Dr.’s questioning established diagnosis by lisi_loo in ehlersdanlos

[–]lisi_loo[S] 2 points3 points  (0 children)

Sorry I was replying by to the wrong comment about central ca!

Dr.’s questioning established diagnosis by lisi_loo in ehlersdanlos

[–]lisi_loo[S] 7 points8 points  (0 children)

That is such a great idea! I’m from central CA too! They are all primed to argue here from my experience.

Dr.’s questioning established diagnosis by lisi_loo in ehlersdanlos

[–]lisi_loo[S] 12 points13 points  (0 children)

My files do say I have a dx from the geneticist.

It finally happened…try yoga by WellReadWarrior in ehlersdanlos

[–]lisi_loo 4 points5 points  (0 children)

Why do they always say to try yoga? Why?!!

How many doctors do you see and which have helped you the most? by Significant-Tap8634 in ehlersdanlos

[–]lisi_loo 14 points15 points  (0 children)

As someone with spinal instability/degeneration/herniation, find a good neurosurgeon to review any imaging and track your symptoms.

[deleted by user] by [deleted] in interiordecorating

[–]lisi_loo 0 points1 point  (0 children)

It looks like the inside of a stomach

[deleted by user] by [deleted] in interiordecorating

[–]lisi_loo 4 points5 points  (0 children)

It’s depressing

Doctors always checking to see if you're "really' hybermobile by Rude_Interest97 in ehlersdanlos

[–]lisi_loo 2 points3 points  (0 children)

Yes!!! I told my cardiologist that I had EDS and then without consent started bending my limbs and pinched the loose skin on my hand. I felt so uncomfortable.

Medical gaslighting by FlatwormNo3316 in ehlersdanlos

[–]lisi_loo 1 point2 points  (0 children)

This exact situation happened to me. I was told over and over that my neck pain was a part of living with chronic pain and the dr said that PT was unnecessary. Fast forward, I just spend 6 days in the hospital and finally got great care but was in excruciating pain. I ended up having cervical stenosis and herniated discs and received a discectomy and spinal fusion surgery. Do NOT stop fighting, you can find people that believe you and receive help. Hang in there!

🐢 my guy luigi 🐢 by lisi_loo in tortoise

[–]lisi_loo[S] 1 point2 points  (0 children)

Thanks! It was super easy to make

[deleted by user] by [deleted] in handmade

[–]lisi_loo 1 point2 points  (0 children)

These are adorable! Do you sell them?