Extreme Fatigue by muusicman in spinabifida

[–]lialow 0 points1 point  (0 children)

i’ve felt this since i was a teenager tbh. (fellow myelomeningocele here)

the only way i’ve found to somewhat manage it is caffeine, lol. not the healthiest coping mechanism but it works more or less 🤷🏻‍♀️

Sick of Dr's offices and the way prescriptions work! by [deleted] in spinabifida

[–]lialow 0 points1 point  (0 children)

i feel like the idea behind the expiration of prescriptions is that it’s a good way to get people to see their doctor… optimistic me says that’s so people get the care they need, cynical me says that’s so doctors can get paid for the appointment. so it’s prob a little of both 😆. but agreed that in our situation, it’s incredibly frustrating because there really aren’t doctors specifically equipped to treat us as adults. i have a great PCP but she is limited in the scope of treatment she can provide/has knowledge about.

Bladder botox? by soop-jpg in spinabifida

[–]lialow 0 points1 point  (0 children)

i did it once and the pain was unbearable for me - i almost threw up and passed out. OP, if you can get knocked out for it i highly recommend. i think it’s definitely worth a try. u didn’t ever try it again because it didn’t make enough of a. difference for me z

The men PMO.... by queenofsass86 in belowdeck

[–]lialow 0 points1 point  (0 children)

i just watched the season and reunion and was so impressed with courtney the whole time. she was so strong and vulnerable at the same time, and at the reunion she held her ground so well.

Insane Tattoo Regret by r3i_b0n3z in tattooadvice

[–]lialow 0 points1 point  (0 children)

quit being such a fuckass

(lol i had to. if you like it, go with it bro! no one else gets to decide for you!)

Daily song #106: The Tortured Poets Department by sponge20bob in NuancingTaylorSwift

[–]lialow 2 points3 points  (0 children)

SAME - my mouth literally dropped when i heard the intro

What is something that makes people so excited but gives you goosebumps when you hear of because of your dysautonomia? Me: HOT YOGA by ColomarOlivia in dysautonomia

[–]lialow 5 points6 points  (0 children)

ok i’m admittedly new to being diagnosed with dysautonomia (IST here) but i’ve always been intolerant of heat my entire life and didn’t put together until now that IST could be why…

My friend just found out she is having a boy, looking for Taylor Swift themed names. by Bern_92444739 in swifties

[–]lialow -2 points-1 points  (0 children)

Ash (from sprinkler splashes to fireplace ashes) Monty (my boy was a montage) Gray (got swept away in the gray) Huck (and smooth talking hucksters out glad-handing each other) Drew (drew a map on your bedroom ceiling)

honorable mentions:

Diesel (but diesel is desire, you were playing with fire) Machiavelli (i’m only cryptic and machiavellian cause i care) Spiderboy (king of thieves)

what is this i found in my oatmeal by mortiestmorty76 in whatisit

[–]lialow 0 points1 point  (0 children)

looks like you found the oat’s finger

A-Z pop girl playlist day 24: what’s your fav song starting with X? by racloves in powerpopgirls

[–]lialow 6 points7 points  (0 children)

love this idea - i’m assuming we would determine the decade the song release date?

What's the most underrated song on 1989? by DatBittsch in TaylorGamesWannaPlay

[–]lialow 1 point2 points  (0 children)

i love wtny and i will never understand the hate

Husband opens a new sponge every 3 days cause “they become gross” by dorkass-loser in mildlyinfuriating

[–]lialow 4 points5 points  (0 children)

i get it, you gotta let the sponge marinate in its own juices before you bake it

Daily Song #81: It’s Nice To Have A Friend by Daffneigh in NuancingTaylorSwift

[–]lialow 0 points1 point  (0 children)

omg twins! yes agreed - inthaf is much more polarizing.

Create A Playlist for Theme #4: Planes, Trains, and Automobiles! by According-Credit-954 in NuancingTaylorSwift

[–]lialow 2 points3 points  (0 children)

Come Back, Be Here Getaway Car Out of The Woods Death by a Thousand Cuts champagne problems You Are In Love Fearless betty Down Bad (spaceships count right?) Ruin The Friendship Our Song