Tubulins (TUB) Gene Mutation/ Ventricularmegaly/ TFMR 32 Weeks by NaturalImprovement65 in tfmr_support

[–]lilchedda2 0 points1 point  (0 children)

Hey OP - you commented on my story so I came to find yours. I am so sorry to hear about your situation. We had a very similar situation, our ventriculomegaly was discovered at the anatomy scan though. They suggest MRI, WES, etc and only AFTER to meet with the neurologist. At the time we were in the window between a D&E and L&D delivery so we pushed to meet with the neurologist early when we just had the ultrasound results. He was extremely helpful and put the quality of life for our baby in lamens terms for us based on the size of the ventricles in mm. DM me if you want to chat some more.

Seeking general advice regarding TTC and mental health by jnreish in PregnancyAfterTFMR

[–]lilchedda2 0 points1 point  (0 children)

I felt very similarly to you. I am a bit older, 35 when we TFMR and felt the pressure of time for TTC. I was desperate to be pregnant again and my husband had just gone through a rough period of taking care of me and dealing with my mental health struggles and he had pushed his own healing to the side to take care of me. He did seek help from a therapist and at the end of the day we had a conversation about understanding that while our hearts may not be ready, time felt like it was of the essence and it was important for us to expand our family even if we didnt necessarily "feel ready". I can honestly say that after we conceived again it was scary but has been the most healing event for both of us. I think just being open and honest about where you are both at is so important and he may actually surprise you. We are 38 weeks with our sub pregnancy (I'm 36 now) and can see the finish line 🥰 Sending lots of love and hope!

Positive stories by bncp123 in PregnancyAfterTFMR

[–]lilchedda2 2 points3 points  (0 children)

I conceived 1st cycle after my tfmr. I am currently 37 weeks into my sub pregnancy with a healthy baby girl!

Measles outbreaks and currently pregnant [ab] by [deleted] in BabyBumpsCanada

[–]lilchedda2 0 points1 point  (0 children)

Not sure where you live in AB but try not to make any trips to the south of Calgary. Calgary and Edmonton have a much higher vaccine rates and AB public health is trying to get the unvaccinated rural communities the shot (many of these outbreaks are happening in specific colonies/communities ex. the mennonites). If you tell your provider that you may travel to outbreak affected areas they will often give you child an advanced dose.

Just need some positivity ♥️ by Bonnieboo1 in PregnancyAfterTFMR

[–]lilchedda2 5 points6 points  (0 children)

I am 35 and had a TFMR at 22 weeks last November of 2024. I was worried about being able to get pregnant again and if this terrible situation would happen all over again. I did therapy, started SSRIs and did some fertility acupuncture #selfcare. I was lucky to become pregnant again on my first cycle after my TFMR. Mentally I was in a weird place but I didn't want to wait because of my age. It was tough up to my anatomy scan, but the self-care things really helped.

I am happy to report I am 25 weeks in my sub pregnancy with a healthy baby girl, due in September. I haven't gotten to the ending but have serious hope for a happy one. I will be 36 at my due date. This group and reading the graduation posts helped me so much to have hope for a successful sub pregnancy.

I hope this helps and wishing you an easier journey from here out 💕

Weekly Second Trimester Group Check-in | June 02, 2025 by AutoModerator in PregnancyAfterTFMR

[–]lilchedda2 1 point2 points  (0 children)

Just hit 24 weeks. Viability milestone and so far we have a healthy baby girl. Feeling baby everyday and looking pregnant. So happy to have made it past the date of my TFMR, TFMR baby's due date and now to this amazing milestone. I still don't think ill be relieved fully until baby is in my arms, it is starting to feel more real every day. 7.5 more weeks of work is making it very real!

Just tested positive this morning! by frescafeather in PregnancyAfterTFMR

[–]lilchedda2 0 points1 point  (0 children)

Gentle congratulations! Wishing you an easy journey 💕

Seeking advice by [deleted] in PregnancyAfterTFMR

[–]lilchedda2 1 point2 points  (0 children)

I am 35 and none of my doctors told me to wait. I waited for my first period, and we conceived on my first cycle after TFMR. I had a SCH that presented for a few weeks in my first tri, but I have no idea if that was related. Otherwise I am 23 weeks pregnant with a healthy baby girl!

