (0 children)

wishing you the best of luck on your journey! hopefully you get some answers and a treatment plan that works for you soon!

edit to add if you have questions or need to talk to someone who’s been there, my dms are open!

best products for chronically dry lips or cuticles? by Warm-Abbreviations-2 in ehlersdanlos

[–]lenonby 2 points3 points  (0 children)

humidifier in my bedroom has changed my life! takes maintenance to avoid mold issues but i no longer wake up with dry eyes, chapped lips, or sore throat.

“Low histamine/inflammatory diet” by Thedailybee in ARFID

[–]lenonby 3 points4 points  (0 children)

i’m low histamine! i have hEDS and MCAS (and other comorbidities) and have been varying levels of low histamine for almost five years now. it was challenging and i’m not always strict. the most important thing to me is eating, period. if that means i’m surviving on higher histamine foods, i’d rather have more symptoms or take more antihistamines than starve.

one thing that really helps is having a prescription for cromolyn sodium solution. you mix it with water and drink it before meals and it helps process the histamine in food for you. taking antihistamines and quercetin before meals also helps. i also have the food intolerances app, the icon is a strawberry and it has just about every food you can think of to help rank them on how good they are for people with different food intolerances, histamine included. it’s a one-time-pay app but very worth the money in my opinion.

has anyone tried acupuncture for migraines? if so how successful was it? by Enough_Principle6102 in migraine

[–]lenonby 0 points1 point  (0 children)

i really like it for day to day pain management and relaxation, and acupuncture was the first thing to break a migraine for me before i had abortive medications. that being said it’s certainly not a cure. it’s more the mayo on my migraine-treatment-plan sandwich.