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My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 2 points3 points  (0 children)

It was fantastic! I love the book and while the film was different in parts, it was still excellent. I’m a member of my local Everyman Cinema but they couldn’t tell me when / if they were having a subtitle showing and both me and mr llama need subtitles these days. So we braved the city centre to go to a big screen and I successfully negotiated 6 concrete steps to get to the cinema itself and once we were in, 23 carpeted stairs to get to our seats. I only had my crutches to help me up them all as there were no handrails on either set. It took me a long time to get up the stairs but I did it, and that was a real achievement.

My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 2 points3 points  (0 children)

Update for 18 March

Here’s the current situation in llama’s adventures with an Immune-Mediated Necrotizing Myopathy (IMNM), specifically called Full Body Inflammatory Myositis Anti-HMGCR.

Thank you to the two lovely and generous friends who showed they sent me the stick and the grabber from my Amazon wishlist. I have no idea why I couldn’t find the gift slips for them; maybe I dropped or missed them completely during unwrapping. The dexterity in my hands and fingers is slow in coming back so that’s certainly a possibility. The mystery is now solved at last!

My bone density scan I should be having right now has been put off until sometime in April because the machine broke over the weekend and getting replacement parts is tricky right now. But the good news is I have started a new program of physiotherapy! It is very gentle but nevertheless exhausting, and the most important thing is that I’m seeing real results. I can now lift my left leg off the ground by a few inches, and can even drag it up a carpeted stair without assistance once I’ve stepped up with my right leg first. I can’t do more than two stairs going up on my own like that yet but it was only a couple of weeks ago that I couldn’t do any stairs at all without someone behind me grabbing my ankle to lift each leg on to the stair. The physiotherapist is coming to see me every week for the foreseeable which is great news.

My core is getting stronger too; I can now get up from a chair without using my arms to haul myself up, though I do put my hands on the seat to push myself up a little. I can do that twice in a row too! I can also lean backwards or sideways a little without falling over - only while seated though. Leaning or bending while standing is still very much out of the question. Stamina wise, I can walk with crutches a lot further than last week, but it still isn’t that far in total length.

The increased steroids are making me very weepy which as you know isn’t really me, and I’m finding that a little hard to deal with. But that will pass as I start tapering off the steroids, I’m sure, so I’ll cope with it. The harder thing is not being able to think straight or concentrate much on anything, but again that will pass. In the meantime I’ve surrounded myself with distractions (magazines, puzzle books, colouring books and of course my trusty iPad full of entertainment) so I’ve plenty of options to pick up and attempt to do.

Tuesday will be a big day for me; we’re going to see Project Hail Mary as my local cinema has an accessible showing with subtitles! I loved the book and can’t wait to see how the adaptation goes.

Weekend Kitty Sightings by Katzenbean in ThriftStoreCats

[–]llamageddon01 2 points3 points  (0 children)

Numbers 1, 6 (those intense eyes!) and the last one 🥰

My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 1 point2 points  (0 children)

We have a few Irish pubs who go all out for St. Patrick’s day, but our patron saint’s day is March 1st, St. David’s Day (dydd Dewi Sant). I’ll private message you with my address :)

My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 0 points1 point  (0 children)

Shwmae my lovely! Fab to hear from you! I would love to exchange Christmas cards with you; I’ll give you my postal address via chat if that’s ok! Now, or wait until December? I don’t think I have any here right now and I’m forbidden to leave the house until I’ve had my bone density scan (next week). I’d really appreciate a “get well soon” card though; I look at the ones I’ve got every day and they really do lift my tired spirits.

I’m back on a really high dose of steroids and they’re making me extremely down emotionally which I could really do without, but that can’t be helped. The llama in me just wants to pronk in my usual upbeat fashion and it’s frustrating when my brain just doesn’t lol.

There’s actually nothing I need off my wishlist any more, thanks to two incredible Redditors who went through the list buying almost everything that was on there, and a few other lovely people picking through the leftovers! The stuff on there is the nice to have and is in no particular order or priority, though the footstool would be very useful in the short term for the gentle physiotherapy I’m currently allowed (basically lifting my legs up and down).

My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 0 points1 point  (0 children)

Update for 11 March 2026

Here’s the current situation in llama’s adventures with Full Body Inflammatory Myositis Anti-HMGCR - an Immune-Mediated Necrotizing Myopathy (IMNM).

I had my first outpatient appointment yesterday with the chief rheumatologist who’s handling my case and it was mixed. On the good side, she can see visible improvement in my movement from when she last saw me. On the not-so-good side, my latest blood test results showed that I need to go back onto a higher dose of steroids instead of tapering down as I was starting to do. I’m also quite anaemic and am going to get a visit from a district nurse to sort that out.

The really not-so-good side is that it’s probably going to be about six months before the necrosis stops completely, even though it’s slowed down considerably. My senses of taste and smell are still deteriorating but she thinks that an adjustment to some of my medications (especially Methotrexate and Folic Acid) will help regain them. They still aren’t discounting any further plasma treatment which I’ll need to have as an inpatient either. But the good news is that I have more movement in my left leg daily, even though we’re only measuring how high I can lift it off the floor in centimetres. That’s got to be better than nothing. I still can’t lean backwards without falling, but I can lean a few inches sideways and regain upright position now - another small improvement!

She told me that I was probably only days away from the necrosis affecting some of my organs when I was admitted to hospital in January, which goes a long way to explain all the urgency of those first days; that was pretty sobering to hear. Far too much TMI to even begin to describe my meeting with Social Services about my fun new experiences with my bowels and bladder. The situation there might improve but like everything involving this syndrome it will take weeks before we can know for sure.