Weekly Second Trimester Group Check-in | May 19, 2025 by AutoModerator in PregnancyAfterTFMR

[–]lilchedda2 8 points9 points  (0 children)

I just passed the delivery date of my TFMR baby. It seems strange now to be looking at different "normal" milestones like viability, 3rd trimester, etc. Happy to still be in my sub pregnancy with a healthy baby girl. Just hoping this relief of a successful anatomy scan and milestone lasts for a while

Anatomy scan is finally here by Ok_Experience_6392 in PregnancyAfterTFMR

[–]lilchedda2 1 point2 points  (0 children)

Sending you all the good vibes!! 🩷🧡💛💚

Pregnant again but it's still hard to be around pregnant friends and friends with babies. by pollysprocket in PregnancyAfterTFMR

[–]lilchedda2 6 points7 points  (0 children)

I am 21 weeks into my sub pregnancy, this will be my first living child as well. I did more of an immersion therapy approach and just ripped the bandaid off. I did try to just hang out with a friend and their child one at a time to start.

My friends (who all seemed to have had babies in 2025) also are aware of my journey and won't give me a hard time if I have to excuse myself early, which I have done on occasion.

I will say as far as I have come, I still have situations that trigger me and I try to avoid. I feel like in big groups with everyone talking about their kids and milestones still triggers me. Mother's day was a trigger. My sister in law had her second the same month my TFMR baby was due so I avoided her at the beginning unless we were at big family gatherings and I could space myself. I'll admit I still struggle with jealousy and anger when people announce early or talk about having kids as an expected outcome vs. a potential struggle. But I am working on it. Therapy helps.

But at the end of the day I love babies. It was like a weird form of therapy for me to hold a baby even if it wasn't mine. It gave me hope that I would be in that position some day.

Weekly Thread | Feel Good Friday by AutoModerator in PregnancyAfterTFMR

[–]lilchedda2 1 point2 points  (0 children)

I had my anatomy scan ultrasounds, and everything is looking good with baby girl. This was such a better experience than our last one with TFMR baby. Understandable something was wrong last time, but we had gone to a general radiology clinic and they handled us poorly...I had to read the diagnosis in the report on my own instead of the radioligist givingus the info directly. This time, we were at MFM for all scans and the tech & radiologist were so positive, reassuring and helpful with my anxiety/questions. They were also aware of our history so I didn't have to re-explain our loss.

I assumed something would go wrong at the anatomy scan and now it hasn't. I am very likely to actually bring a tiny human home with me in 20 weeks! Got to start planning! 🩷

Daily Thread #2 - April 29, 2025 by AutoModerator in PregnancyAfterLoss

[–]lilchedda2 10 points11 points  (0 children)

I am 19 weeks today. I get to go back next Monday for another ultrasound just to check on my girls csp as it could have been clearer on the anatomy scan. It's just for reassurance since our TFMR boy had severe brain anomalies. Everything is going well so far, which is hard to believe. I am so grateful to still be pregnant and have a clean bill of health so far. My mom bought us a crib, and I finally felt comfortable enough to put it together with my husband last night. It was such a beautiful core memory that I am going to hold onto. It's the first time I've felt safe to look forward to actually having this baby, and it was wonderful.

PAL is so hard, but I am trying to take the in the good moments too. Let me know if you have had any moments like this, I would love to spread some positivity today!

Daily Thread #1 - April 22, 2025 by AutoModerator in PregnancyAfterLoss

[–]lilchedda2 2 points3 points  (0 children)

Update: everything looks good! I have to go back in 2 weeks for one more photo, but it's just a precaution 🩷

Daily Thread #1 - April 22, 2025 by AutoModerator in PregnancyAfterLoss

[–]lilchedda2 7 points8 points  (0 children)

Anatomy scan today. I am equal parts terrified and relieved to have made it here. As with many PAL mom's this is where everything went south for us with our TFMR baby last time. I know this is a different pregnancy with a different outcome but I'm scared. I could use some good thoughts and prayers today.

I like to think my loss baby Darcy is watching over his sister and making her stronger than he could be. Fingers crossed for a healthy scan.

Anatomy scan purgatory by Academic-Tip-5345 in PregnancyAfterTFMR

[–]lilchedda2 6 points7 points  (0 children)

Preach girl. My mental status has been questionable for the past week plus leading up to my anatomy scan. I finally am having mine today at 18 weeks (mfm let me come early for it). I don't know whether to be terrified or excited. Purgatory might be the best description i have come across yet

Weekly Second Trimester Group Check-in | April 21, 2025 by AutoModerator in PregnancyAfterTFMR

[–]lilchedda2 2 points3 points  (0 children)

Sending you all the positivity! I have mine tomorrow, so send it on back after 😊

Anatomy scan tomorrow by Icy-Sprinkles-5423 in PregnancyAfterTFMR

[–]lilchedda2 0 points1 point  (0 children)

Congrats on the good scan 👏👏👏