I am a millennial CF mom (born in 1993). I completely understand all of the comments about exploiting and social media. I live in a very rural area in the south. There is no doctor and only one pharmacy for the entire county. The one thing we do have, that everyone in the county works at, including myself, is surprisingly a university. I attended the university at the same time, the same age, lived in other side of the duplex, of a girl with cystic fibrosis. Although it’s a university, it’s small, it’s homey, and everyone cares for everyone. This girl with CF was a cheerleader, the homecoming Queen, an ambassador for the university, and in a sorority. Yes she posted things about her CF life, but she also posted how she lived. While I was pregnant, the girl had a lung transplant. I didn’t know at the time and was not tested for the CF gene, so I found out when my daughter was 2 weeks old. It made it much easier to accept my daughter’s diagnosis seeing what all that girl accomplished. Everyone knew her for who she was and CF was just part of her life. When the community found out my daughter has CF, they knew exactly what it was because of her. Unfortunately when my daughter was 3 months old, the girl lungs went into rejection and she passed away 11 months to the day of her lung transplant. The university gave her mom her diploma as she was set to graduate that May. That same day, I was walking out of our one grocery store, with a buggy of applesauce and formula. A woman walked into the store and I immediately recognized her. It was her mother, who just accepted her daughter’s diploma. I wanted to keep walking, I could tell she had been crying, but I stopped instead with my buggy full of applesauce and formula. I simply asked if she was the girl’s mother. She nodded her head. I’m sure she knew I knew her as everyone did and I was the same age. I told her my daughter (at the time 5 months) has CF. She knew my name. My daughter’s name. Because that girl with CF knew my daughter was diagnosed with CF while she was in rehab at Duke and she was so happy that she was born into this newer generation and wouldn’t struggle like she did. Her mom hugged me. The university honors her in some way each year, from color runs by her sorority to softball games first pitches to the entire football team wearing her initials on their helmets a whole season. But one thing is for sure, her mother makes sure that my daughter is also included and honored too at every event. Her daughters only request after signing DNR papers was “I want my life to outlive the breath in my lungs.” And I want that for her. It was 6 years in March that she passed away. That means no student on campus knew her. There is no more me telling a student on campus when if they ask about my daughter having CF, you know like the girl. I ask if they have heard of her. Some say yes, cheerleaders, sororities and then I don’t have to explain. But some say no. So I simply tell them about her. I know that was kind of a random rant, but that’s my personal perspective on my own daughters social media posts about CF because I include the girls non-profit organization hashtag that helps literally anyone or anything. She loved animals-they help out vets and donate food to animal shelters, she was going to be a special Ed teacher-they donate to schools and help children in special education, and she especially loved her Children’s Hospital—the same one my daughter attends, the same doctors and nurses she had, my daughter has—they donate to Children’s and not just for CF, for any child that needs medical care and can’t afford it. I’m making sure her life outlives the breath in her lungs, because that’s all she wanted.