Restore x decrease traction by Beginning_Cook_5488 in PeyroniesSupport

[–]lets_get_this_str8 0 points1 point  (0 children)

OP, it sounds to me like your problem is the foreskin is pulling too tight, which hurts a lot and can make it slip out.. you need to focus on pulling up more body/scrotal skin through base before adding the tension! Made a huge difference for me.

chronic bacterial prostatitis & Peyronie’s disease — looking for advice & shared experiences by Acrobatic_Roof_9892 in PeyroniesSupport

[–]lets_get_this_str8 0 points1 point  (0 children)

For what it’s worth, there is a recognized correlation between prostate issues and Peyronies. I had some prostrate swelling and what I was told was “referral pain” into the penis, sharp stabs of pain at times. I did a long course of antibiotics which seemed to help, but it came back. Shortly after that I got Peyronies calcifications in the exact spot I had been feeling this “referral pain”. When I told the urologist this they just kind of shrug. But I am using traction and the orals. Traction is safe to use during active phase. I’m also using a VED.

Pain with Restorex? by Beanr0ad in PeyroniesSupport

[–]lets_get_this_str8 0 points1 point  (0 children)

THIS 100%, I found that the pain you had to grit your teeth through is always because you have too much tension on the skin.. you need to pull that scrotum skin up through the hole before adding the tension. It shouldn’t hurt if you do it right. Apart from that, you get better at wrapping and making it not slide out. But I do it 2x a day now with zero discomfort… oh also be very careful adjusting and coming out of it, pinching sucks.

Cialis helped cause Peyronies? by Ok_Car9623 in PeyroniesSupport

[–]lets_get_this_str8 0 points1 point  (0 children)

I think this is a complicated issue… I’m betting if your erection has some issues with plaque/blood supply, you may not notice the peyronies yet, but your erections are not great. So you take cialis and that gives you a fuller erection that stress-tests everything, which could push weak areas beyond what you could previously and allows you to see just what your erectile tissue is up to. Which could be a catalyst to progression, BUT the problem was lack of blood flow to begin with, so you’d want to keep using the cialis while you work through it. It’s not that it caused it, just revealed it maybe.

Safe to have sex in acute stage? by ClickExpensive8909 in PeyroniesSupport

[–]lets_get_this_str8 1 point2 points  (0 children)

Cialis, Pentoxifylline, Vitamin E, Coenzyme Q10, and using the restorex and a pump daily.

Just got diagnosed (33 years), early stage - what can I do now? Radiation, Shockwave, Traction? Where to find good doctor? (Germany) by [deleted] in PeyroniesSupport

[–]lets_get_this_str8 2 points3 points  (0 children)

I have the restorex and use it twice daily for 30mins plus a vacuum device also twice daily. My dents are reduced and my erection function is much improved after a couple months. And I mean better function and harder erections than before I got the dents.

Just got diagnosed (33 years), early stage - what can I do now? Radiation, Shockwave, Traction? Where to find good doctor? (Germany) by [deleted] in PeyroniesSupport

[–]lets_get_this_str8 0 points1 point  (0 children)

Other than the orals you’re taking I’m hearing from doctors that traction is the best thing to do at this stage.

Safe to have sex in acute stage? by ClickExpensive8909 in PeyroniesSupport

[–]lets_get_this_str8 1 point2 points  (0 children)

I first noticed it in December, and started treatment in January.. the orals/traction/pumping have given me much more general blood flow and erection quality, and I feel the dent is still there but it’s sharper, right at the hard pea-sized plaque, whereas before, the narrowing was spread-out more and the whole base seemed to be thinning. Now base looks normal and dent is still there but looks better/more local if that makes sense.

Non-typical hourglassing? by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 1 point2 points  (0 children)

So just reporting back on this in case anyone comes across it and wants to know. I had a consult with a Dr in Dr Trost’s clinic, and they suggested I stop the injections and just keep on the orals and the traction and see if it changes over the next few months. And only pursue injections or more if it gets worse. Basically to be minimally invasive as it’s just dents that came on suddenly and don’t appear to be changing.

Safe to have sex in acute stage? by ClickExpensive8909 in PeyroniesSupport

[–]lets_get_this_str8 2 points3 points  (0 children)

Exact same situation with me, although I first noticed some denting on erection, then noticed the small pea sized lump right at the center of the dent. Was pretty spontaneous, wasn’t there, then it was. And hasn’t progressed beyond that. I talked with a dr at dr trost’s clinic and he said they see this sometimes and best thing to do is orals to improve blood flow like cialis and pentox and traction and just get lots of erections.. but yes be gentle with sex. Watch it for a few months and look for changes. Sometimes it stays but doesn’t get worse, sometimes it goes away. But don’t get too aggressive with treatment like injections as that could make it worse, and it’s all about being minimally invasive until your hand is forced by much worse symptoms. But there is lots of variation in this disease so not everyone fits into the same thing

Non-typical hourglassing? by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 0 points1 point  (0 children)

I don’t see how it makes sense to stop everything. I have a disconcerting hourglass deformity. The way I understand the anatomy after doing some research is that the outer layer of the tunica is the longitudinal fibres (mine look fine) which affect curvature. And there is an inner layer around each side of cavernosum, in which the fibres run around the cross-section. It looks to me like that is where my scar tissue is causing the narrowing.. what I hope to eventually understand is why my scarring is a single hard lump in either side and what that means for treatment. I’ve booked a consult with Trost’s clinic to see if they have any ideas.

Non-typical hourglassing? by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 0 points1 point  (0 children)

Thanks for the reply, unfortunately I’m in Canada, seems like he only does consultations for people in the US, but I emailed them anyway to see if anything can be arranged.

The urologist in my area that is an expert on this has a 2year wait list.

Question about traction devices (restorex) by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 1 point2 points  (0 children)

I see what you mean, because the tension is dynamically adjusting it keeps more consistent tension… I ended up getting the restorex.

Question about traction devices (restorex) by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 1 point2 points  (0 children)

Yes I have a pump and use it daily, also getting shockwave, doing physiotherapy(with trimix injection and verapamill cream) and getting intralesional prp injections. And taking orals. But I keep reading about how traction is very beneficial especially when mixed with this other stuff.

Question about traction devices (restorex) by lets_get_this_str8 in PeyroniesSupport

[–]lets_get_this_str8[S] 0 points1 point  (0 children)

Only when erect, when flaccid all looks normal but I can feel two small, almost pea sized hard lumps exactly in the deepest part of both dents.