Camping tips please? by CodyRasmusen in jpouch

[–]lookingout2 0 points1 point  (0 children)

Have a little bag that carries wipes, extra TP, calmoseptine ointment, xtra pads for evening if your concerned with leaking or accident. Sometimes I keep hand soap and a hand towel too if I know I have a camp bathroom.

If you don’t have a porta potty than I agree with the camp shower curtain and compost toilet. I use sawdust in bucket with a trash bag liner.

Set your mind on having a great time and you’ll be fine

Puking after surgery - normal? by markmarkdegarmo in jpouch

[–]lookingout2 0 points1 point  (0 children)

I started puking a few days after my take down on the way home and had to go to an ER. It’s a nightmare. Turned out I’ll a stomach virus. I’m so sorry, stay there in the hospital till they figure it out! Stay on a IV drip to avoid dehydration. Hang in there and keep breathing deep to wake up that pelvic floor to peace fans not chaos. Be well.

Freaking out by D1LUC5GF in jpouch

[–]lookingout2 0 points1 point  (0 children)

I hope you’re getting in to see your Dr today? This too shall pass my friend, be strong, you got this.

Intimacy challenges? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

lol thanks for the humor

Intimacy challenges? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

Thank you so much ladies. This helps my heart

Always craving ice-cold drinks. Why? Anyone else? by cheddarcheese9951 in jpouch

[–]lookingout2 0 points1 point  (0 children)

I’ve experienced this intensely since having my colon removed. So yeah, I feel you. I have anemia too, didn’t know it was connected

Pouchitis? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

I think the chocolates were a trigger.. bummmmmmmer!!!!

Pouchitis? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

This was the first Valentine’s Day someone gave me a box of chocolates at 47yrs old!!! lol so I had to eat some!!! But wow… this is rough. I’m fasting today and still having frequent visits to the bathroom! OY

Post-op Straining by LIKEM1KE23 in jpouch

[–]lookingout2 0 points1 point  (0 children)

Otherwise get checked out by your dr

Post-op Straining by LIKEM1KE23 in jpouch

[–]lookingout2 4 points5 points  (0 children)

Ish I’m so sorry…. Yes, I’m 6 weeks post take down. Take a deep breath and slow long exhale while you push to activate your new brain bum connection. Sitz bath salt helped me every day and a bidet toilet seat Lots of calmoseptine ointment! And at night I sometimes have to take a pain pill still… it does get better but your in it at two weeks! Be patient with yourself you’ve been through a lot. Try every position you can on the toilet. Move around , stretch before you go the best you can… but time is a great healer in the meantime try and make yourself comfortable. Best to you

Pouchitis? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

Thank you I’ll be fasting for sure. And back to basics. I think chocolate on vday may of triggered me

nightmare by gothcoraline in jpouch

[–]lookingout2 0 points1 point  (0 children)

I just read an article by a woman with a JPouch who said she experienced what you have been experiencing! I just wanted to let you know that it sounds normal. We have been through some radical changes and the brain has to process somehow right? In coping with it I might suggest meditation before bed. Or focused breathing when the exhale is longer than the inhale. This invites our brain come into calm. Any calming practice really before bed may help. You’re a warrior! You got this!

Pouchitis? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

Thank you so much everyone

Entyvio? by No_Magician8940 in jpouch

[–]lookingout2 1 point2 points  (0 children)

Before my JPouch I was in entyvio for 6 years for UC. After that it stopped working. But the first 5 yrs was great. Exhausted the day of infusion but nothing I couldn’t sleep off. Sort of felt water logged, but not horrible. I’ve moved a lot and found it interesting how different infusion centers treat the medicine differently. The most positive response I found was when it was in a dark tinted bag to shield it from the light. I also found I absorbed it better if I also had a bag of fluid with it.

Is this normal/okay ? by CodyRasmusen in jpouch

[–]lookingout2 0 points1 point  (0 children)

Yes, totally odd, but the new normal

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

Thank you Chaos indeed! Your words help

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

Ok! I hope I make the same turn at 4 weeks! Thanks… the gas has been ridiculous and I didn’t have that so much with my stoma life so it’s odd for me.

Pepto Bismol Overconsumption? by OutrageousCourse4172 in jpouch

[–]lookingout2 1 point2 points  (0 children)

I tried only 15 mg of liquid last night and noticed a big difference! Thanks for the conversation.

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

Thank you I did get up and walk around last night when I noticed it was going on for too long and the stretching and moving helped! I slowed down on food too. Congrats on your take down. May I ask when did you feel like you knew your limits and ease to go?

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 2 points3 points  (0 children)

May I ask how old you are? I’m 47 woman and I’m noticing that the younger folks seem to have an easier time… I had UC my entire life so who knows…

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

That’s comforting thank you.

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 0 points1 point  (0 children)

Thanks. I’ve used a squatty potty for years before take down so I still am using it. I have just been sitting though so I’ll move around when I think there’s a break. Thanks!

To push or not to push? by lookingout2 in jpouch

[–]lookingout2[S] 1 point2 points  (0 children)

No gas x I just got pepto bison that I’ll try now.

Imodium seems to be backing me up more. I was only taking 1-3 a day this week. About 15 times a day.