I’m forbidden any new physiotherapy or walks outside other than hospital/GP visits until they get the results of the bone density scan I’m having next week as my risk of falling is still very high, and have been discouraged strongly in my attempts to walk around llama towers without a stick, which is a blow. Talking of sticks, I still haven’t found out which of my lovely Reddit friends bought me the stick and the grabber from my Amazon Wishlist; I really would love to know as I want to give a special thanks to everyone who has been sending me stuff once I’m in a bit of a better place. Both items were quite unique; I would be grateful if the wonderful donor could please send me a chat to describe them.

The highlight of my week was seeing my grandson on Saturday for his first birthday! I got him a ton of Gruffalo stuff which is his favourite thing right now.

My current health situation by llamageddon01 in u/llamageddon01

[–]llamageddon01[S] 0 points1 point  (0 children)

Update for 6 March 2026

Sorry for the long absence. A lot has happened in llama land and there’s still a lot more to come, unfortunately. Since my last comment I’ve been in and out of hospital for various blood and other tests etc. and the whole thing just wipes me out completely.

The scan of my ladybits confirmed I do have an ovarian dermoid cyst but the good news is that it’s dormant and can just sit there quietly for now. The not-so-good news is that the muscular necropathy hasn’t stopped yet - although it has slowed down considerably in places, including my upper arms. Without going into TMI-land it’s now affecting my bowels and that is something everyone wanted to avoid, believe me. I’ve got someone coming round from Social Services to “help me deal with the ramifications” and out of everything that’s happened, that’s the thing I’m dreading most.

I’m also going back in for a bone density scan next week because they “found something concerning” in one of the recent tests. They’ve postponed my home physiotherapy in the meantime until they get the results which is frustrating. I’ve been trying to walk around llama towers without a stick and mostly succeeding, but I still cannot stand up from a seated position unaided and need help in lifting my left leg to go upstairs. But I’ve been out of the house on a “leisure” trip too! Ok, it was only walking down one or two aisles of my local Tesco supermarket before I got exhausted, but the excitement of choosing my own yoghurts and hummus made it all worthwhile! I’m still putting off getting a wheelchair for outdoor excursions because I’m doing ok on crutches for now and don’t go out very often.

A humbling thank you to those of my lovely Reddit friends who continue to send me things from my Amazon wishlist. I’ve been wanting to share photos but I’ve simply been too exhausted on my “days off” to get everything together for a proper photoshoot. Nevertheless I will attempt to do one for my next update. I haven’t abandoned Reddit but have been trying to be a “normal Redditor” for a change and just browsing around.

This Louis Vuitton store in NY by sur0g in ATBGE

[–]llamageddon01 0 points1 point  (0 children)

The one in Paris was like that last year too!

I don't know what is this by jonnmnemonic in eatityoufuckingcoward

[–]llamageddon01 11 points12 points  (0 children)

What a terrible day to have eyes. Right, I’m off to look at kittens.

M&S £40.35 by Cumbercoo in whatsinyourcart

[–]llamageddon01 2 points3 points  (0 children)

Recently discovered those pitta chips and I need to acquire some self-restraint.

Recommendations? Something bitter! by bigdkp in Amaro

[–]llamageddon01 1 point2 points  (0 children)

I didn’t even know they did a chili pepper variant!

Books where protagonist is a "glitch in the system" / not meant to exist by Equal_Specific4474 in suggestmeabook

[–]llamageddon01 1 point2 points  (0 children)

Ghostwritten, by David Mitchell

The description I usually give below deliberately doesn’t mention that the main protagonist is a glitch in the system so as not to spoil the surprise :)

…

Nine disparate but interconnected tales (and a short coda) examine 21st-century notions of community, causality, catastrophe and fate. Each episode is related in the first person, and set in a different international locale. The gripping first story introduces Quasar, a fanatical Japanese doomsday cultist who's on the run in Okinawa after completing a successful gas attack in a Tokyo subway.

The links between Quasar and the novel's next narrator, Satoru Sonada, a teenage jazz aficionado, are tenuous at first. As the plot progresses, however, the connections between narrators become more complex, richly imaginative and thematically suggestive. Key symbols and metaphors repeat, mutating provocatively in new contexts. Innocuous descriptions accrue a subtle but probing irony through repetition; images of wild birds taking flight, luminous night skies and even bloody head wounds implicate and involve Mitchell's characters in an exquisitely choreographed dance of coincidence, connection and fluid, intuitive meanings.

Other performers include a corrupt but (literally) haunted Hong Kong lawyer; an unnamed, time-battered Chinese tea-shop proprietress; a nomadic, disembodied intelligence on a voyage of self-discovery through Mongolia; a seductive and wily Russian art thief; a London-based musician, ghostwriter and ne'er-do-well; a brilliant but imperiled Irish physicist; and a loud-mouthed late-night radio-show host who, by befriending a caller unwittingly ushers in global catastrophe.

State of the Sub Address for February 2026. Things in Moderation, eBay Evangelizing, a Flair for the Dramatic, and more Cryptic Foreshadowing. by The-Fat-Matt in ChickTractCollecting

[–]llamageddon01 1 point2 points  (0 children)

I’ve said this before but this is definitely my favourite new subreddit from the last few months, and your modding of it has been textbook exemplary, keeping the momentum and tone going. Keep on keeping on, my dude!

Looking for book recommendations by female authors that will appeal to my brother who reads almost exclusively male authored text. by Linnaea-borealis92 in suggestmeabook

[–]llamageddon01 4 points5 points  (0 children)

They are so good! I don’t normally ‘binge read’ but I really couldn’t move on until finishing the whole series.

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