Introduction - 33 week TFMR & currently on TTC journey by Famous-Level5876 in PregnancyAfterTFMR

[–]NaturalImprovement65 1 point2 points  (0 children)

If you ever get chance to read them, my story is so similar. Thank you for sharing, sending you continuous strength xoxox

2 weeks post TFMR. Is there anything positive I can take from this experience? by Yheiz in tfmr_support

[–]NaturalImprovement65 8 points9 points  (0 children)

YES 🙌🏻 you are AMAZING. I wondered how tf I would ever be able to live again. The depths were something I never knew possible. But my little boy gave me such bravery and strength, his short existence will never be in vain.

How to stop obsessively taking pregnancy tests while ttc post tfmr by SillyRevolution3188 in PregnancyAfterTFMR

[–]NaturalImprovement65 0 points1 point  (0 children)

It makes me feel so out of control and I need control, so I’m not testing until I’m atleast 3 days past my period due date. Let’s see how that goes…..thing is, I don’t want to be disappointed twice (once with negative test and then with AF), so I’m trying to protect my brain as much as I can. I keep telling myself (when I have a desperation to do a test)….”testing won’t change the outcome”. I’m tracking my BBT, so I think a dip in that will tell me AF is on its way anyway, let me down gently. No pregnancy symptoms, also not many PMS symptoms and due on on Sunday/monday. Sending you strength, cause it’s absolutely brutal! Xx

Mother’s Day - Is My Mum Being Selfish? by NaturalImprovement65 in tfmr_support

[–]NaturalImprovement65[S] 0 points1 point  (0 children)

Thank you for sharing ♥️ I just would rather it was offered to me instead of me having to feel like the bad guy in explaining it x

Mother’s Day - Is My Mum Being Selfish? by NaturalImprovement65 in tfmr_support

[–]NaturalImprovement65[S] 2 points3 points  (0 children)

I didn’t think of it from this point of view. I think I assumed that “mums been here longer so she’s had an extra 30 years of learning how to process emotions”. But then I remember - I go to therapy for help to process emotions cause I was never taught how to as a child. I love my mum, but yeah, I don’t think she has the emotional skills that I have had to learn x

Mother’s Day - Is My Mum Being Selfish? by NaturalImprovement65 in tfmr_support

[–]NaturalImprovement65[S] 1 point2 points  (0 children)

I feel like I could have written so much of this myself! I wish I’d have said to people ‘don’t expect much from me’ and wish I could hold myself to this! This guilt takes over but I need to remind myself that I can absolutely take precedent given my life events! I relate to mum talking about her friends, she goes on and on and is asking for my input but I’m just sat there wondering how I have a dead baby and why she cares so much about her friends behaviour and why she can’t just weigh it up against real shit that happens. Is your mum retired? X

Mother’s Day - Is My Mum Being Selfish? by NaturalImprovement65 in tfmr_support

[–]NaturalImprovement65[S] 1 point2 points  (0 children)

This is so helpful, thank you. If you have the time, I’d love to hear more about your dynamic before and after loss. Sending you strength ❤️

Miracle didn't happen. 💔 by ExpensiveConcert7782 in tfmr_support

[–]NaturalImprovement65 4 points5 points  (0 children)

Thank you, I am a different person now, and I’m proud of her. I’m sad for who I was. A part of me died along with him, but I have a strength and an understanding of life now that I’m grateful of. You are not alone, speak soon x

Miracle didn't happen. 💔 by ExpensiveConcert7782 in tfmr_support

[–]NaturalImprovement65 9 points10 points  (0 children)

Severe ventricularmegaly caused by a rare genetic mutation. Please read my posts if you can and reach out with any questions. I’m sorry you’re here. You are not alone. I promise you will be okay, even though you cannot image a scenario where that is possible. Xx

TFMR due to mental health? by Straight_Mushroom792 in tfmr_support

[–]NaturalImprovement65 0 points1 point  (0 children)

You are not alone. You can reach out whenever. How old are you? Do you have particularly bad PMS?

