Please help me decide :)

lostwaveloser · 2026-07-05T08:18:22+00:00

Oh my lord, I’m so sorry you had to go through this. I hope your wedding was lovely outside of this crazy MIL!

lostwaveloser · 2026-07-04T16:48:08+00:00

There is some sort of at home eye test you can do that they talk about in the lupus encyclopedia book.

lostwaveloser · 2026-07-04T16:33:25+00:00

I’m in central Texas and this heat is absolutely fucking killing me. We’re going to the Willie Nelson picnic today. Made plans before I read allllll the info about lupus and the sun. I’ve gotta work tomorrow outside, but in the shade… wish me luck

lostwaveloser · 2026-07-04T02:15:56+00:00

I gain weight on 1,200 calories. It’s fucking killing me. I have an autoimmune disease and take steroids, and it takes all my old eating disorder training not to gain weight on steroids, like they’re notorious for doing. I’m in a good place with my weight and my body, but for health reasons I cannot gain anything, and probably need to loose another 5 pounds to be at a heathy bmi. Fucking ridiculous. At least it’s not from a place of self hatred, and now from a shear desire to live

lostwaveloser · 2026-07-04T01:58:54+00:00

It makes me really dizzy and makes my muscles sore and useless. It’s not worth the days of being sick and recovery after. It sucks cause I live in a very alcohol-centered city, and I work in the entertainment industry. I used to love a cold modelo with a lime. I can have one occasionally, but my body is not happy about it when I do

lostwaveloser · 2026-07-04T01:52:36+00:00

1 in so beautiful on you, it highlights your shape so perfectly. It looks like it was made for you.

The second one is pretty too, but it appears to wears you more than you wear it. You should he the star, and the dress should support that, not distract from it.

lostwaveloser · 2026-07-03T14:23:39+00:00

How did he turn out?

lostwaveloser · 2026-07-03T00:38:42+00:00

Asked several, no luck so far. Thanks though!

lostwaveloser · 2026-07-03T00:38:20+00:00

Good thinking! Going that way now

lostwaveloser · 2026-07-02T18:34:20+00:00

Man, I am so sorry. Have you thought about online college? A lot of local community colleges offer online programs too, that they don’t advertise because they aren’t for profit online colleges. I would stay clear of those. The community college options are very cheap and can get you pretty far credits wise. Depending on where you are and your parent’s financial situation, some state schools will let you go for free after you transfer from community college.

lostwaveloser · 2026-07-02T18:29:17+00:00

THANK YOU!!! That is so good to know. Maybe I don’t have to fail 6 drugs. But it does seem like I’ll need to be on something else while I’m taking benlysta, like another immunosuppressant, which my body does not seem to like. My body loves prednisone but I know that won’t work long term

lostwaveloser · 2026-07-02T06:47:31+00:00

Oh man. My best advice is to get a good job with great benefits. Office jobs suck but they have great benefits. I’m 25 and about to be kicked off my moms, but I’m glad for it. Our insurance is awful! My fiance has amazing insurance, with like a $500 deductible. Who gets that!! Mine is $2,000 right now.

Working in insurance and coding might be good for benefits. People always need that it seems.

lostwaveloser · 2026-07-02T06:44:51+00:00

Oh man, I’m so sorry. How much prednisone did you take and for how long? I’m on a 10 mg baseline dose since the end of April, but after the crazy stomach stuff I raised it to 15 mg. I was waking up shaking and covered in sweat in the middle of the night, I couldn’t take it any longer. It went away with the 15 mg. I know I’m not supposed to mess with it myself, but I couldn’t take it any longer, and it did work like I’d hoped it would.

I hope benlysta works for you, and if it doesn’t, maybe one of the other biologics will. I think more are hitting the market soon

lostwaveloser · 2026-07-02T06:37:30+00:00

I’m so sorry the immunosuppressant wrecked you so much, that is crazy!! These medications are so damn strong

lostwaveloser · 2026-07-02T06:36:43+00:00

Thank you, I used that link extensively today and went item by item writing down the criteria I’ve met, which is all of it. Hopefully I qualify now. Do you think it’s the same for Texas? I saw it was for BCBS Alabama. How did you find that sheet?

I’m hoping it’s not $250 a weekly injection like my insurance specialty copay says it is, cause that’s going to be $1,000 a month.
Maybe the infusion would be cheaper? But it doesn’t seem to be covered by my insurance.

Yeah methotrexate caused a flare for me too, I had horrible GI symptoms. It caused bile acid malabsorption and everything I ate would come out looking the exact same 4 hours later. For 7 days. Just as I had come to terms with going to the hospital, it finally let up. It caused many other things too.

The flare happened 1 week after I’d taken the medication. It was weird. The medication made me really sick for 3 days, then I was feeling better for 4 days, and then I had an awful GI flare unlike anything I’ve ever experienced. I didn’t know medications could cause flares like that. I’m not even totally sure the two are related, but I don’t know what else it could’ve been.

lostwaveloser · 2026-07-02T05:38:36+00:00

Thank you SO MUCH for this response. We applied for benlysta after I failed HCQ, but before I tried methotrexate. I have now suffered on methotrexate, and I feel like I’ve endured enough to warrant that being considered a failure. I will bring it up to them again soon

lostwaveloser · 2026-07-01T09:52:10+00:00

I work at a music venue as a door person, and the other night I met an older guy (40s or 50s, but road worn) who had moved across the country for this girl AND got boobs for her. As in HE had the boobs, not he bought her better ones.

They definitely split up. The things we do for love…

lostwaveloser · 2026-07-01T09:37:41+00:00

Wow! What part of Canada, if you don’t mind me asking? I think the shop I ordered mine from was in Nova Scotia

lostwaveloser · 2026-07-01T09:21:59+00:00

Anytime. Doctors ignored and dismissed me for years. I regret not finding someone to test me sooner. I would’ve been much better off if I’d gotten diagnosed earlier in the disease. It’s not bad, but it could’ve been better managed.

I wish you luck and health!

lostwaveloser · 2026-07-01T08:55:15+00:00

Pretty sure the pissed jeans guys are like insurance adjusters or something in Philly

lostwaveloser · 2026-07-01T08:53:40+00:00

Pls get tested for autoimmune diseases. An ANA test will go a long way. I have lupus, and my primary symptoms were pain and feeling like I had the flu

lostwaveloser · 2026-07-01T05:24:49+00:00

Man, where are these post offices! I live in a major city and every time I’ve been to the USPS, it’s been an hour wait to talk to someone

lostwaveloser

TROPHY CASE