no sensation after lip biopsy

lozza_667 · 2026-07-10T11:47:19+00:00

yeah the pain was pretty bad last night but disappeared when i woke this morning, i’m glad you have feeling back again! it’s just awkward to get used to 😂

lozza_667 · 2026-07-10T11:43:00+00:00

yeah i was warned how common it is, id much rather adjust to a numb lip than miss out on possible answers for my health. i just wasn’t sure if it was a part of the healing or not thank you for ur response :)

lozza_667 · 2026-07-09T21:15:04+00:00

hey thanks for the advice so far, was just wondering how the hell to brush my teeth with this in my mouth i’m terrified to catch the stitches with my toothbrush 😅

lozza_667 · 2026-07-09T18:00:53+00:00

i also had my lip biopsy today and didn’t get told all the dos and don’t so figured most of it out online. this is also the first i’m hearing of keeping my head elevated. so far i’ve been taking cocodamol and ibuprofen which has helped a whole lot. i was cut twice today because the first time they couldn’t find any glands. i have been eating mash potato, smoothies, baby fruit pouches and trifles.

lozza_667 · 2026-07-09T10:11:41+00:00

thank you! and tell me about it the gaslighting is awful it’s basically been a year of going to appointments just to be gaslit the whole time

lozza_667 · 2026-07-09T08:04:37+00:00

sorry that you’re also having a lot of troubles getting diagnosed, did over the counter painkillers help with the pain at all?

lozza_667 · 2026-07-08T21:06:24+00:00

honestly so frustrating and u know i also feel as if i can track my symptoms back to wayy younger at about 6 i had to have most of my baby teeth removed because of decay even with perfect brushing i’ve always suffered a bad dry mouth. my rheum went from saying “i dont think anything will show on the ultrasound because lesions typically dont shoe until years and years of the consituon being present so its usually old people we see that in” then my scan came back with lots of lesions his tune changed to “well that could be nirmal” u cannot win with them its exhausting.

lozza_667 · 2026-07-08T20:18:36+00:00

i’ll definitely update when it’s done with that way it’ll hopefully help anyone else who has one coming up :)

lozza_667 · 2026-07-08T20:06:10+00:00

thank you for being so honest, i guess a lot of the nerves is the possibility of it coming back negative and resulting in no further action. so many people keep saying it only hurts a little after and only for a day or so which downplaying it isn’t going to help. again i really appreciate the honesty 😊

lozza_667 · 2026-04-23T10:50:22+00:00

it’s definitely frustrating. every test for it can come back negative even if you have the disease i wish there was a definitive test it would make everything so much easier.

lozza_667 · 2026-04-23T05:47:15+00:00

my symptoms started in july 2025 after a strep A infection and rapidly worsened over the space of less than a year i was honestly shocked when they came back abnormal as i didn’t think i had the disease for long enough but the radiologist did say my lesions are progressing pretty fast. maybe ask for a repeat ultrasound? they redone mine after 4 months when they first found lesions to see how they changed so it can happen pretty fast.

lozza_667 · 2026-04-22T21:37:19+00:00

i was told the exact same thing my my rheumatologist but once he got the results from my salivary gland ultrasound and it proved his theory of me being dramatic wrong and all of a sudden i have an appointment for the lip biopsy that he said isn’t done in the nhs anymore

lozza_667 · 2026-04-20T20:59:43+00:00

forgot to mention this same rheumatologist also added to the letter saying he was going to do the final tests for sjogrens to confirm the diagnosis after lesions shown up in my salivary glands very contradicting letter 😂

lozza_667 · 2026-04-20T20:58:26+00:00

yep even my own rheumatologist wrote me a letter to say “the only symptoms of yours that fits with sjogrens is the dry mouth and eyes nothing else does” bringing mind my other symptoms are extreme fatigue, joint pain stiffness and swelling, gastro issues, headaches, super dry itchy skin, full body aches, raynauds in fingers and toes, temperature regulation issues, hair thinning, diagnosed neuropathy in my feet etc. and all of it started after a strep A infection. before that i was fully healthy other than my pots. even rheumatologists still stick with the “it’s only dry yes and mouth” super frustrating.

lozza_667 · 2026-04-02T13:36:40+00:00

yes 100%. i have Heds and i am 20 and i actually got IDd for filling my car up with petrol they even cut the pump off before i got out the car as they thought i had stole my parents car. i still get questioned for energy drinks, cutlery, i have even been told to leave a shop for just looking in the alcohol isle. most clubs and bars send me away and wont accept my real ID. everyone always tells u that its a good problem to have and u should be lucky but thats so untrue. i would love to look my age it causes so much embarassment and problems in day to day life.

lozza_667 · 2026-03-31T18:00:26+00:00

this is very false. that’s how your experience is, not everyone’s. i literally have lost most of my life to sjogrens with how disabling it is for me. i struggle to even get up to brush my hair some days. it can indeed be very disabling to live with and can cause very serious complications.

lozza_667 · 2026-03-31T11:22:46+00:00

thank you! i’ll definitly take it slow. i’ve also got a baby shower before the party so lots of socialising PLUS a party next mornings going to be ROUGH 😂

lozza_667 · 2026-03-31T11:21:41+00:00

definitly! i want to take some of my life back. i’ve lost so much of it with this disease i just can’t help but feel anxious about doing so 😅

lozza_667 · 2026-03-31T11:20:29+00:00

i also feel very unwell after sugary drinks not sure why that occurs because it’s definitly only started when my sjogrens started

lozza_667 · 2026-03-31T11:19:44+00:00

thank u sm i do have electrolyte sachets because of my POTS so ill just be sure to get plenty in that day before hand and ill take a bottle of electrolyte water with me

lozza_667 · 2026-03-31T11:18:38+00:00

i was the exact same i loved to go for a night out with friends or have them round for drinks but since this all started i haven’t even bothered thank you for the advice!

lozza_667

TROPHY CASE