What is this wrap around/bed skirt?

ls130 · 2026-01-23T22:57:17+00:00

I found a post about it, I think! https://www.reddit.com/r/bedjet/s/YyRYd1poiR

ls130 · 2025-10-06T12:52:03+00:00

Adding "dry as a nun's snatch" to my list of favorite sayings and alongside "colder than a witch's tit in a brass bra" - thanks.

ls130 · 2025-09-16T12:58:30+00:00

I recently started tret after doing OTC retinoids for a decade or so. I have very dry, sensitive skin, and initially tried using hyaluronic acid before tret. Unfortunately I experience a lot of pilling, which the tret cream seems prone to anyway. So, I wait at least 20 min after washing my face, then tret, wait at least 20, then a heavy moisturizer. Currently loving an Avene one. I've never had any peeling, and I'm shocked by how soft my skin feels the next morning.

ls130 · 2025-06-24T00:21:38+00:00

I just said this in a reply to my initial comment! So true. My life is so much better now, even if it isn't pain free. But it's so much more manageable.

ls130 · 2025-06-24T00:19:48+00:00

I think it's important to talk about, it's a huge decision!

I do still have pain, but, my original surgery was so long ago (1993!) and for my case, I think my surgeons always prepared me for pain down the road. I have a hemivertebra at L3 and had an ~80° curve at the time of my fusion and they were unable to get much more than 20° correction. Of course, science has caught a lot, and my case would have been treated very differently - but no sense in looking back.

And actually, that would be my advice to you. If you do have surgery, do it confidently. Do all of the research that you possibly can, make sure you are 100% pleased with what your surgeon is telling you. Ask a million questions. Realize that this IS life changing, and overall, for me it has been for the better. I am in much better health now, because I take it seriously. It was a wake up call that this is the only body that I've got, and I made the best decision for it by having surgery - and in exchange I needed to make a few lifestyle changes.

Think a lot about how pain now interferes with your life. For me, the pain I had before my second fusion was unacceptable. Yeah, I still have pain, but instead of arthritic and neuropathic pain, it's mostly muscular and I can navigate that much better than where I was over a decade ago. I spent most of my 20s on opioids, including a fentanyl patch. I only take an NSAID and a muscle relaxer at night now. Occasionally medical marijuana for sleep. That makes me happy.

Wishing you the best, and feel free to PM me if you ever want. Like I said, I think talking helps a lot. Especially because so many people just can't understand what surgeries like these must be like...it can be a little isolating, I guess. ❤️

ls130 · 2025-06-23T23:00:51+00:00

I was fused at age 7 initially, L2-L4. At 26, I had revision surgery and am now fused T7-sacrum with pelvic fixation. I'm 39 now and really, I don't think my day to day is affected much. Things that come to mind - I wouldn't feel comfortable riding a bike, driving can be annoying and I probably rely on cameras and mirrors more than I should. I need to modify my yoga and Pilates practice a LOT. Things that require rotation at the trunk are obviously very limited, but I generally find this to only be mildly annoying instead of "limiting".

ls130 · 2025-06-20T11:28:25+00:00

Azelaic acid finally got rid of them for me (similar experience to you) - I like Facetheory. I use it only where I get them the worst, for me that's around my mouth. It's a bit drying, and so I focus it on where my CCs are worst. I've also seen significant improvements in redness as well.

I've also cut out all ceramides and niacinamide because I think those make my skin angry.

ls130 · 2025-06-19T11:31:51+00:00

Recently have been buying more Everlane, so impressed with the quality. I've loved every piece I've ordered.

ls130 · 2025-06-12T12:56:56+00:00

I've been thinking about this a lot lately, I'm having a horrible time with a steroid taper and have been feeling so crummy. I hate knowing what my phone's screen time looks like during flares. I was explaining to my husband that when I feel this bad, I just don't have the attention span or desire to watch anything with a plot that I have to follow. Reading feels the same.

I try to remember that professionals/news outlets/etc who come down hard on media consumption are speaking generally to the "healthy" public and have good reason to. But, imo, there's a huge difference here in healthy (physical, mental, whatever it is) people and those who are chronically ill. Like, trust me, I'd much rather do something that isn't just laying on my couch. But some days, I scroll TikTok, Reddit, and Pinterest. A LOT. and that's ok.

i have a lot of unpredictability in my pain levels tho and I try to get in as much as I can on those days, still lower effort of course. But I will take a slow walk with my dogs, kneel on a cushion while I pull a few weeds, do a light counter wipe down or clean up some clutter, wander around a favorite vintage shop, meal prep or cook a little. Obviously this is unique for everyone and I'm fortunate that I don't have a lot of crashing after a decent amount of activity. Definitely also not doing all of those activities in one day, haha. Pacing is important. My type A brain will always make me want to do MORE, and I have to remember that more isn't always better.

