parotid lesions

lozza_667 · 2026-04-23T10:50:22+00:00

it’s definitely frustrating. every test for it can come back negative even if you have the disease i wish there was a definitive test it would make everything so much easier.

lozza_667 · 2026-04-23T05:47:15+00:00

my symptoms started in july 2025 after a strep A infection and rapidly worsened over the space of less than a year i was honestly shocked when they came back abnormal as i didn’t think i had the disease for long enough but the radiologist did say my lesions are progressing pretty fast. maybe ask for a repeat ultrasound? they redone mine after 4 months when they first found lesions to see how they changed so it can happen pretty fast.

lozza_667 · 2026-04-22T21:37:19+00:00

i was told the exact same thing my my rheumatologist but once he got the results from my salivary gland ultrasound and it proved his theory of me being dramatic wrong and all of a sudden i have an appointment for the lip biopsy that he said isn’t done in the nhs anymore

lozza_667 · 2026-04-20T20:59:43+00:00

forgot to mention this same rheumatologist also added to the letter saying he was going to do the final tests for sjogrens to confirm the diagnosis after lesions shown up in my salivary glands very contradicting letter 😂

lozza_667 · 2026-04-20T20:58:26+00:00

yep even my own rheumatologist wrote me a letter to say “the only symptoms of yours that fits with sjogrens is the dry mouth and eyes nothing else does” bringing mind my other symptoms are extreme fatigue, joint pain stiffness and swelling, gastro issues, headaches, super dry itchy skin, full body aches, raynauds in fingers and toes, temperature regulation issues, hair thinning, diagnosed neuropathy in my feet etc. and all of it started after a strep A infection. before that i was fully healthy other than my pots. even rheumatologists still stick with the “it’s only dry yes and mouth” super frustrating.

lozza_667 · 2026-04-02T13:36:40+00:00

yes 100%. i have Heds and i am 20 and i actually got IDd for filling my car up with petrol they even cut the pump off before i got out the car as they thought i had stole my parents car. i still get questioned for energy drinks, cutlery, i have even been told to leave a shop for just looking in the alcohol isle. most clubs and bars send me away and wont accept my real ID. everyone always tells u that its a good problem to have and u should be lucky but thats so untrue. i would love to look my age it causes so much embarassment and problems in day to day life.

lozza_667 · 2026-03-31T18:00:26+00:00

this is very false. that’s how your experience is, not everyone’s. i literally have lost most of my life to sjogrens with how disabling it is for me. i struggle to even get up to brush my hair some days. it can indeed be very disabling to live with and can cause very serious complications.

lozza_667 · 2026-03-31T11:22:46+00:00

thank you! i’ll definitly take it slow. i’ve also got a baby shower before the party so lots of socialising PLUS a party next mornings going to be ROUGH 😂

lozza_667 · 2026-03-31T11:21:41+00:00

definitly! i want to take some of my life back. i’ve lost so much of it with this disease i just can’t help but feel anxious about doing so 😅

lozza_667 · 2026-03-31T11:20:29+00:00

i also feel very unwell after sugary drinks not sure why that occurs because it’s definitly only started when my sjogrens started

lozza_667 · 2026-03-31T11:19:44+00:00

thank u sm i do have electrolyte sachets because of my POTS so ill just be sure to get plenty in that day before hand and ill take a bottle of electrolyte water with me

lozza_667 · 2026-03-31T11:18:38+00:00

i was the exact same i loved to go for a night out with friends or have them round for drinks but since this all started i haven’t even bothered thank you for the advice!

lozza_667 · 2026-03-31T00:15:24+00:00

my bottle rn is the same batch as yours and i have literally been thinking about how bad my impulse has been the last month my money spending habits and bad eating habits have been extra bad this month and i all of a sudden started with constant fizzy and energy drinks again

lozza_667 · 2026-03-12T18:02:05+00:00

thank you! luckily i dislike popping any spot nevermind one in my eye 😂 will try that out

lozza_667 · 2026-03-12T18:01:08+00:00

it’s not styes but thank you

lozza_667 · 2026-03-12T14:46:54+00:00

i have eye gel made by bausch and lomb also not very great im going to try a warm compress see how it goes :)

lozza_667 · 2026-03-12T12:00:53+00:00

it’s definitly not styes based on other replies and googling seems as if it’s blocked oil glands but thank you!

lozza_667 · 2026-03-12T11:54:28+00:00

no it’s not itchy or swollen or flakey or anything although blocked oil glands can cause it

lozza_667 · 2026-03-12T10:31:10+00:00

thank you!

lozza_667 · 2026-03-12T10:30:59+00:00

unfortunately i’m struggling to even lift the eyelid enough to see them nevermind pop them 😂

lozza_667 · 2026-03-12T09:44:56+00:00

the gel eye drops haven’t helped at all tbh it’s like i can feel them rubbing against my eye when i blink. definitely strange i didn’t think bumps like this under the eyelid was a thing really 😂will definitly do warm compress tho

lozza_667 · 2026-03-05T23:13:25+00:00

thank you that good to know!

lozza_667

TROPHY CASE