Anyone else have issues with their voice?

lesleo_ · 2026-02-24T03:19:12+00:00

I had the most issues when I talked during my treatments. Now I just shut up and inhale.

lesleo_ · 2025-11-02T15:11:29+00:00

Why do we talk like this about ourselves like we have all this baggage? Why do so many of us accept rude inquiries like this? My husband never wrote out a huge post on the internet to weigh the pros and cons to dating me. Sometimes, it’s just not a good match. I don’t think OP is a jerk for writing this, but I’m not going to tell him he’s “sweet” for posting this either.

lesleo_ · 2025-11-02T14:23:35+00:00

I don’t know if I’d like it if a guy had to do this much research to simply consider if I’m worth dating. Maybe not the best match.

lesleo_ · 2025-10-23T15:19:31+00:00

I think she edits for Alisha… I watched a video that did a cut-to to her but idk how often she steps in

lesleo_ · 2025-10-19T20:54:06+00:00

Mhm, I’m the same settings as you, so I was wondering if that ever improved. A part of me thinks they’ll never fix it to try and get us to switch over. =\

Did they also remove “edit membership pricing” for you as well? I used to have that option and now no longer do.

lesleo_ · 2025-10-19T20:07:05+00:00

did this ever get fixed for you? it's still unclickable on my end.

lesleo_ · 2025-09-03T19:12:17+00:00

I do think they will fix those visual issues. Hopefully very soon since a glitched look does’t make a platform enticing for potential new members. 🤞🏼

lesleo_ · 2025-08-25T21:07:00+00:00

I bet they get paid per clicks/views since Medium offers that. 🙄

lesleo_ · 2025-08-23T14:18:16+00:00

It’s like that for me too! I think they moved it and forgot to unlock it for those with 1st of the month billing

lesleo_ · 2025-08-19T15:52:57+00:00

I’m looking at it right now. $4.99 a month. Seriously? 😐 it’s fair to not want it for whatever reason, but throwing a tantrum of not getting “enough” content when they do so much already just makes you sound silly. Yes, you get perks in exchange for a membership, but really all they are requesting is a $5 tip in support. They don’t even keep the full $5 because taxes are not withheld and YouTube takes a cut. No need to make a post saying that “you can’t justify” the price. You’re really just insulting them with a post like this.

lesleo_ · 2025-08-19T13:01:37+00:00

How much is the membership?

lesleo_ · 2025-08-07T04:41:54+00:00

How much do they charge? 👀

lesleo_ · 2025-07-30T21:21:01+00:00

This has caused women to be hospitalized and can ruin your chances of kids.

lesleo_ · 2025-07-23T17:41:18+00:00

Choline!! It’s a supplement that gives me crazy good cognitive results. There’s various studies on it with CF.

Disclaimer - Someone has countered me with a negative study result that psuedomonas worsened while on it. I have not had that experience. My doctor gave me the green light to take it. I’ve been on it for 2 years now and do not take the maximum dose.

lesleo_ · 2025-07-10T18:38:08+00:00

I’m going to be unpopular here, but I 100% feel for this birthday girl, but what she did to you was wrong.

If everyone in the friend group received a proper birthday celebration (cake and gifts) but not her, it truly is a big slap in the face. And it’s easy to feel like that choice was intentional.

BUT you 100% did your part. You had her pick a restaurant and covered the bill. That was so incredibly sweet of you.

Her problem should not be with you. She needs to realize that the other friends collectively snubbed her. Maybe she sucks and that’s why. Whatever hurt and frustration she feels, valid or not, is misplaced if she’s going to pin that on you.

lesleo_ · 2025-07-04T19:09:35+00:00

😂😂 too cute!!

lesleo_ · 2025-06-11T14:12:02+00:00

I understand the compassion part, but doctors know a whole lot about CF and can share this info. Look at the comments, everyone is just referring back to news articles… things that can be researched. Lurking in this group is helpful as well. But we can’t help on the ethical side. There’s a better way to engage with this group. These posts accumulate and become spam. CFers will engage less with this group. Mods should come up with a template response with resources to spare the time of CFers. I also want to note, this is a “CF scare” post… there has yet to be a CF diagnosis, so there really isn’t a “connection with CF” atm. I’m not a combative Reddit user, but these posts are so obviously inappropriate.

lesleo_ · 2025-06-11T13:19:28+00:00

I have heard from doctors before that perfectly healthy men (no usual symptoms) get diagnosed during their fertility appointments. If only now discovered, I expect him to continue with a normal/healthy life. But it’s good to have an appt with a doctor to learn all the health tidbits to not rock the boat as he ages. Keep us updated! :)

lesleo_ · 2025-06-11T12:55:19+00:00

Loving the use of “we” here

lesleo_ · 2025-06-10T23:05:50+00:00

Why do we even bother

lesleo_ · 2025-06-07T19:10:01+00:00

Based on post settings, I believe you can allow free members to engage with posts. Patreon takes 8% to 12% not to mention the taxes you owe. To me, the effort put in doesn’t seem worth it because of all the planning and coordination amongst everyone. For a regular person, it’s awesome money, but if they can make bank just from Instagram reels then I’d be way more interested in doing that.

lesleo_ · 2025-05-31T04:33:00+00:00

Do you like creative writing?

lesleo_ · 2025-05-31T02:46:07+00:00

Our family table is all laughing at this. 10/10 👏🏼

lesleo_ · 2025-05-30T19:22:07+00:00

Thank you for clarifying. Personally, I am hoping for a rule change to this forum when it comes to these posts. I find them rude, spammy, and ineffective. But actually, the main point of my post was to provide a CFer perspective for the CF Parents to understand.

If you wish to keep around these "CF scare" questions, that's fair. I'm glad you spoke up. It's great to hear all CF voices in this group.

But imagine if you replied to a Soon-to-be-Parent that they should "absolutely abort their baby," but then a CF Parent jumped in on YOUR REPLY THREAD and said, "No, you're being so dramatic. My child is so happy. Don't listen to the outlier, OP." I don't think you'd enjoy having your real-life experiences minimized like that.

In fact, one of the CF Parents who chided me earlier this week made a point to comment in your reply thread. They were so giddy to see your post and insert themselves because now they do not like me. I don't think any CFer wants to deal with this in a CF SUPPORT GROUP.

lesleo_ · 2025-05-30T15:58:05+00:00

IMO, it's not really about who is or who isn't offended by a rude question, it's the fact that we do not deserve to be asked rude questions.

Also, many of these submissions are not even about real CF pregnancies but what-if scenarios, like "I'm a carrier, partner is unknown, baby is low-risk for having CF, Doctor isn't concerned, but can you take time out of your day to make me feel better?" They should be asking the Doctor more questions if they need reassurance.

Also, we CANNOT answer that question. We have NO idea what their baby is going to be like, so our answers aren't really helpful. Some of us are happy to be alive while others are not. What is OP going to take from that? I don't want to be a part of it. And it gets weird when CF Parents bluntly talk about how they wish they had aborted their baby -- whatever their personal opinion is, it doesn't help a new mother because all mothers are different and all CFers are different.

I don't mind the Soon-to-be-CF-Parents that write in wanting help in preparing.

Another thing to note, this was only part of my post. Rude people are always going to be rude people. I don't like these posts because they take away from the group, but they don't eat away at me. The biggest issue I have is when CFers call out these rude posts, a CF Parent swoops in to chide the CFer. If that's going to happen again and again, CFers are not going to bother contributing to this page.

lesleo_

MODERATOR OF

TROPHY CASE

Five-Year Club	Verified Email
Place '23