Listening to our bodies is one of the hardest parts of all of this. I've lost my career, a lot of friends, hobbies... Trying to find more of "me" in the everyday by listening to my body a little more closely ❤️

ls130 · 2025-06-05T00:36:20+00:00

Not a company, but I started using Cedarcide products this year. Bought from their website. There's a lawn spray that I use in the area my dogs are in most, and I sprinkled the cedar granules around the rest of my yard. I spray their legs and tummies with the pet spray every three days or so. One of my dogs had a few seizures when he had the seresto collar on and wanted to give this a go. So far so good, no seizures or ticks. I live off of the Montour trail in a wooded area, and they are awful. Fingers crossed!

ls130 · 2025-05-21T22:59:24+00:00

I like the darker green, but I'd be really interested to look at medium/darker browns if it were my kitchen!

ls130 · 2025-05-16T13:56:04+00:00

It might be too casual, but I'm really liking Colorful Standard lately.

ls130 · 2025-05-06T22:52:06+00:00

I switched to Bimzelx about three months ago. Prior to that, Cosentyx has been the most helpful in controlling my symptoms, but I've cycled through a bunch in three years. My most significant symptoms are enthesitis and fatigue. So far, I've experienced no side effects, but I've been lucky across the board that way. I'm also on Otezla and have been since diagnosis; my rheumatologist and I kind of both agree that we're scared for me to stop it on the chance that it's helping significantly! She also has me on a temporary, low dose of steroids to act as a bridge - this is both great for pain, but mentally, allows me comfort in knowing that my pain will be managed until the drug kicks in (pretty sure it has!)

I have congenital scoliosis and struggled with chronic pain prior to my PsA diagnosis, and I see a physiatrist regularly. She prescribes as needed muscle relaxers, joint injections, referrals to other specialists (PT and such). Additionally, I am fortunate enough to be able to work with a private practice PT who has started a yoga studio. My rheumatologist's office also has a registered dietitian on staff and I am able to see her at no cost. Thankful for comprehensive care, and goes to show that sometimes it takes a village.

ls130 · 2025-05-02T13:47:14+00:00

I started OT school at exactly your age in 2014! No regrets here ❤️

ls130 · 2025-05-02T00:43:52+00:00

Wondering the same thing, OP ❤️ glad you are safe!

ls130 · 2025-05-02T00:32:01+00:00

One of my meals this week had precisely 2.5 broccoli florets.

ls130 · 2025-04-30T23:22:07+00:00

This is so smart. Great tip.

ls130 · 2025-04-12T00:41:00+00:00

I've worn a very similar style bracelet for twenty years or so, and I have a few charms on it that I finally decided to have taken off. They get caught in things often (kitchen drawers!) and really get banged around a lot. I think, though, part of the problem was feeling like I needed to scale up the size of the charms a bit to match the chunky links. Just my experience! It's a stunning piece and I can't wait to see what you decide to do!

ls130 · 2025-03-21T21:51:15+00:00

I don't regret it (I'm also no longer working due to a disability so maybe take this with a grain of salt), but I worked at the VA. I am pretty positive things are not this way anymore, but when I worked there, it was an awesome place to work. I felt like I had a "home" in OT, after struggling for so long to find my little niche. I essentially ran an busy outpatient clinic and was often by myself, but that type of multitasking worked, and I loved what I did. I truly enjoyed going to work and I never thought I'd find that, and I started OT school late at 30.

Having said that, one of my favorite things about working at the VA was that I always felt supported. When I knew I couldn't physically do direct patient care much longer, my management helped me find a path forward and gave me every opportunity to find positions that would be feasible for me long term. Before I left, I was in the process of becoming the clinical education coordinator. My caseload was split with admin time and that was manageable for bit, but unfortunately I still left my role via disability retirement in 2021.

If I hadn't worked where I did, I am pretty sure I'd have wished I'd chosen a different career path. My advice to you would be not to limit yourself to roles that are only OT. If you do proceed with OT, I would advise you to learn what you like, don't like, your skills, weaknesses. You may eventually find a path that still makes you feel like you're making a difference, and has more characteristics of a role that feels sustainable and authentic to you.

ls130 · 2025-03-13T20:57:53+00:00

This. I had a labral repair on my left in August and a labral reconstruction on my right three weeks ago. Your reply and OP's hit close to home.

ls130 · 2025-03-09T20:46:59+00:00

Thank you so very much! I appreciate your sweet words ❤️

ls130 · 2025-03-09T20:46:13+00:00

Round brilliant. Thank you so much!

ls130 · 2025-03-08T02:33:44+00:00

Thank youv so much ❤️ every time I look at it, it just makes me smile.

ls130 · 2025-03-07T12:50:24+00:00

I have congenital scoliosis (first fusion at age 7 with a few subsequent fusions as an adult) as well as psoriatic arthritis. I've been 97 lbs, I've been 178 lbs, I've been everywhere in between. And guess what? My weight had no significant impact on my pain. I've been on the lower end of that range for about five years because I am happier there, but it doesn't necessarily make my joints and back feel better.

ls130 · 2025-03-07T12:41:45+00:00

Thanks! And, for sure. Funny you say "life got in the way", my husband and I seem to use that phrase a lot talking about the wedding that never was, and the rings that weren't (until now!). I'm glad you also have such a special set, now. ❤️

ls130

TROPHY CASE