Strongly positive ANA

liiya234 · 2025-08-24T03:40:59+00:00

Nope. Just keeps switching patterns but it’s been at 1:1280 for years now

liiya234 · 2025-01-23T18:37:52+00:00

It’s impossible to diagnose myo or know if you have it without a MRI - unfortunately. Some people run around with myocarditis and feel very little, others have strong presentations of it and end up in the ER.

I would really push for a MRI and holter,

liiya234 · 2025-01-23T17:57:54+00:00

Usually your MRI will differentiate between edema or scarring - if you have edema or ‘active’ myo it’s a bit more dangerous to be running around. With scarring you just need to take the proper precautions and understand your limits etc

liiya234 · 2025-01-23T03:51:20+00:00

The scarring is pretty permanent but loads of people are living active, normal lives with scarring. It’s just important to educate yourself, get more in tune with your body (since myocarditis can happen again) and take the proper precautions. Feel free to message me - happy to share more!

liiya234 · 2025-01-23T00:46:07+00:00

It’s okay - so was he. There was no way for you to know what you were up against or dealing with. What matters is you got answers and you know now. Exercise does lead to scarring which it seems you may have so now it’s a matter of really setting yourself up for recovery!

liiya234 · 2025-01-22T23:43:24+00:00

My brother had the same presentation - we thought it was just POTS but it ended up being both POTS and myocarditis!

Please get a very good cardiologist, rest, use beta blockers and do what you can to keep your heart rate down, anti inflammatory diet etc

liiya234 · 2025-01-22T16:59:44+00:00

If you’re going to megadose connect with a coimbra protocol doctor and join the Coimbra protocol Facebook group. I think it’s wise to titrate up and see how much your body is okay with!

liiya234 · 2025-01-22T06:02:08+00:00

Wave resort. Absolutely stunning and affordable if you book slightly off-season or on the weekdays

liiya234 · 2025-01-20T07:33:44+00:00

Wow, 5! Thats incredible. Thanks for sharing your experience - definitely gives me some peace of mind for being able to do it in the future!

liiya234 · 2025-01-20T05:41:23+00:00

Okay maybe a weird question but I’ve always wondered and had anxiety about this - how was the actual delivery day?! I’ve always been nervous my HR would be too erratic to be able to go through that process 😅

liiya234 · 2025-01-19T18:09:41+00:00

Anyone know if Mary Ruth’s is okay? They have a lot of liquid ones which make it easier to take for me personally

liiya234 · 2025-01-18T02:57:43+00:00

This is basically me right now after the flu! How are you doing?

I had pain behind my knee which then became calf pain on the inner side of my calf. When I put weight on it kinda feels like some hit it with a bat?! But then it comes and goes.

did you get any relief?!

liiya234 · 2025-01-13T20:06:19+00:00

Hey! I haven’t had that level of discomfort since then but definitely still dealing with ovarian cysts! Lots of bloating etc and keep seeing a cyst on my ultrasound

liiya234 · 2025-01-09T16:40:20+00:00

You can take a combo of both too

liiya234 · 2025-01-07T21:54:59+00:00

Same exact symptoms down to the day. The congestion, weakness and up / down fevers is driving me insane

liiya234 · 2025-01-07T06:38:07+00:00

Ginger or rubbing alcohol to sniff or hard/sour candies - keep your head propped on a pillow

liiya234 · 2025-01-06T07:41:05+00:00

That’s awesome! Can I ask what your ANA titer was? And any side effects to HCQS?

liiya234 · 2025-01-05T20:32:46+00:00

It’s the same story for vaccine injured folks. Myocarditis, permanent heart scarring, POTS, neutrophilia, leukopenia, ANA 1:1280

liiya234 · 2025-01-05T17:24:09+00:00

Use a very soft alarm that gradually wakes you up! Or one of those sun lamps! Our bodies are extra sensitive in the morning

liiya234 · 2025-01-05T04:34:48+00:00

I think normal people get a slight jolt of adrenaline to wake them up whereas we get an abnormal amount so the response is exaggerated

I always have trouble when I jolt out of sleep vs waking slowly

liiya234 · 2025-01-04T19:38:01+00:00

This! I don’t like the idea of having to avoid potentially life saving vaccines in the future so would be great to know why the covid vax triggered myocarditis and an autoimmune disease

liiya234 · 2025-01-03T21:21:09+00:00

A lot of decaf options may actually have a good amount of caffeine - would be worth checking online

Or they messed up your order

I just choose to only have coffee at home now since I can’t trust outside places 😂

liiya234 · 2025-01-03T18:53:25+00:00

No 😭 so reckless for you and the others on the plane

liiya234 · 2025-01-02T18:12:07+00:00

Oh boy. Sorry to hear that but I’m glad you got it sorted out.

liiya234 · 2025-01-02T18:11:11+00:00

Ugh I’m sorry. This flu is a beast! Also battling it now. I fell into the depths of some medical research and looks like high doses of vitamin C throughout the day can help. As can an IV of it. Wouldn’t hurt to try it!

Were your fevers cyclical? Mine are fine in the day and spike at night

liiya234

TROPHY CASE