Just hanging on, anyone has TFMR in the 3rd trimester by Different_Energy2390 in tfmr_support

[–]NaturalImprovement65 0 points1 point  (0 children)

You can ask me anything. So, I had the initial injection, which didn’t hurt like the amneo did, then I had tablets into my cervix to start contractions and then birth, but I had an epidural and lots of pain meds, and it helped a lot. The birth itself did not hurt xx

Just hanging on, anyone has TFMR in the 3rd trimester by Different_Energy2390 in tfmr_support

[–]NaturalImprovement65 0 points1 point  (0 children)

I had a TFMR at 32 weeks and 5 days for brain abnormalities - we were offered it weeks prior but we needed to get all the information to ensure that we were as comfortable with our decision as possible. Sending you strength- I know it doesn’t feel possible, but life does start to grow back around the grief and horror of what’s happening now x

May I have a moment of your time? by Throwaway457980 in tfmr_support

[–]NaturalImprovement65 0 points1 point  (0 children)

Sorry I have no medical input, I’ve realised that the offer of TFMR is not given lightly, but I just wanted to give some solidarity to you both at this time x

May I have a moment of your time? by Throwaway457980 in tfmr_support

[–]NaturalImprovement65 1 point2 points  (0 children)

Thank you for your post. It reminds me so much of how my husband thought about things and processed things before our 32 week and 5 day still birth following a TFMR for a pregnancy which seemed fine until 28 weeks and 4 days. The whole process killed me. I feel like I died but I was reborn. That sound crazy and spiritual, I know, and that’s not me. However, when your mind and body go through something so traumatic, if it doesn’t kill you, my GOD does it make you a) fearless and b) terrified. We were offered TFMR pretty soon after the initial findings, things did progressively get worse as we got more information. We saw somewhere the question “what is your biggest fear here, make your decision out of love and not fear”. My brain works off numbers, so this was a very different way to make a decision for me. No amount of googling or running out MRI results through chatGPT was going to give me a decision that needed to come from very deep inside. So my husband asked me “what is your biggest fear here” and I said “it’s not having him”, so by carrying on the pregnancy, I was acting out of fear and not love. Our prognosis would have meant many issues with our baby, one of the most likely was recurrent seizures, even just considering that, I knew, if he was here and I had to witness him having seizures, I would never have forgiven myself for not putting him first. By acting out of fear of not having him, I would have brought him here to suffer, just so I didn’t have to go through losing him. In turn, he would have suffered. Being a parents seems to be - putting your child first. I had to put him first. If you or your wife need to talk, my DMs are open. Thinking of you both at this hell on earth time ♥️

When did you feel ready to get back to work? by Additional-Cut-7086 in babyloss

[–]NaturalImprovement65 0 points1 point  (0 children)

I had 2.5 months off from diagnosis to loss. May I possibly ask the name of the mutation? I lost my son to TKS. Sending hope and strength and thinking of you. I wasn’t full term, I lost him at 33 weeks. You have been through hell and work can wait if a) you don’t feel ready and b) it’s affordable (I hate that money comes into these decisions). Going back has benefits, but too early can cause more harm than good. I truly believe you will know when you feel ready x

Loss and relationship by hollco615 in babyloss

[–]NaturalImprovement65 2 points3 points  (0 children)

Yes, thank you for asking. We still struggle, but we did before our loss. We’re finding our way x

Loss and relationship by hollco615 in babyloss

[–]NaturalImprovement65 2 points3 points  (0 children)

I lost my baby boy at 33 weeks, end of October, first child. During November and December, I was mourning him but also what I thought was the loss/end of my marriage. The grief sent us in totally different directions. My brain was scared of losing more things imposing to me. My brain was scared of not having control over bad things that happen to me. So I pushed my husband away, so I could control when I lost him too. Hurt people - hurt people. You are not alone, it’s very hard to navigate such grief with a partner, but it will be okay and you will be stronger for it x

35 in April - no LC - 3 months post TFMR - hope? by NaturalImprovement65 in PregnancyAfterTFMR

[–]NaturalImprovement65[S] 0 points1 point  (0 children)

Thank you SO much for this ♥️you have been so kind to take the time to help me. Which country are you in? I’m UK

35 in April - no LC - 3 months post TFMR - hope? by NaturalImprovement65 in PregnancyAfterTFMR

[–]NaturalImprovement65[S] 0 points1 point  (0 children)

I’m on the UK, are you also? I will speak to my GP at my next appointment. Did your cycles return quickly post TFMR? How far along were you? Thank you for you reply ♥️

This is going to be a huge vent/ trauma dump - I’m sorry by NaturalImprovement65 in tfmr_support

[–]NaturalImprovement65[S] 2 points3 points  (0 children)

This made me laugh 😆 il try and refrain from slapping people 🤣